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Drooling inside Full Face Mask led to FUNGAL INFECTION

This area is for CPAP Mask and CPAP Machine Related Questions used in the treatment of Sleep Apnea.


Postby tillymarigold » Sun Apr 15, 2007 1:46 pm

RichCMH wrote:Tilly...
My point is if you want to KILL bacteria and fungus, hot water over 160F should be used.


I know that. My point is that my cleaning instructions specifically said not to use hot water.
Machine: Puritan-Bennett GoodKnight 420E (Auto)
Mask: OptiLife/Hybrid
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Postby RosemaryBee » Sun Apr 15, 2007 1:52 pm

christine wrote:I was wondering if it was gluten sensitivity, since you mentioned being able to use other vinegars and was going to mention Heinz is clearly gluten free, as are other distilled white vinegars. At least in the US, wheat is rarely if ever used to make distilled vinegar; I wish I could say the same for corn, which is what it is made from, along with being in just about everything from foods, to Kleenex and medications. Even worse is they can use corn starch to dust food conveyor belts or insides of packaging, but its not considered an ingredient. Adhesives are tough too with corn and there is only one type of medical tape I can use that is made in Germany- surprised my dermatologist when I had such bad welts I still have scars from the patch testing he did with several of the most hypoallergenic medical tapes. I was diagnosed with a corn allergy 10 years ago, but only recently have I went to as close to zero tolerance as possible because I kept wanting to believe the doctors who said I couldn't react to corn derivatives as they don't have corn protein left (if made perfectly...but they tend to forget that). I tried using some of left over distilled white vinegar for cleaning the toilet a while back, thinking I wouldn't have much contact so it would be okay, but it was just as bad as when I use commercial cleaners, affecting my breathing and sending me running from the bathroom until someone else could finish cleaning. Its amazing to me to actually be able to clean my bathroom now from start to finish for the first time in my life, using homemade cleaners from basic ingredients including Apple Cider Vinegar or White Wine Vinegar.

I've come across a lot of the stuff on Celiac disease/Gluten sensitivity and the vinegar debate and it looks like most of the experts are saying white distilled vinegar, at least in the US, is not an issue since it is made from corn. What I wonder about is something I've come across recently is powdered vinegar, including Powdered Apple Cider Vinegar, which may be what some people are reacting to in processed foods. Check out THIS SITE that makes powdered vinegars and 'flavorings'. They use corn based maltodextrin for their powdered vinegars, but I'm pretty sure I remember seeing some other brands powdered vinegars with wheat starches. Also, check out their powdered sweeteners like honey powder and molasses powder...its pretty much luck of the draw if it uses corn or wheat carrier.
The corn allergy sounds difficult. I'm sorry to hear. I've just discovered the GS and it sure makes life difficult. Even with things like how to clean a CPAP. Corn is even more prevalent than wheat.
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Postby christine » Sun Apr 15, 2007 4:02 pm

RosemaryBee wrote:The corn allergy sounds difficult. I'm sorry to hear. I've just discovered the GS and it sure makes life difficult. Even with things like how to clean a CPAP. Corn is even more prevalent than wheat.


Find yourself a good liquid Castille soap- I believe Dr Bronner's is GF, or another brand. Get the unscented kind for your CPAP supplies- it is the best type of soap you can use as its real soap, not a detergent+soap, no moisturizing additives, just 100% liquid soap. It will remove oil build up better then anything else I tried and do without leaving any residue (I also use it to wash my makeup brushes). Use whatever vinegar you need to for soaking and for cleaning the HH. Another thing you can do in a pinch, is add a cap full of 3% hydrogen peroxide to whatever water is left in your HH, swish it around good and dump out. It also helps kill off anything that might take up residence in the HH, especially if you don't have access to vinegar or time to let it air out to get rid of the vinegar odor.

