thanks a bunch. That enlightens me a bit. I'm so unconsciously listening to all the sounds you've described, that I'm amazed we didn't catch this sooner.
Great idea on the hospital issues. If he ever has to go again, I need to be armed with this info.
Months? Yikes. I guess it's nothing compared to the alternative.
RamblinLamb wrote:Hey Kiwi,
I went to my cpap provider and replaced Harold! I now have a ResMed EPR Elite II and I replaced my comfort gel full face mask with a comfort gel nasal mask. The first night I slept until 6am with it and that is 2 hours longer than my one night record of 4am. Most night previously were about 1am on average.
My cpap tech thinks the water that is accumulating in my mask isn't so much drool (yucky I know but I can't prevent that....) as condensation. So I turned off the humidifier and that left me with a sore throat. So now I'll ramp it up one notch at a time each night to find the sweet spot. The nasal mask is MUCH better! More comfortable so I am more prone to wear it for the long haul.
This new CAP from ResMed is nearly silent and much smaller than the beast that was Harold the Respironics device.
NancyL wrote:My husband was finally diagnosed with sleep apnea, severe sleep apnea. He is aroused over 60 times an hour. He's been sick and lethargic for the past 3 years and could sleep 14 hours and never ever feel refreshed. One night at the sleep center with the CPAP and I saw my old husband again. WOW - what a difference. But he said he didn't really sleep well due to the noisy room next door, yet he felt GREAT all day and rocked on an interview. Some of you have said it takes a long time to adjust? How long? What can I expect? How will it affect me?
I gotta tell you all, I"m kind of jealous of his excitement. I've lived with a cranky, tired, and lethargic man for 3 years. He had surgery 18 months ago for something else and has yet to spring back to life. This should help him enormously. He's had some other job challenges, and has just landed a new and exciting job. But the job will demand far more time and intensity. He won't be able to skate at all.
I'm so relieved. I wish there was a way to go back to all our past doctors and kick them where it counts. Over and over, we'd tell them he was way too tired for someone his age. We'd tell them he was way too tired after sleeping 10 - 14 hours. He was ALWAY tired. We'd tell them he had no energy and if he did exert himself he was even worse the next day. Most of the past docs just wanted to prescribe anti anxiety or anti depressant drugs. What further amazes me is that a nurse friend of mine said that the docs don't like to recommend the study because most people won't wear the CPAP anyway. WTF? That just seems ridiculous. Is it true?
We are totally grateful to the Virginia Mason Clinic here in our town. On the first visit, the doctor HEARD us complain about how tired he was and suggested a sleep study. We are so grateful. This leads to the question of why the other doctors never even considered it. He'd been seen by 5 MD's, a 2 surgeons. The poor guy has been through the wringer.
Anyway, I"m most grateful to know you guys are here. AS I listen to my husband yakking with excitement to all his work friends, I'm feeling like I need support for all I've been through to just get him this far. I'm tired too. You know?
Any advice is welcomed.
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