Removing CPAP mask in sleep...

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Removing CPAP mask in sleep...

Postby tommyt1971 » Wed Jan 26, 2011 11:17 am

If there's a forum for this already, please direct me to it! Thanks!

I've been on CPAP for just over a year & the biggest problem I have is that I'm removing the mask in the middle of the night. A few times I've felt that the pressure from the machine was somewhat suffocating but I can't train myself to hit the ramp button instead of taking the mask off completely.

The company that manages my case have been great but they have no effective suggestions for me.
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Postby littlemissy » Wed Jan 26, 2011 12:06 pm

Hi, I'm still trying to adjust on my CPAP too but I asked my friend about this and she said that you could probably move the machine closer to you so that it's more accessible. She also suggested that you use chin straps. I myself use extra straps to keep my cpap in place along with strap guards since I toss around as I sleep.

Hope that helped? If you've already heard that before I could ask my friend again for other suggestions.
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Postby tommyt1971 » Wed Jan 26, 2011 12:35 pm

Thanks. Dunno if extra straps would work, the mask I have is secure enough. My prob is some sort of subconscious thing & most of the time I'm not even awake enough to realize I've taken the thing off. I've tried setting an alarm for about 3AM so that I can check if the mask is still on but it hasn't worked. I also tried wearing it while I'm awake to get used to it but no dice. Does your friend have any other advice? I know there's gotta be a trick that works for this...
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Postby jessy 49 » Wed Jan 26, 2011 8:21 pm

Turn the ramp off.

What make and model of machine are you using. Is it set too low -- are you actually taking the mask off to get more air? What are your pressure settings? Ramp setting? C-flex (or EPR) settings?

What style, make and model of mask are you using? Is it actually comfortable? Do you have it too tight for real comfort? Is it leaking?
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ResMed S8 Elite with ResMed Activa LT mask, pressure 14
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Postby LTee43 » Wed Jan 26, 2011 10:49 pm

I'm going on 3 years with mine and recently, maybe 2 months ago, woke up with the CPAP running but the mask was on the floor. I had to take it off in my sleep. All total, I've done it maybe 5-6 times. Mostly when I first started using it.

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Postby tommyt1971 » Mon Jan 31, 2011 10:48 am

jessy 49 wrote:Turn the ramp off.

What make and model of machine are you using. Is it set too low -- are you actually taking the mask off to get more air? What are your pressure settings? Ramp setting? C-flex (or EPR) settings?

What style, make and model of mask are you using? Is it actually comfortable? Do you have it too tight for real comfort? Is it leaking?


Hi, thanks for replying. I had a pretty busy weekend so I didn't get a chance to reply sooner.

I use a Phillips Respironics Remstar Auto A Flex unit. It's set for 13... what is that called, mgH or something. I know the # is 13 tho... I really need to read up on it, I know!

I wear a ResMed Mirage Liberty mask: http://www.thecpapshop.com/sc_images/products/680_add_image_2.jpg
I have to wear one of these because the triangular, full face types irritate the bridge of my nose, causing an acne like cluster, no matter how much I loosen the straps. I think I'm allergic to comfort gel.

I'm just wondering if anyone has some sort of trick to get around ripping the mask off after wearing it for only 1.5-2 hrs at night...?
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Postby dave4647 » Mon Feb 14, 2011 5:35 pm

I used to do that when I first started. In fact, I still do it occasionally (not very often though).

I got a roll of medical/sports tape - the paper kind, Johnson and Johnson, I believe it's the "blue" type - and I would tape the headgear of the mask so that it was stuck to my hair. Just put a piece of tape across it. If I tried to take it off... it would hurt. Quite a bit.

After a while I stopped trying to take it off. :)

Hope that helps.
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the feeling

Postby newmember_jen » Mon Feb 14, 2011 7:52 pm

I am a new user too. I guess I kinda feel the suffacating feeling too, in the middle of the night. Wander why that happens
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Postby tommyt1971 » Thu Feb 17, 2011 10:24 am

dave4647 wrote:I used to do that when I first started. In fact, I still do it occasionally (not very often though).

I got a roll of medical/sports tape - the paper kind, Johnson and Johnson, I believe it's the "blue" type - and I would tape the headgear of the mask so that it was stuck to my hair. Just put a piece of tape across it. If I tried to take it off... it would hurt. Quite a bit.

After a while I stopped trying to take it off. :)

Hope that helps.


Thanks, I'll try that out sometime soon. The other night I disconnected the tube from the front of the mask, a new subconscious act on my part, & the machine ran for the rest of the night. Drained the humidifier tank! Woke up w/a mouth that felt like 100 mi of bad desert road! UGH!!
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Postby Mrs Rip Van Winkle » Thu Feb 17, 2011 12:32 pm

I'm just wondering if anyone has some sort of trick to get around ripping the mask off after wearing it for only 1.5-2 hrs at night


I use a Phillips Respironics Remstar Auto A Flex unit.



I didn't see this thread back in January...sorry. Key words here are : I take it off only about 1 1/2 to 2 hours after falling asleep and I have an AUTO machine.
You said your machine is set at 13 ...however, if you have an auto machine it is more likely to be set with a pressure range...and you 90 or 95 percentile pressure at titration was 13cm. I have a sneaking suspicion that your machine is set with a pressure range...maybe 4cm at the lowest and 20cm at the highest...and you are experiencing either pressure spikes or after a higher pressure needed it goes back down to 4cm and feel like you are not getting enough air.

