Hi all, so glad I found this forum. To give you a little background on us...My name is Heather . I am a stay at home mom to two kids-Hannah is eight andLogan is four. I am new to this forum but have some experince with apnea-my husband has it and has been using CPAP for about five years.Hannah was diagnosed recently with sleep apnea and that is what brings me here.   Hannah has down syndrome. She had open heart surgery when she was seven weeks old to repair AV canal, VSD and mitro valve(four holes and her valve)  She had T&A surgery at four years old. She also had sinus surgery last year. She had her first slepp study in December and now we are at the point where we have agreed she needs CPAP. WE have the face mask now at home trying to get her used to it and a sleep study scheduled for April 9th to figure out her air pressure settings. I am determined to make this work but know it is going to be a battle. I just wanted to introduce myself and say I am probably going to be a regular around here. I am looking forward to learning form all of you!

Hi Heather and Hannah,

I'm Susanne and my mimi-hosehead is Christina (7), I also have Jasmine (13) and Tim (11).  I would say that I am an at home mom, but recently I have become an at the dr mom.  Chris has RLS, PLMD, OSA and now asthma (she has already had a rare form of cancer) and the most anoying thing to the medical community......alllergies to adhesives.....no likey sticky.

Chris had been on cpap for 1 month so far and is doing well, but her machine has been set wrong for the last week so it has been no good (the DME reset the ramp, but accidently lowered her pressure).  Her pressure is at 8 and she will get a 4th sleep study sometime in the future to get her titrated setting.

Welcome to the Apnea Kid club......it's nice to meet you.  If you ever want to chat, just feel free....

Susanne

welcome