N1IWR wrote:Look at you!!! Researching & teaching/educating others with what you found!!! Go You!!!! Thanks for the info! I'm new too, total of 3 weeks & much like you, I'm seeking info & support here, as well as reading anything I can get my hands on. I don't know you...yet! But I'm so proud of you for 'taking the bulls by the horns" & doing it with such a positive attitude!! I'm betting you'll have this problem and any others that come down the pipe, figured out & back on your way to more rested sleep!!
Thanks for being so inspiring!! I'm only having 2 small issues, but it's been a bad week & I've sooo wanted to give up! You & the immensely supportive guru's here have given me courage & hope to keep on keepin on!! I really appreciate your positive attitude!!
Good luck at the docs & let us know how you make out!! Hang in there!
Thank you for the very positive feedback from one newbie to another!
In all honesty, I am a PAP "retread" starting back in 2002 at the age of 42. My then husband told me I should see a doctor because he said I "gasped, snorted, and stopped breathing during the night". I honestly believed that my husband was making a big deal over "a little snoring". Finally, after he threatened to sleep in the guest room and "hoped he would not wake up to find me dead", I said I would see my GP. My GP told my husband and I that "a little snoring is not a big deal" and "we only see sleep apnea generally in males who are overweight". I only received an order for a sleep study because my husband was hell-bent on finding out what was wrong.
At that time, I was diagnosed with "moderate OSA". Back then, my GP simply handed me a prescription that read, "CPAP at 9 cmH20" and told me to call my insurance company to get a list of providers. I do not recall my GP giving me any information/education concerning the importance of treating OSA!
To illustrate how much OSA knowledge and treatment has changed from 2002 to 2010, I showed my sleep study to one of the Cardiologists that I worked for (I am an RN). He said, "that's impossible, you are female, young, and thin." Basically this very smart Cardiologist told me that my report was a load of rubbish! Research has certainly come a long way!
I did some research about machines and interfaces before speaking to my DME so that I could at least make some type of educated guess as to what might work for me. Back then, the rage was "C-Flex" with something called "ramp". So that's what I got. I went through about 10 masks before I found something that was barely tolerable. Masks back then were horrible (IMO).
I made it approximately 30 days with a mask that leaked all night (because my DME told me that if I had air leaks to simply tighten the mask - wrong!), my machine alarmed all night, and by 3:00 AM I was completely frazzled and ended up ripping the mask off so I could get at least 3 hours of sleep. Mr. CPAP machine and mask ended up in my closet for many a year.
This type of indifference continued through my sleep studies in 2004 and 2005. In 2005, I dusted off my CPAP machine and tried again. Same problems and no help from my GP - more importantly, no referral to a sleep specialist. My sleep studies - all 3 of them at this point were essentially dismissed because I was female, youngish, and thin. I was exhausted all the time and was told by my GP that I simply needed more exercise. Of course, I had the same problems with the mask leaking, etc. and I simply gave up.
So fast-forward to 2010. I could not get out of bed, I was so exhausted. My daughter came to live with me and told me that I sounded horrible when I was asleep. The light-bulb went on and I showed my new and much improved GP copies of my prior studies and she was quite alarmed. She referred me for a split-night study which I had on October 5, 2010. When I went back for my follow-up, my GP, simply said, "You, my dear, are going to see a sleep specialist". The world of sleep medicine has certainly changed!
So, I can't wait to see my sleep doc this morning and see what I can do about swallowing air. I'll keep everyone posted. Hugs, Laurie