The timing sounds like the pressure spikes would be the cause...or the machine is not reaching the optimal level quick enough to stop an apnea...this timing of 1 1/2 hours to 2 hours is just about the time you would be in REM sleep...which is typically when the apneas are the worse and more frequent

Please check into that...if your settings are a wide range ask to have them set closer to your titrated pressure...typically it is about 1 to 2cms above and below the titrated pressure...in your case if the titrated pressure is 13cm...then it would be set around 11 or 12cms on the low and 14 or 15cms on the high.

Usually the reasons for this are more than what meets the eye...typically it is an issue with the therapy, not the person unable to adjust.

Just my thoughts....
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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Postby tommyt1971 » Thu Feb 17, 2011 12:47 pm

Mrs Rip Van Winkle wrote:
I'm just wondering if anyone has some sort of trick to get around ripping the mask off after wearing it for only 1.5-2 hrs at night


I use a Phillips Respironics Remstar Auto A Flex unit.



I didn't see this thread back in January...sorry. Key words here are : I take it off only about 1 1/2 to 2 hours after falling asleep and I have an AUTO machine.
You said your machine is set at 13 ...however, if you have an auto machine it is more likely to be set with a pressure range...and you 90 or 95 percentile pressure at titration was 13cm. I have a sneaking suspicion that your machine is set with a pressure range...maybe 4cm at the lowest and 20cm at the highest...and you are experiencing either pressure spikes or after a higher pressure needed it goes back down to 4cm and feel like you are not getting enough air.

The timing sounds like the pressure spikes would be the cause...or the machine is not reaching the optimal level quick enough to stop an apnea...this timing of 1 1/2 hours to 2 hours is just about the time you would be in REM sleep...which is typically when the apneas are the worse and more frequent

Please check into that...if your settings are a wide range ask to have them set closer to your titrated pressure...typically it is about 1 to 2cms above and below the titrated pressure...in your case if the titrated pressure is 13cm...then it would be set around 11 or 12cms on the low and 14 or 15cms on the high.

Usually the reasons for this are more than what meets the eye...typically it is an issue with the therapy, not the person unable to adjust.

Just my thoughts....


Hey, clever username!!

Thanks for responding, I'll check w/my tech specialist sometime. Also, I'll check that number again, I may be thinking of a setting from way back when I 1st started this process; it's been adjusted a few times since then.
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Postby Mrs Rip Van Winkle » Thu Feb 17, 2011 12:53 pm

Are you doing better now?

Username came about due to sleeping constantly and had very long gray hair at the time :-0 Family use to call me that. I love walking in the woods on a clear crisp breezy day...Husband once found me at the edge of our woods, sitting with my back against the huge oak, sun on my shoulders...sleeping. Said my snoring was scaring the birds.
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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Postby tommyt1971 » Thu Feb 17, 2011 1:13 pm

Mrs Rip Van Winkle wrote:Are you doing better now?

Username came about due to sleeping constantly and had very long gray hair at the time :-0 Family use to call me that. I love walking in the woods on a clear crisp breezy day...Husband once found me at the edge of our woods, sitting with my back against the huge oak, sun on my shoulders...sleeping. Said my snoring was scaring the birds.


Chronic snoring runs in my family, BOTH sides, but esp my mother's family. She snores too, been trying to get her to do a sleep study for a while now. I wouldn't have known that I was suffering from apnea if she hadn't been visiting & noticed my symptoms!
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Postby janey » Fri Feb 18, 2011 11:58 pm

ripping off your mask, oh buddy, can i tell you some stories. when i first got my machice i was not only ripping off my mask but throwing it as far as i could in my sleep. i would disconnect it from the hose and wing it from me. i found my mask behind my dresser, behind the door, in my closet when the door was open. i was so frustrated that i about quit several times.
here is what i did. i found some bandage tape that was self sticking (like ACE bandages). i cut it to fit over my straps on 3 of 4 straps. wrap it several times on each strap. it's just sticky enought to keep you from easily ripping it off. i wore the chin strap on the outside of the headgear and tightly for a while.
now i can sleep on the machine no problem. i don't even need the self sticky tape.
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Postby tommyt1971 » Sat Feb 19, 2011 2:53 pm

janey wrote:ripping off your mask, oh buddy, can i tell you some stories. when i first got my machice i was not only ripping off my mask but throwing it as far as i could in my sleep. i would disconnect it from the hose and wing it from me. i found my mask behind my dresser, behind the door, in my closet when the door was open. i was so frustrated that i about quit several times.
here is what i did. i found some bandage tape that was self sticking (like ACE bandages). i cut it to fit over my straps on 3 of 4 straps. wrap it several times on each strap. it's just sticky enought to keep you from easily ripping it off. i wore the chin strap on the outside of the headgear and tightly for a while.
now i can sleep on the machine no problem. i don't even need the self sticky tape.
janey


Thanks! Got that suggestion before, I'm gonna try it out sometime soon!
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