Thanks for the response Uncle Bill. I do appreciate it.
This condition is so ungodly painful. Its difficult but I can sorta deal with the whole thing of being so dry during the night though this does affect my sleep. It gets so painful that I wake up and struggle to go back to sleep. The pain is so deep in my throat...its not like have "just a sore throat"..........oh heIIIIIIIIIII no its way beyond that.
Ive mentioned before somewhere that accompanying this is an incredibly sore tongue. Its not thrush....there is no white/yellow in my mouth or on my tongue. The surface of my tongue hurts ALL the time....eating, drinking anything hot or cold. ANY type of food will irritate it, soups, croutons, ice creams, salads, eggs, potatoes, bread, toast, meat, vegies etc. Ive actually been losing weight because there is so much I either cant or wont eat now because of the pain. My tongue is almost always bright red..not flesh colored or even pink. I talk with a lisp from time to time and tend to hold saliva in my mouth to kind of coat my tongue because it hurts so bad. Other times I tend so kinda spit when I talk for the same reason. And still other times I will repeatedly bite the tip of my tongue because it seems "in the way"......as if it's swollen or something.
I know it may have nothing to do with my diagnosis of SDB / UARS / SA....I know it may not have anything to do with the BiPap / O2 / Cold humidifer (which I add distilled ice water or ice cubes to). BUT....the sore mouth tongue throat dry thing ALL started just after I started treatment....right along with the swelling in my legs and feet.
I see a wonderful dream team of doctors all with their own specialty so it's not like Im guessing at this stuff or not being treated. Im just not getting good answers on this and it's puzzling at the least and extremely painful to boot.
I appreciate any and all responses
~Instead of waiting for your storm to pass why not learn to dance in the rain?
PR Pro One BiPAP w/Auto bi-flex (13/8)
O2 w/cold air humidifer
Mirage Quattro full face mask (sm)
Phillips Ever Flo-Q Ultra Quiet Stationary O2 Concentrator (2LPM)