Hi everyone,
First I'd like to say WOW this is a cool site for me... I hope it'll help my aloneness I feel in regaurds to my son.

I have a 5.5 year old son named Aidan.  He has had central apena since birth.  He spent the first 4 years of his life on oxygen to take care of the desats when he would pause.  About 2 years ago he had a sleep study (his 5th at teh time) and it said he had no major pauses and he was fine. (though I told them it wasn;'t a normal nigth sleeping for him) OK... not sure I agreed with that... but... we kept his oxygen around (an on him) for a bit longer, then gave that up.  I still hear him stop breathing often... though not as long at a time (10-15 seconds now)
Well his school year last year was ok... missed an awful lot of days from his asthma and getting sick... but not bad.  this year though he has had a hard time... always frustrated, tired (still takes a 3-4 hour nap almost everyday) anxious, distracted... almost autistic... talked to some friends and decided maybe he wasn't sleeping right (in bed for 10-11 hours a night... naps 3 hours)  
Doc suggested a nother sleep study.  We got in (really fast...wow) and had it... for the most part I think it wasn't a good study, he didnt' sleep normal... but for about 2 hours it was a GREAT study (meaning he showed them what he does every night)  he paused, he grinded his teeth, he was restless, fidgity and even a tad of the snoring he will do (usually when his asthma is acting up)  so it wasn't a complete waste.  We got the results back like 5 days later (wow normally took a lot longer)
Doc said no obstructive apnea (which we knew from teh MRI he ahd done about 2 yrs ago)  but some pauses and desats (though she didn't say how many or how low)  AND... now he has "elevated CO2 levels... I have NO idea what that means?!?!?!?!!?    His pediatrician had me set up an appointment with a sleep disorders doc at childrens hospital... that is this comming wednesday...  but till then... I get to worry...sigh

Anyway... sorry for rambeling...  gonna go read more of the posts here.
Thanks for reading  :o)

hello and welcome to you
i can say wow to u now as well now i have read ur little boys story

did the oxygen help aiden with his central apnoeas?

matthew is 28 months now, has had apnoeas first notiched at 6 months old, was dx at 14 months with severe periodic breathing and apnoeas, which they thought was linked to hsi reflux he had undiagnosed

matthews 1st sleep study showed 285 apnoeas, all central, lowest 02 level was 82% during a 40 minute period of periodic breathing

he has had alot of tests done, EEG, MRI,EMG, CT, ultrasound all with no answers

they know he has a very immature respiraotory drive but do not know y

so we now in the postion of never knowing y matthew has these, hes had 4 sleep studies in the last year, all showing, severe periodic breathing, central apnoea, central hypoventialtion and hypnoneas.

has ur little boy been tested for a genetic condition for a breathign disorder

matthew was tested for congential central hypoventilation syndrome, we got the results in may which was negative, but have been told he could still have the mutated gene but mite meed further testsing

mite be a option now if u r at a loose end with fidnig out what is wrong with ur son

good luck
love nat

I can't begin to tell you all the tests he has had... he did have some genetic testing done, can't remember what all for... fragile x was one thing, had CP testing done, swallow studies... sooooooooo much.  I will say that his "pauses" (which ever kind they are) are less than when he was little, though they seem more than the last sleep study.


I don't get any of the terms... peridoic breathing vrs central apnea vrs hypopnea...sigh  I am gonna look around this site... hoping to find a dicitionary...sigh

I did go down and get a copy of the results of his last study today... so I am trying to firhure out what it all means...
sigh