Is this correct? You are using a machine right now that is NOT the AdaptSV/a.k.a. CS2, but you want to get that machine which you feel would improve your current unhappy situation. Your doctor has however not approved it, so if you still want it you are stuck with having to pay for it (very expensive) yourself. The machine you are using now is a straight CPAP machine, which does not accommodate itself to your breathing (it blows in when you are trying to breath out, etc.) and seems to be doing more harm that good.

Hey, Kelly...

Believe it or not, I can actually relate to what you're going through.  There was one night a year or so ago when we were staying in a hotel out of town... there was no nightstand to put the machine on, so it was on the floor with the hose stretched up over the headboard because that was the only way I could get comfortable... it had been a very long day, I was totally exhausted, the hotel room was cold, and all I wanted to do was hook up the machine and SLEEP!  Well, enter RAINOUT... an hour or so after falling asleep, the machine starts blaring alarms like the world was ending, wakes me up out of a sound sleep, and scares the c*&p out of me... condensation had run down the hose and somehow got into the machine and just screwed everything up... the machine shut down and refused to function for the rest of the night... I was so tired, I just started bawling.  Thankfully we were headed home the next day, and the DME swapped the machine out for me and I was able to sleep the next night.

I don't know how much you've read about the Adapt, but it is truly a unique machine, and as far as I know, the only one of its kind on the market still.  The Adapt "thinks" for itself, and it adapts itself to your unique breathing patterns, instead of like other machines, you having to adjust to the machine.  It goes breath-by-breath, and when it "senses" a drop in pressure, like an apnea or hypopnea, it kicks in and responds.... then when normal breathing resumes, it backs itself off and returns to normal function.  It is extremely sensitive and complex, which is why the price tag is so high.

I had to pretty much run the gamut before I got mine.  I had four sleep studies before the Adapt finally came into the picture.  And yes, I have a really good sleep doc who DID do an MRI trying to figure out why I was having centrals... because on one of my studies, the tech actually noted that I had a "very stubborn central component that was never completely eradicated."  In my mind, an MRI should definitely be done, just because centrals are neurological, not mechanical.

Have you ever actually SEEN your sleep study results?  On your baseline sleep study, the very first one, where they determined that you had sleep apnea, did you have central apneas THEN?  Or did your centrals manifest themselves at the onset of titration?  They call that cpap-induced central apnea.... some people just don't tolerate the machine very well, which is my case.... my brain gets confused and lazy, thinking that the machine is actually breathing for me.

I'll be interested to hear the results of your vpap titration... definitely keep us posted!


_________________
---Sherri---



ResMed VPap Adapt SV with heated humidifer
ResMed Ultra Mirage II Nasal Mask
Hosehead since 1/17/06 - "Adapter" since 1/28/07
Tonsillectomy/Septoplasty/Turbinatectomy 1/16/08 = AHI 6, "ALMOST" Normal!!

Oh, and by the way...... don't mind val, he just takes a little getting used to... he's an old codger who actually does mean well... LOL!  He had us all going several pages back when he was talking about the exclamation points and ALL CAPS...

Hey, Val!  Welcome back!  Have you been following my surgery thread at all?  My nose finally cleared up and I can BREATHE!    They did do the turbinate reduction on me as well, and I'm actually feeling alot better now.

I have another sleep study scheduled for March 2nd, where we'll actually find out how much of a success all of this was, and I'll definitely let you guys know how it went....  


_________________
---Sherri---



ResMed VPap Adapt SV with heated humidifer
ResMed Ultra Mirage II Nasal Mask
Hosehead since 1/17/06 - "Adapter" since 1/28/07
Tonsillectomy/Septoplasty/Turbinatectomy 1/16/08 = AHI 6, "ALMOST" Normal!!

Very glad your operation came out ok. The turbinate reduction really helps, and likely lasts a long time, maybe forever. Your dr will have told you also to keep your sinuses nice and clean, breathing in a little warm salt water back there. But remember just a tiny bit of salt, not too much, just enough so that the water does not sting when it gets back there. Un peu seulement. As for me, am most anxious to get that same machine you have, but have dilemma of holding off for the new model (promised "after the holidays" - now long past) or going to an earlier grave by not acting now. The current machine is just not doing the job. If any of you young people with your many sources of info hear anything about the new model, pls post it as val be watching tx. Also wohoo and lol. Is that teenage "lingo"?

Sherribaby,

I am scheduled with my 6 month Dr. visit after getting the Adapt SV. I still feel as tired now as before I had the Adapt SV.  The only thing that keeps me going during the day is the narcolepsy medicine which is an amphetamine...

I may ask my dr. to let me get an MRI. I still have leaks no matter what mask I use. I have tried about 20 different ones now. I still need to get to the ENT dr. too. I am in a busy part of the school year right now. We have state mandated tests next month so all teachers are working hard to get everything taught before the tests.

Hey, Sherri,  when I go in to the dr. will he download the info from the Adapt?  Is there anything to download?  

The last time I talked to the Res-Med rep, he said that there was nothing to update on my old Adapt SV. I guess I am stuck with the old version.

Glad to hear you are doing so well after surgery. Are you still doing without your Adapt?

