Apnea and Night Terrors

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Apnea and Night Terrors

Postby landl » Wed Feb 09, 2011 12:45 am

Hi there,

My 7 year old had her tonsils and adenoids removed 5 weeks ago because she was diagnosed with obstructive sleep apnea. She was having night terrors, about 1 time per week, sometimes every 2 weeks. The NT's are what brought us to the sleep specialist.

SINCE the SURGERY, she has had a night terror ALMOST EVERY NIGHT. This is distressing beyond belief.

Does anyone have any information on post surgery night terrors?????

Does the presence of NT's at this point mean that she still has sleep apnea???

Do the NT's ever go away?????

I really need your feedback.

Thank you.
landl
 
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Postby lorenzomama » Wed Feb 09, 2011 1:31 am

((HUGS)) Night Terrors are terrorizing for parents.... I'm so sorry you are experiencing an increase in your daughter's night terrors...

I don't think you can make any assumptions about the presence or absence of apnea based solely on the presence/increase of night terrors. Is there a follow up sleep study scheduled? Are you working with a sleep specialist? I would definitely place a call to get their perspective and recommendation. Has she been on any medications post surgery? I have heard of cases where certain medications were believed to have caused NT's. Aside from the NT's, how is her sleep? Is she getting an adequate amount of sleep overall, and adequate quality, or is that problematic too?
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Postby TiffanyAcuff » Wed Feb 09, 2011 7:54 am

I'll second Lorenzomama's questions....and add this...

Both of my children have central sleep apnea, and when Isaac's apnea is "out of control", he has frequent night terrors, but when he's getting good quality sleep, he rarely has them.

I wonder if she's just not getting good sleep as an aftermath of the surgery (meds, swelling, infections...etc) and not necessarily having worse apnea.
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Postby polydolly » Mon Feb 21, 2011 12:51 am

UGH! I feel your pain, landl! My 10 y/o son has been having night terrors since he was about 6. I think initially, they seemed to start when he started taking singulair for allergies. He had his first sleep study when he was 7 and had an AHI of close to 18. Had his T&A surgery in August of 2008, then also had a rapid palate expander and reverse-pull face mask. Nothing doing. His AHI was pretty much the same after after both of those treatments. He's been using an Auto PAP machine -along with my 6 year-old and as of 2 days ago, my husband(!)- for just over a year. When he doesn't use it, or when he stays up too late too many days in a row, he is more prone to NTs. He went to summer camp last year for the first time. No electricity in the cabins. The first week was okay. But week 2, he had 3 NTs (poor counselors), and 2 episodes where he woke up just has he was starting to urinate. Poor kid! He really struggles socially, but I am so stinking proud of how brave he was!!! But I digress. Bottom line: for us, the APAP has been a source of fewer NTs and a kid who is much more in control of his emotions. Best of luck!! You came to the right place

Peace,

Teresa
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