Hi - my 11 yo daughter was diagnosised with sleep apnea last fall.  She has had 3 sleep studies, her t &a taken care of, started CPAP a couple of months ago and is currently undergoing a 30 day sleep study with VPAP at home.  With the CPAP she barely makes it past 4 hours of sleep before taking it off.   The CPAP seems to make sleep even more difficult and it freaks me out because it seems like she has more sleep episodes with the CPAP.  They saw that during her last study hence the VPAP.   After the last study with CPAP the doc saw some issues with her heart that he wants checked out.  The neuropsychologist wants her to have a 24 hour EEG to rule out possible seizure disorder.  The doctor, neuropsychologist, technicians, medical supply company,  it hasn't been that long, but I'm overwhelmed at the amount of information.  I've checked out her doc and he is a certified sleep doc, but I want better answers, better results, it seems that they are all groping around in the dark.  Is this normal?

Where/who is the sleep apnea meca?  

Who has worked the most with kids?

Wanting to know that we are not alone and are we on the right track.

 Thank you for all responses.

Hi SnakeGirl,

We moderators have been very remiss in checking the pediatric section and I apologize for that.  One of the sleep apnea mecas is at Stanford.  You can also look for accredited sleep docs in your area by checking the link to doctors at the beginning of this section.

Obstructive sleep apnea can cause heart arrythmias, it isn't that uncommon.  There are other interfaces that your daughter might find more comfortable such as nasal pillows that a little plugs which fit into the nose.

Vicki


_________________
That which does not kill you makes you stronger-Friedrich Nietzsche
Friedrich must of had apnea.