jestor wrote:
Hello all. I have posted here before and never gotten a response so I'm hoping this time will be different. I'm curious what the average high and low PAP settings are for a 7yo with what is being called extremely severe sleep apnea? I'm also wondering, it seems like he gets "used" to the PAP settings and has to have them increased all the time? Every time they go up, he is fine for a few days and then starts having apnea again with the higher seetings. I swear I think he's going to end up with a trach or something. Don't muscles that aren't used anymore, like the ones being held open for him to breath at night buy the PAP, going to not work on their own at all over time?? 
Thanks in advance for responding !! Carrie
Hi Carrie,
PAP settings are very much a personal thing. PAP settings are not linked to the severity of the apnoea, but represent the pressure required to clear the apnoea events. In a lot of cases the pressure setting is set at 95% of the maximium titration figure, to allow for a little comfort.
EG....someone with mild apnoea may need a pressure setting of 14/15, while someone with very severe apnoea might only need a setting of 6.............or vice versa.
Did your 7 Y/O have a sleep study and titration study ? or are the medics playing around with the settings ?
I have no idea of the requirements for a 7 Y/O, but I think you need some answers from the sleep doctor.
Daniel
_________________
The untreated Sleep Apnoea sufferer died quietly in his sleep.......
Unlike his three passengers who died screaming !!!!!!
(Anon)