I'll have to PM you the recipe for everyday household cleaner I use when I get a chance...not only is it safer for everyone in the household, it works better then any other cleaner we've ever used.
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Postby St. Remy » Sun Apr 15, 2007 5:06 pm

Could you please share this with all of us? The recipe? Would appreciate it!! Thanks St. Remy
St. Remy
Night/Day Sleep Study Gtwn.Univ.
29 apneas/hour; no REM; no deep.
Oxygen desat 90-84%
14 cm H2O pressure
Failed CPAP use
TAT oral appliance 8/13/07
St. Remy
 
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Joined: Tue Nov 07, 2006 11:36 am
Location: Washington, D C

Postby christine » Sun Apr 15, 2007 8:02 pm

St. Remy wrote:Could you please share this with all of us? The recipe? Would appreciate it!! Thanks St. Remy


Here's the recipe, I put my notes in italics

Natural Cleaner Recipe
Fill your spray bottle almost full with HOT water, then add: 12-16 oz spray bottle
    * 1 teaspoon borax sold in laundry detergent isle, usually near bleach, 20 Mule Team Borax is the most common brand
    * 1 teaspoon Washing Soda * NOT BAKING SODA *, though its made by Arm&Hammer & packaged in a similar yellow box found near Borax, but not as widely carried (Kroger & Meijer both have it)
    * 1-2 tablespoon liquid Castile soap (Dr. Bronners) or liquid dish soap
    * 1/2 cup vinegar (kills mold/mildew) distilled white preferred, I have to use Apple Cider or White Wine due to allergies

Can add a couple drops of essential oils for scent & other properties. I like lavender for my bathroom cleaner and either/or orange or lemon essential oil for kitchen; tea tree oil is good too, as it has disinfecting qualities, but not everyone like the smell

Shake well before using.

Note: If you put the other ingredients in before the water it will foam up a lot when you add the water.

Washing Soda - (sodium carbonate) Cuts grease and disinfects. It will also increase the cleaning power of soap.
Borax - (sodium borate) It deodorizes, removes stains and boosts the cleaning power of soap. It also prevents mold and odors. Great alternative for those who do not want to use bleach.


I can't believe how much my refrigerator is still sparkling after using it a month ago- it didn't sparkle that much when it was new years ago- as does the bath tub every time I use it. So many cleaners made me sick because of my allergies, so its weird to actually look forward to cleaning...too bad I have so many years worth to catch up on :oops: Its amazing what all you can do with borax, washing soda, vinegar, a good liquid soap and a good bar soap as far as cleaning and laundry, instead of all those bottles of cleaners and laundry deterent.
christine
 
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Postby lilderrac » Tue Apr 17, 2007 4:11 pm

Just wanted to clarify. The vinegar and water solution soak is NOT to replace washing in soap and warm water. You continue to wash with mild soap and warm water daily (I use a baby wash/shampoo) and once a week after washing THEN the vinegar soak for disinfectant (Honestly, I only wash mask daily and I usually go about 3-4 weeks between vinegar soaks which is when I also add the cleaning of my hose :shock: )
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Location: Minnesota

Redness Inflammation in Corners of MOUTH

Postby St. Remy » Tue Apr 17, 2007 4:24 pm

I just returned from the dermotologist and found that there is a NAME for this
stuff in the corners of my mouth and that it is CAUSED BY THE CPAP.

Anyone who has any of the above symptoms -inflammation, redness,
cuts, or it looking kind of "chewed up" in the corners of your mouth,
it is a disorder caused by the water from the CPAP along with the
saliva, if you are a mouth breather (like me).

It is called PERLECHE. I googled it and there were photos of what
looked exactly l i ke my face there. It is a combination of staph or
strep along with yeast infections. There is a treatment called
PROTOPIC. I am going on it in a week or so and will report back
if anyone wants to know.

The dermo said she sees it all the time in people who use CPAPs.
UGH!!!!!!!! #-o
St. Remy
Night/Day Sleep Study Gtwn.Univ.
29 apneas/hour; no REM; no deep.
Oxygen desat 90-84%
14 cm H2O pressure
Failed CPAP use
TAT oral appliance 8/13/07
St. Remy
 
Posts: 85
Joined: Tue Nov 07, 2006 11:36 am
Location: Washington, D C

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