Guest wrote:
Still don't get it.
It just seems to me that the "diagnose then treat" procedure seems to be off somewhere in sleep apnea. Sure sleep apnea is first diagnosed because it is observed and noted on a polysomnogram. But someone on this forum reminded me that sleep apnea is a condition--not a disease. So why does the diagnosis process stop there so often?
With all of what I have read, the low probability that weight loss will actually reduce or eliminate the apnea, then why is it so often what doctors use to explain the apnea?
There is only one reason I can think of. I have very little longevity in this having only been diagnosed with mild apnea a few weeks ago but have done enough research to make at least a guess. I think that the origin of sleep apnea is not usually determined because there is a highly successful treatment for it. The cpap. This works so well that what difference does it make what the cause is?
Well, I suppose a person should just assume sleep apnea as their lot in life and just relish in the fact that there is something they can do about it. But my struggle will always be, that
1) I weigh the same as I have for the past five years and five years ago I didn't have apnea.
2) I have apnea now.
I want to know why.
Sleep Apnoea has been around for some time. Charles Dicken's character Joe the Fat Boy was the arch type sufferer and his ability to fall asleep at any time marked him out. Often (in the earlier part of last century) referred to as Pickwickian Syndrome a tracheotomy was seen as the only cure. In truth it is 100% successful as it is a surgical bypass of the airway.
The UPPP then came along and is still in vogue today, however success rates are not good.
True, Sleep Apnoea is a condition or disorder (a respiratory sleep disorder), with the respiratory/pulmonary medical community effectively claiming ownership...........in fact they frown somewhat on pure sleep specialists (neurologists, psychiatrists etc) being involved. They usually see ENTs as 'jobbers' who carry out surgical instruction and who really shouldn't be involved either. Cardiologists are now starting to get in on the act also, obviously because of the cardiac side effects...................or God forbid, the lure of the filthy dollar
You want to know why.................don't we all

, but in spite of all these different medical disciplines getting involved nobody seems to be bothered in finding out exactly what causes it. The 'hereitary' question seems to rear its head quite frequently now.............one of the first questions being asked by medics.......'any of your family been diagnosed'..........or a close look at your facial skeletal structure to see if you have a receeding jawline, or small airway, deviated septum, neck size etc etc.
Pre CPAP (c.1981/82 when first mentioned in The Lancet), the trusty ENT trimmed out the airway and anything else that wasn't nailed down in the upper airway

and it wasn't really until into the 1990's (possibly mid 90's) that the importance of CPAP, particularly compliance issues came to the fore.................prior to this the equipment was pretty primitive, unbelieveably horrible masks, noisy machines and humidification was a whole new concept. Full Face masks didn't exist, and as for nasal pillows..............pillows for your nose ?
In their own way I suppose, doctors explain Sleep Apnoea...............patient presented with this etc etc...........bottom line OSA, prescribe CPAP and bugger off home...................let some DME company deal with you, while I make more money with the next one................maybe a little over simplistic, but you get the drift. There is no money in research for the medics...........could take years............whereas they could be working away diagnosing it. In the meantime the big companies (you know the logos on your cpap equipment)...........develop smaller (yes) and quieter machines with every conceivable type of mask and interface to keep you, the patient compliant (maybe hooked is another word

) with cpap. While mask life has been extended to c.6 months.........the cost of them has rocketed. New filters, hoses, cflex, EPR etc etc. Special ones for flying, battery packs for camping.............the industry is certainly going. Both Respironics and ResMed shares are constantly marked as a 'buy'.............we all know why............growing industry...........more people using cpap.
Maybe its a knock on from air polution, global warming, hole in the ozone layer. More and more people are suffering from respiratory illness than ever before..............OSA is a respiratory problem.
Sorry for rattling on, but unfortunately if you start looking too deeply into this, it can get a little depressing. It drove me potty for a number of years after being diagnosed in 1993....................I gave up asking questions and accepted that I have a problem, it's not contagious, can't be cured but can be treated and that I will continue to contribute to a rising share price for ResMed shareholders until I die................or change machines

I also watch my two children to see if they start to show signs of OSA.
I think, for the moment, accept it, treat it and move on. Unfortunately, as long as cpap continues to deliver results, nobody is going to bother with 'real' research into the condition.
Best of luck.
_________________
The untreated Sleep Apnoea sufferer died quietly in his sleep.......
Unlike his three passengers who died screaming !!!!!!
(Anon)