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Reading the card in a Cpap

This area is for Sleep Apnea questions and general Sleep Apnea Discussions.


Postby jim222 » Wed Feb 24, 2010 8:16 am

Mrs Rip Van Winkle wrote:
Jim..is your health care manager a Sleep Specialist? Yes


Hi All,
I am from Australia the experience I have had over here is all threats and no advise.
It all seems to be about control
Mrs Rip Van Winkle you don’t need to post me the rules like I keep saying I am not asking how to change the pressure.
I am trying to understand the card read out so I have an under standing of what mite be going wrong if anything.
I lost 20 years of my live to apnea because doctors did not diagnose me I was told it was in my head.
So why should I turn over the rest of my live to then?
I tried asking for advice but just got silence so I tuck matters into my won Hand.
We are taught at an early age to drive cars, all I am saying is we are not incapable of learning how to use the Cpap and that we should be taught
But I did not start this post to harp on about this, I just wonted to get an under standing of the card readout.
Cheers
Jim.
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Postby CrohnieToo » Wed Feb 24, 2010 8:49 am

W/o the literature for that particular mask I have no idea whether your Leak rate is too high or not, Jim. Sorry. HOWEVER, if you check the Resmed website, probably under products, you may be able to find the Leak rate AT YOUR PRESSURE for your mask listed. Good luck!

Resmed calls it the Pressure Flow Curve and/or Vent Flow Rate (L/M).
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Re: Reading the card in a Cpap

Postby Mrs Rip Van Winkle » Thu Feb 25, 2010 12:07 am

Jim, I understand that things in Australia are done differently... though I am aware how they are done..I am not new to it and also know several apnea sufferers in Australia and NZ that are perfectly satisfied with their Sleep Dr's. If you need direction on finding proper health professionals to treat your SA, just post and most likely you will receive replies from people in your area that may give you suggestions on who to call, where to go. I thank you for withholding any further conversation on the subject(s) of this thread... for the sake of others, your cooperation is appreciated.

Thank You again...and best of luck.

Tami


jim222 wrote:Hi All,
I have a card reader so I can read the card in my Cpap and print it out for my home care manager.
So what do I have to look out for on the read out so I can adjust the pressure on the Cpap to get the best results?
Cheers
Jim.
:-?


The ASAA advocates being proactive in ones treatment by coordinating patient medical treatment with qualified and knowlegable healthcare professionals. Being proactive in ones treatment is not the same thing as self-treating or self-medicating ones medical condition. Self-treatment/medication is defined as treatment without medical care. People owe it to their health and well-being to coordinate their medical care with healthcare professionals familiar with their medical history. We do not want readers of this forum to be convinced, from comments advocating self-treatment, to ignore or forego medical consultation and treatment. Self-treatment/medication is a private, individual choice. Forum discussion promoting self-treatment and self-medication may be moderated. Your cooperation with this is greatly appreciated.
[/u]
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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here is the solution

Postby ruthven78 » Thu Mar 18, 2010 2:12 am

here goes my tangent....

This isnt like driving a car or using insulin. Insulin has a pretty easy sliding scale to follow...if blood sugar is x, take x amount of insulin...piece of cake. You cant take a read out and apply the same principle.

You dont know what is causing you to wake with ringing in your head so thus, how do you expect to fix it? You have to know a problem in order to properly come up with a solution. Changes to your CPAP pressure can cause a cascade of different reactions. Not only do you not understand PAP you also dont understand gas laws. ambient air has a lot of oxygen in it, 21% of it is oxygen. Your body does not even absorb all 21% from the air you inhale which is why mouth to mouth resuscitation is even possible. When you inhale, your body only absorbs 5% of the available oxygen and exhales the remaining 14-16%.....and that is someone with normal lungs and no obstructions.

You want my recommendation? Leave the interpretation to those in the know or go to school to learn how to do it properly. This isnt a DIY project. The changes you make to the machine can have very real consequences. The data from the machine is not going to give you the additional information you need to make a good, informed decision on if you need to make a change and how much. Data from the machine is not going to give you heart rate, oxygen saturation, or EEG readings.

