Hi all.  My 5.5 year old daughter has sleep breathing issues since she was a young baby with no clear apneas.  She recently had another sleep study done while she was inpatient for VEEG. (ruling out nocturnal seizures)  She has nocturnal myoclonus (all muscles and full body twitches).  She only has one central apnea and one hypopnea.  The report mentions multiple post arousal centrals.  She had 104 arousals associated with snore/snort with an arousal index of 15.8.  Her oxygen levels were normal but her end tidal CO2 levels were CLEARLY abnormal!  SHe spent 72% of sleep time (total 6.5 hours) > 45 mmHG..... Spent 18.5% of sleep time > 50 mmHG  .... and had PEAK CO2 > 60 mmHG in all sleep stages and wake stages.  Her highest reading was 62.4 mmHG recored while AWAKE.

Pulmonary thinks this is neurological...Neurology says they do not know what to do.  I THINK IT IS OBSTRUCTIVE HYPOVENTILATION SYNDROME which children can have with normal saturation.  I was under the understanding that elevated CO2 levels should be stabilized with CPAP.  I am getting nowhere with her docs because they think there is a brain componet (she had a normal MRI and MRS).....

DO you think they are making too big of a deal out of this?  SHould I push for cpap?  Any input would be great! Thanks!