lms224 wrote:MY two year old has had two episodes of seizure activity recently...that I know of. Both times were upon waking. I haven't had him tested yet for s.a. but would almost bet he has it. It seems coincidental that both siezures were in bed.
I`m so glad I found you.
I have many questions. First of all, what are absence seizures? They are spells of "day dreaming". You will typically space out for several seconds and pick up where you left off not realizing any time has passed. Sometimes they are accompanied by eye twitches or shaky hands and feet.
Are they seizures during sleep or awake? They happen both asleep and awake, but typically awake and during times of fatigue
Are sleep seizures related to epilepsy or not necesarely? Any seizure disorder is classified as epilepsy. What kind of epilepsy has to be determined by your neurologist.
Are they the same as sleep jerks when you`re drifting off to sleep or waking up, or the sleep apnea micro awakenings during sleep? Those are called myclonic jerks and are not the same thing.
I have these jerks or little jumps a lot, specially when I`m very sleep deprived (because of my not controlled complex apnea ) during my drifting off to sleep. . I also have them throughout the night (micro awakenings?) which I think is what makes my sleep so poor. I wake up exhausted in the mornings.
I also have what I`ve come to learn is a chronic acid reflux case. I had the fundoplication done and still have it. I`ve even had severe shortness of breath in the daytime from this. I`ve also felt central apneas in my sleep (literally felt I stop breathing, no obstructive) during drowsiness or light sleep, waking up very scared, out of breath and with my heart rasing (this is without CPAP).
You metion reflux possibly causing central sleep apnea (the brain telling the body it`s not safe to breath). This totally makes sense to me, and I never heard it befote. Where did you learn all this? This is per the 2 sleep specialists my son has seen. One was a pulmonologist and the other a neurologist
With your sleep doctor at your sleep clinic or are you a respiratory technician.? Is your son properly treated? He is currently monitored at night. Treatment is being determined in a couple of weeks.
Is he sleeping with a CPAP? No.
How did they find he has the central sleep apnea that particullary is the one where the brain forgets to send the breathing signal to the body? He's had 4 sleep studies and will be having his fifth in July or August
Your son doesn`t have reflux? He has ZERO reflux
Have they considered taking his tonsils/adenoids out? Yes, but his tonsils are almost nonexistent and his adenoids are not obstructing his airways.
Is he on CPAP? No . I hope he`s doing fine. He's doing as well as someone can do with poor quality sleep. He still sleeps upwards of 16 hours out of 24 in a day, but you do what you have to have energy to be a kid when you are awake!
My new sleep doctor tells me I have to take another sleep study because all the previous one`s results show a different thing. So it`s inconclusive. I don`t desaturate, but have a lot of awakenings and hypopneas. Don`t you have to desaturate to have obstructive sleep apnea? no
What are hypopneas anyway? It is shallow breathing.
You say it`s the same as complex? is when you have mixed apnea of both central and obstructive with hypopneas.
My doctor tells me hypopneas are obstructive. They can be both central or obstructive. They are typically obstructive in nature, rarely are they central.
Knowing which one I have is important to me cause I`m considering surgery. I wanna help myself in every way. She also says she has to find out if my awakenings (jumps/seizures?) are sleep apnea related or not. What if they`re not? Would this mean that I might have a neurological disorder? possibly.
Can sleep jerks while drifting off to sleep be caused by sleep deprivation anxiety (which I have)? I don't know
Can the ones Turing sleep be caused by what I think it is a very small awakening threshold caused by cpap pressure, snoring anda ir swallowing? Is there a drug to be less sensitive to these and have a deeper sleep while on cpap? I don't know this answer either
You also mentinon central sleep apnea being also caused by sizures. I don`t understand this. How can seizures cause central sleep apnea? My logic tells me lack of air (central sleep apnea) causes a seizure or awakening. Am I too wrong here? Seizures are "misfires" in the brain, which is what causes the apnea. Oxygen deprivation has to be SEVERE to cause a seizure, which is why seizures are not caused by apnea. By severe, I mean that you would have to go minutes without oxygen for it to cause a seizure
This is the part you wrote that I don`t get: “These most often appear as "Mixed apnea" or as an obstructive apnea followed by a central apnea event. It can also show up as a hypopnea (shallow breathing) and then fully manifest as a central apnea.” And I want to understand it, cause I wanna get a thorough sleep study this time to see if I can finally get proper treatment. Hypopneas can trigger the brain to believe there is danger of aspiration and will then tell your body to stop breathing. The same goes for an obstructive that becomes a central event. It's complicated, but it makes sense really. Your brain perceives that there is something in the airway preventing adequate airflow, decides there is risk of aspiration and tells your body to stop for just a second until it perceives the danger to have passed.
Finally, I have a girlf friendo who has an 8 months doughter. The baby has sleep apnea supposedly from lack of brain maturity/developement. Is this central? Most likely, was she a preemie?
I think my friend said they checked her throat and it was fine. She says doctor says apnea Could go on its own as the baby grows up and her brain matures. Is this the right treatment? Most preemies and infants will outgrow central sleep apnea, but some do not. She should have another sleep study about 9-12 months after her first one to determine if it is still a problem. In the meantime, she should be monitored with an apnea monitor at home.
Can a baby this young use CPAP already? No, I don't believe so, but I could be wrong. Infants are usually treated with medication or a "wait and see" philosophy.
Can sleep apnea and reflux be hereditary? It can be, but it is VERY rare.
Is my central sleep apnea supposed to improve if I have my acid reflux under control? Only if the reflux is the cause of the central apnea. You indicated that you had had a fundo and that it was still intact. If this is the case, then you should not be able to reflux anymore, which means that the apnea is not caused by the reflux.
Thank you and sorry for this long thread with so many questions. I`ll apreciate any help.
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