Thanks for your help. When I first found this forum I was more than a little overwhelmed because I didn't think the study would come back showing anything. I've hesitated to do a sleep study w/him before because he hasn't had the obvious snoring/apnea issues since his tonsils and adenoids were removed at 22 months. Since then, the report has been making more sense. I just didn't understand the numbers or terms and didn't know how to interpret them. It's also been hard to find good research on central apnea.
My son is 4. He's considered medically complex already and has multiple diagnosis (Ehlers Danlos syndrome, Sotos syndrome, Eosinophilic Esohpagitis, GERD, motility issues, aspiration, multiple allergies, etc). This was his first sleep study. He is now scheduled to have another one with the cpap sometime in May. I guess the cpap is more for the obstructive apneas and other events then?? Fortunately, he's already being followed by a neuro who's worked with his pulmonologist in the past. They should be a good team for treating the central apnea.
Does central apnea ever go away? Is it possible that he'll need something like a cpap long term? I feel so bad for not pushing harder for a sleep study earlier...it just didn't seem like it was necessary especially since he's already had a dozen procedures and multiple tests. He's more afraid of doctors now and I didn't want him to have to go through yet something else that might not be needed. It took me 10 minutes to get him out of the car once we got to the hospital for the study. He was so scared that he kept locking the car door and I nearly got my fingers smashed trying to get it opened. Little stinker.
I'm not looking for a diagnosis here. That's what our pulmo is for. I just didn't understand what all of these numbers meant. Is 55 centrals scary? 287 respiratory events...is that fairly common? How does he compare to other kiddos? Why didn't I catch this sooner? I'm thinking that a bipap may be a better choice for him than a cpap...any thoughts on that? I know next to nothing about all of this but from what I've read he wouldn't do well with an asv because he doesn't have a good breathing pattern to copy. ??
Thanks for any and all input on this. When I get a chance I'll go back through some of the old posts and try to find answers there as well. If you have any advice or know of any questions that I should be asking the doctor please let me know. Thanks!!!