Guest wrote:Sorry for the typo earlier. He uses the CPAP while awake only for 30-60 minutes. Claims it helps him get more oxygen and makes him feel better. He does not use it when sleeping at all. It actually has been sitting in the closet for the last 18 months after it set on the side table of our bed room for the preceeding six months (collecting dust).
I have encouraged him to go back and have it readjusted and/or see the sleep specialist but he refuses to do so. I have printed numerous posts from this website but if he does read them I don't think it is making an impact.
In the last two years he has gained a considerable amount of weight. He now occasionally has swelling in his legs. He claims it is related to his sleep and indicates it is similar to the way my fingers may swell in the summer time from heat. (Which I have never said I had problems with that ). But, that is just another excuse. In the past he was incontinent at night but denied it indicating it was one of our children peeing on the chair. But they wore diapers at the time and never had wet pjs. Where as I would find his clothes in the dryer after he washed them. Now I am concerned that he may be impotent as his lack of interest is unusual for him.
I know you don't need to hear all this but sometimes it helps to vent.
Using cpap while awake is of no benefit. If he is feeling better, it's probably just a 'buzz' from using it.
Having gained weight, in addition to not using cpap, his condition has probably deteriorated further. Swelling in the legs is known as 'odema'. I believe (subject to correction) that it is a build up of fluids and is usually a sign of cardiac problems or in some cases renal problems. Both cardiac and renal problems are strongly linked to untreated apnoea. Might even be the start of CHF (congestive heart failure).
Incontinence could be related to other problems, but a disorder known as 'nocturia' is linked to untreated apnoea. This involves a considerable number of visits to the bathroom during the night...........in your husbands case he may be sleeping through it.......from exhaustion.
Impotence is also linked to untreated apnoea.
IMHO, your husband's inattention to his untreated apnoea has allowed the condition to develop/deteriorate further and a number of the side effects are becoming more pronounced. He is at increased risk of a stroke or heart attack.
He must realise that he is not superman and is not able to fight this thing through neglect.
Feel free to rant, at any time....if it helps.
I suggest that you print this reply and put it in front of him. I have no axe to grind, but I have been there and have a good idea of how he is feeling.........and can only imagine how bad things are for you and your children.
Best of luck and don't be afraid to keep posting.
The untreated Sleep Apnoea sufferer died quietly in his sleep..
Unlike his three passengers who died screaming !
The first 40 years of childhood are by far the hardest