Central Apnea: Anyone on Diamox (Acetazolamide)?

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Central Apnea: Anyone on Diamox (Acetazolamide)?

Postby jtbeach78 » Wed Oct 10, 2007 10:13 pm

Hello. I found out today that I have a diagnosis of central apnea. This was discovered on my second sleep study. I am a 28 year old male and have probably had this for a long time. This is a lot for me to wrap my head around. The surgeon basically told me that my most effective option was BiPap. Well, I have a BiPap and can't stand it. I have never been able to tolerate it for more than 3 hours. What's worse is that I also have insomnia (which I take .25 mg Klonopin and 75 mg trazodone). For me to even tolerate the machine this long, I have to increase my meds to increase sedation.

Basically, I am just not at the point where I want to believe that BiPap (or CPap) is my only option. I am not ready to envision having to use a machine for the rest of my life. I've spent hours pouring over the internet looking at other alternatives and came across Diamox, a medication used off label for Central Sleep Apnea.

I want to exhaust ALL measures before going to a machine. Please share any experiences you've had with this medication (Diamox). Honestly, I would much rather take a medication if at all possible before having to face using the machine again. Thank you and PLEASE write back with your experiences.
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central apnea

Postby tnhosehead » Sun Oct 14, 2007 9:08 pm

JTbeach78, I think the substances you referred to are in the benzodiazapine family. They may further suppress your breathing functions. There is a machine specifically for central and mixed apneas. It is a VPAP adapt SV made by ResMed. Suggest you find a sleep lab that has one and get tested on it. If your doctor does not know about the VPAP get a new doctor. The machine may not be fun but it beats the alternative. Good luck.
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Postby Guest » Thu Oct 18, 2007 10:31 am

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Postby Guest » Thu Oct 18, 2007 10:56 am

I have mixed apnea. I am more afraid of central. Because it is central apnea that keeps my airway blocked by not signal to my throat to tighten and open for exhalation, or does not send the signal to breathe. I don't have obstrution with air going in only coming out. So why is this trated the same as normal apnea? How did I get central apnea? My doctor is perplexed when I put him on the spot about central apnea. He sent me home with cpap. I hate cpap. I have a hard time using it. I feel like he just washed his hands of me and sent me home with a death sentence. Why won't he consider other options? I have a sleep study next week. I want to ask about the RX acetazolimide and the pillar procedure. I am afraid to drink a glass of wine or take any meds that will slow my breathing while I sleep. Can anyone tell me about their central apnea symptoms and their treatmen?
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