tpendleton wrote:What kind of Drs. should we be seeing, we are currently seeing only our Pedi and ENT.
How do we address the daytime affects of this disorder (impulse control issues etc.) while we are trying to resolve the sleep issue? Hopefully some of you have some insight on this b/c I have not found anything of value on the web and my ENT only says it should resolve when we get the sleep issue resolved.
Hi there, I'm not up with pediatric sleep medicine, but where adults are concerned, people usually see an accredited sleep medicine doctor (traditionally these have come from the pulmonology field, sometimes known as respiratory or thoracic medicine). It may be that now the surgery has been tried, you may be able to focus on sleep medicine and the pediatrician and finish up with the ENT.
I can understand you feeling that the ENT's reassurances aren't much help in the day to day management of your daughter's behaviour. It could be 2-3 months away, which is a loooong time. The pediatrician may have particular skills in this area, or may refer you to a child psychologist or therapist. I think there is alot of value in meeting with other parents and learning the strategies they use with their kids who have similar issues. Alot of it is about providing structure and planning ahead, and keeping her safe. If you have to keep her inside with the doors and windows locked to stop her running out onto the road for a few months then so be it. Some parents of children with ongoing impulse control issues have to do this for 10 or 15 years. You may need to bring in people to supervise her for a few hours a week so the rest of the family gets a break. If she is struggling with being at a childcare centre, bring her home. A low stimuli environment is better. Don't feel you have to go to restaurants and supermarkets with her if it is going to make you tear your hair out. Keep in mind that there is age-appropriate behaviour, then there are the effects of her sleep disorder. If you find value in reading about the techniques used for kids with ADHD then that is great - it doesn't mean she has ADHD, just that her (temporary) behaviours are similar and may be manageable in much the same way. I hope that helps and that her sleep problems get resolved asap.