He had the T/A done and it all went for the worst with us.  For a short in and out Procedure it turned out to be a long week in the ICU unit.  Now, the worst thing I think it is back.....Now I am stuck with the WHAT TO DO SYNDROME???

He is back to the tiredness, the bed wetting the falling asleep right after school etc.  It breaks my heart to hear and see this after the first T/A that was supposed to go so well and it did not.

My son stopped breathing on them when the procedure was being done, so they had to have a team of 30 Dr's come into hold him down and insert a breathing tube for my son!  For this He was in ICU for a week.  We were told that it may happen that with the Severe Sleep apnea he has his chance's were high in his throat closing...but we did not think we would be that one that the CHANCE had to be with but we were...

Now as I sit here today and hear him sleeping again the way he used too...I wonder what to do?

He did fine until now....I notice the same pattern again starting.
I am concerned....

Glenda,

How old is your son?  CPAP therapy is noninvasive and efficient if he could use it.  Has that been suggested?  We have ideas to help you make it more fun for him and not tramatizing.  Pediatric diabetic patients learn they have to get shots and poke their fingers all the time and this is certainly not as physically painful.

Most patients are unconscious when they are intubated (a breathing tube put in).  Are you sure your son  was conscious when they intubated him?

Vicki


_________________
That which does not kill you makes you stronger-Friedrich Nietzsche
Friedrich must of had apnea.

Hi,

We sound like we are in the same boat!

My 3 year old was diagnosed with severe sleep apnea and had his T&As removed when he was 1 1/2. About 6 months later we noticed that all his symptoms were back and could hear him obstructing.  After a few months of insisting to the hospital that there was another problem they took a scan and discovered that his T&A's had almost fully grown back! Rare- but it had to happen to him!!
Drs decided that they could not operate again as they had problems controlling bleeding the first time and he was referred for CPAP. It took a loooooonnnng time (month in hospital) to get him to wear the mask and adjust air pressures but it is working great now, which is an achievement for a 3 year old with learning delay.
Go back to the Drs, they can grow back but there is more they can do. Good luck.

Julie