My recommendation is talk to your physician and have them right an order for autotitration, have the DME set it and leave it alone. It will self-titrate fairly closely to what your body needs. You do not have the education to do this on your own, and you arent going to learn it from the internet. It may not feel comfortable at first but over time your body should get used to it.

Some additional concerns about wrong pressure settings...too high can also cause increased intrathoracic pressure which can impede venous blood return to your heart, impeded venous return can cause increased intracranial pressure...and also increased blood pressure...and what bad things can hypertension cause? Im just trying to impress upon you that "change A does not always give result B"....you can also cause gastric distention...think of your worse case of gas x100 and being unable to burp. Someone mentioned blebs...do you know what a bleb is? blebs can lead to a spontaneous pneumothorax...ie collapsed lung....I've seen it happen right in front of my own eyes...patient with bad blebs coughs real hard...after a little bit their lips turned blue, they also become hardly responsive, code team arrives, and luckily, for that patient, they lived....and this was in a hospital! (that bleb wasnt from PAP).

I use an APAP (m-series) so I'm able to talk from both sides of the mask. I dont know how they do it in Oz but no good doctor in the US would advise their patients to change their settings themselves, not because of control or cash flow, because of the harm it can cause (and risks of being sued). being comfortable enough for you to sleep 4-7 hours may be too little pressure..."being able to sleep" doesnt mean you are getting enough of the right kind of sleep, only an EEG would be able to determine your sleep efficiency at a given pressure.

Really you should drop the "IM ENTITLED!" attitude and leave it to those in the know. Im all for someone being in charge of their healthcare but not for recklessness because they think they can do it better themselves

Sorry Mrs Rip, if you dont want any further posts from others I would recommend locking the thread
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Postby jim222 » Thu Mar 18, 2010 8:40 am

=D> =D> =D> =D> =D> =D>
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Postby SleepyToo » Thu Mar 18, 2010 2:47 pm

Excellent message, ruthven78. Your post alone should be stickied!
SleepyToo
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Diagnosed September 2009, Respironics System One w/ C-flex and humidifier
Aloha nasal pillows
Not a medical professional, just a patient with severe OSA (31) who has done a lot of reading.
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Postby CrohnieToo » Thu Mar 18, 2010 3:35 pm

Blebs? Let me tell you about blebs? In this case, blebs on the lungs. Blebs on the lungs are like small blisters. If one of them "pops", your lung deflates and the air from the lung is expelled into the chest cavity. The chest cavity doesn't like that. It objects. Its PAINFUL to breathe and you can't breathe very well (I'm assuming just one lung has had a bleb pop). Did I say it is P-A-I-N-F-U-L ??? Is is PAINFUL!!

So you are rushed off to ER gasping for breath and and fighting the pain. There they can't sedate you or even give a local due to your depressed breathing due to the collapsed lung. So sans any analgesia they small a small incision between two ribs under your arm and insert a tube, like acquarium tubing. Just about that same size. And then they hook the tubing to a pump and begin removing the air from your chest cavity allowing the lung to re=inflate if the bleb begins to heal itself and not leak too much. You are kept hospitalized until your lung is fully re-inflated and working properly w/o any leaks.

Now - can you imagine if BOTH lungs were to have a bleb or blebs burst and collapse at the same time???

And, it does NOT take a hard cough or coughing spree, etc. to cause a bleb to burst. Something as easy and effort free as sitting up from laying down can cause a bleb to pop. That is what happened to me back in mid 1980. Felt fine when I woke up in the morning, sat up in bed and someone took a battle axe and tried to split my chest in two. And then kept ripping his broadsword up and down my sternum each time I gasped for air.
ResScan 3.10 - Resmed S8 ResLink & oximeter
ConTec CMS-50D+ oximeter - Philips EverFlo 5L Oxygen Concentrator
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