I have a special needs child w/ multiple medical problems. For the past several months he has been waking up w/ his face and neck and sometimes eyes swollen. To make a very long story short, well i will try to. I have taken my son to the doctor to have blood work done to see if we could figure out what was causing this. Blood work was in the norm for him. Tonsils and adenoids r fine. Taken him to cardio for a echo and all looks good from what they can c. Taken him to ENT and they suggested a C1 blood test. The results were normal so he does not have edema. CXR was of the norm. Took him to sleep med/ pulmonary spec. and have set up a sleep study. This will be interesting if he may need the CPAP. When the tech put it on him so he could get used to it well he fussed and took it off. She sent it home w/ me to try to get him used to it. RIGHT.... We also increased his thyroid med even though his level was in the norm as well. I have noticed that the swelling isn't as bad. Still snores and still swells when he lays down. The doctor said it was possible he could have a blockage of the superior vena cava. We r trying to avoid a MRI or Heart Cath as much as possible. My son has coded during a cath and also has stopped breathing for another scan for his back. My son would have to be put to sleep for a MRI because of his disability. The risk is very high. My question to whom ever can help. Has anyone w/ sleep apnea experienced facial swelling when laying down and or waking up w/ a swollen face?

