mgej wrote:BarryKaraoke, I did not join a forum to get sarcastic and belittling questions and responses. I am not looking for simpathy. I am looking for helpful useful ideas. I will respond to BarryKaraoke's (BK) questions for clarity sake for serious forum members. Those who have better manners than BK
I received my first sleep aide machine early 2007. It was a cpap machine. It did not work.
Why did it not work?
not important. the sleep doctor switch me to a bipap machine.
Around June that year, I switched to a bipap machine. During that time I had very bad experiences with the masks that were prescribed for me. I kept getting bruises on the bridge of my nose and irritation to the point of redness. I tried to train myself to keep my mouth shut while I slept so I could use the pillow nose mask. It did not work.
Did you try a full face mask?
mgej Answers: if you were not trying to be so sarcastic you would have read that the bruising took place on the bridge of my nose i.e. full face mask used... the pillow nose mask does not touch the "bridge of the nose".
To all other forum members: I've tried the Fisher&Paykel full-face flexifit 431 mask with and without the cushion. The Resmed full-face Mirage Quattro mask and the Remed Mirage Swift nasal pillow mask. the mask that work for me and is an awesome mask is the Resmed Mirage Liberty Full Face Mask.
BarryKar---- the mask problem was solved. I only mentioned it in this forum so that I could describe what I have done.
Here are the adverse symptoms i.e. side effects
So on May 15th I started using the bipap machine constantly. I started gaining weight, even though I was exercising 20minutes/day and consuming very little food. My wrist, forearms, ankles, chins and face swelled up. I was progressively getting more exhausted than I was before using the machine.
When I woke up on Wednesday June 4, 2008, I felt like someone was sitting on my chest. My lungs had a very hard time working. I immediately thought I was having an allergic reaction to something other than the bipap machine usage.
Surely you went to the Emergency Room? What makes you think this was all caused by your bi-pap machine? Many things can cause this and some are heart related.
Surely you only read my posting for your own amusement not my help. I did not say I was in a life threaten situation. If I felt I was dying, I would have called 911.
I went to my acupuncturist for treatment and for the first time I saw concern on her face and she kept coming in to the treatment room checking on me (my sleep doctor did not mention any possible side effect to be cautious of while using the bipap or cpap machine; so it did not occur to me at the time that my symptoms were coming from using the sleep aid machine).
BK ask / response:
Probably because there are very, very few and they are extremely rare. Why do you believe these things were all caused by moist room air delivered via a mask & hose? Why was your first reaction to a potentially life threatening situation to go to an acupuncturist?!?!
the answer to the first half of your question, WHAT?!?! you must be a fraustred person who have nothing better to do than to rip apart and criticize. To the second half of your question, why not? The acupuncture treatment(s) helped. Why do you question the validity of this type of MEDICAL TREATMENT?
The acupuncturist asked me to look at every thing I did differently for the past 2 weeks. When I went home and saw my bipap machine I knew it had to be it.
BarryK states and ask:
This is not exactly a scientific diagnosis. For example...how do you know it wasn't your Toaster causing these problems? You use it every day too...right?
Niether is your very nasty remark. That response/question was totally out of line. Who disrespected you as you were growing up for you to feel the need to be so nasty to other people. Shame on you.
But seriously, and with all due respect, it sounds like through all this you have yet to go to the Emergency Room, see your family Doctor or see your Sleep Doctor.
You should do so promptly. This could be something very serious and totally unrelated to your BiPAP usage.
TO ALL FORUM MEMBERS, I ask that if you feel the need to be judgemental, critical, sinical, or just out right nasty in your response as BarryKaraoke did, please, please, please do not bother to post a reply. I did not post my experience to insult any doctors/sleep doctors who may be watching this forum. BarryKaraoke sounds very much like an insulted doctor. If you are I'm sorry to have distrube you so much. Please do not reply to this posted reply. I've had enough of you.
DOES ANY ONE HAVE SOMETHING POSITIVE AND HELPFUL TO SHARE?
Personaly I don't think he was trying to belittle you at all. Sometimes asking questions we get the bigger picture on what is going on. When he asked why the Cpap didn't work. This is a good question to ask. Some with Lung issues can't take a constant pressure going in and out and it has to bilevel down as you breath out.
You did not go into great detail about what mask you did use. So asking if you used the full face mask is a valid question in my point of view. Sense those are questions we can answer or give you advice on what helped us as well.
I think Barry did not read the fact that you said you thought you were having an allergic reaction from something other then the Bipap machine like you said.
Here from my experience on allergic reactions. And why others were asking why did you automaticly not go to the ER. Anaphalactic Shock an Alleric reacting is very serious. The systmptoms you stated also are the symptoms of Anaphalactic Shock. I have personal experience with this for my self and my son. I have EpiPens on hand for this. And you administer the shot and call 911. I am told if you even fell that you are having an allergic reaction. You don't pass go and call 911.
Also this can be from other medical issues as well. And just to over look them an go to an acupuncturist for treatment can be dangerous. I am not downing them. I use them for my self. But they can't cure everyhing. And acupuncture like medication only mask the issue like medication. It makes you feel better for a little bit and then you have to keep going back. Yes it helps. It has helped my pain. But it does not make it go away and your cured.
To go to one when you feel like you are having these symptoms can be dangerous and life threatning. This is a suport forum to help out with using the machines and our experiences. We can't tell you what is wrong with you. That is a liability that no one is willing to take. That is why everyone is saying go to the ER or get to your doc ASAP.
Barry likes to use humor and so on in his post. Some can take it the wrong way. But over all he is just trying to help.
Also posting your results from your sleep study can help others give any advice to you as well
But the symptoms you were giving could be from a number of things. It could be that you were having an apnea. I still have centrals even with treatment. Or it could be something else.
Major side effects are rare do to the machine. So that is why it is best to just go strait to the ER if this happens again. There can be many reasons for the tightness on the chest, swelling in the legs and so on. And we are not doc's and can't give you a strait answer on that.
We can give you suport and say get your self to the doc ASAP. And to keep using your machine and so on.