Peke


_________________
Res-Med VPAP - Adapt SV
FP Flexifit 406 mask
with Narcolepsy on the side!!!!

Hey guys... decided I needed to pop in because I haven't been keeping up with my reading in the threads here.  We are in the busy time of year for my office... I am in the midst of planning two professional development workshops, the first one in May is actually a Forum/Round Table kind of thing that we have professionals coming to from all over the country.  Sounds like it will be kinda cool, but its kept me busier than a one-legged man in a butt-kicking contest (as my dear husband would say!) LOL!

I feel like I can finally say that yes, this surgery was a success... mostly because of how well I'm keeping up with everything that I'm doing right now.  I'm getting alot more work done and staying on top of things alot better!

Val... my husband said the same thing about the warm saline rinse.  He tried it when I was in the hospital, and loved it.  So far, I haven't had any problems, but allergy season is right around the corner and I'm sure I'll need it then.  On waiting for the new machine to come out.... the last piece of info I heard from ResMed was that there was a possibility that they would be able to do an "update" on the older machines that would give them the same data tools as the new machines.  From what I understand, they're not changing anything about the machine itself or how it works, they're just updating the software to allow the user more data access.  Like being able to see your daily AHI and such.  So, I guess your best bet is to contact ResMed and ask the question again about whether the old machines will be able to be updated.  If so, why wait?

Oh, and "Woo Hoo!" actually comes from Homer Simpson.... its very celebratory (is that spelled right?), kind of like a "yee ha" or a "hot dog!" or any other expression you can think of.  An "LOL!" is a Laugh Out Loud.... not necessarily teenage lingo, but I guess something that you do have to get used to... LOL!

Peke... so sorry to hear that you're still having problems!  I was hoping with you that the Adapt would do it for you.  Didn't I hear you say before that you were also diagnosed with Narcolepsy?  If that's true, then you'll probably always struggle with the fatigue and daytime sleepiness..... that's the nature of the beast with Narcolepsy.  My doctor for a while thought that I was a Narco, and I did alot of homework on it as well as sleep apnea.  If you've never had an MRI, its definitely a good idea.... and if you haven't had it already, I think there's actually a blood test (or something!) that will actually diagnose Narcolepsy.  As for downloading the Adapt, you have to have a smart card.  And even if you do have the smart card, the only data he'll get from the Adapt is usage stuff... hours used, average pressure, tidal volume, etc.  It won't tell him AHI or events or anything like that.  Yeah, I know, kind of stupid on ResMed's part, but what can you do?

Anyway... its way past 5:00, so I've got to pack up and get out of here.  Will check back with you guys later...  


_________________
---Sherri---



ResMed VPap Adapt SV with heated humidifer
ResMed Ultra Mirage II Nasal Mask
Hosehead since 1/17/06 - "Adapter" since 1/28/07
Tonsillectomy/Septoplasty/Turbinatectomy 1/16/08 = AHI 6, "ALMOST" Normal!!

hemiman wrote:

Sounds like you have got it worked out....that is great!  I'm gonna try a comfortgel nose mask tomorrow nite, getting rid of this face mask because I'm evidently a nose breather not a mouth breather.  The comfortgel was what they used in the sleep lab, and it got me down to zero apneas at 8cm.  Don't know why the tech talked me out of getting it and put me on those nose prong things first time.  Well, I'm down here about 30 miles north of Atl, about 1 1/2 hr from Chatt choo choo.  If this DME doesn't work out, I'll find out who yours is.  tks for all the info and keep on snoozing...hemi man

When I had the sleep study to put me on CPAP, I had two different masks that I came home with - one was the Swift, with the nasal inserts and the other was a Activa. Neither fit well and I finally got a Comfort Gel from my DME- it (a petite) fits well, but still has to have some help to keep from digging into my face.  
I'm adding that I got a Fisher Paykel 431 from a CPAP auction site and am going to try it. I've been having trouble with the hose popping off the mask in the middle of the night, and mouth breathing, so hoping the new mask (replacement not covered by insurance yet) will work for me, so that I can get my DME to get it for me when I'm eligible for a replacement...



Last edited by KMP50 on Sat Mar 29, 2008 3:50 pm; edited 1 time in total

Are you still using the Adapt SV?  I just started using one and could use some help


_________________
Started 22 Nov 07
AHI 129, O2 level 70%, 2 obstructive SA, 9 mixed apnea, 14 hypopneas, 607 central apnea
Currently using a ResMed VPAP Adapt SV, set at 10EEP and PS of 5 to PS of 10

Hey, guys.... how's everybody doing?  I've been BUSY.... I CANNOT wait until May 4th, when my first Forum/Workshop is over and I don't have to stress so much anymore.  I just spent the last week staring at spreadsheets, trying to get a mailing list together for a bulk mailing, and as soon as I can find the time, I've got to meet with a guy who is going to help me create an Access database so that we don't have this problem again next year.  Whew!

Jim.... I used the Adapt SV for over a year before my surgery, but no, I haven't been using it lately.  What's the problem?

Saw the Sleep Doc after my follow-up sleep study, and I've been declared "ALMOST" normal... LOL!  My AHI was down to 6, and he said he didn't really see any point in treating that, as long as I was feeling better.  He's going to keep me on the Provigil for a little while longer, and I'm supposed to go see him again in 6 months.... WOO HOOOO!!!


_________________
---Sherri---



ResMed VPap Adapt SV with heated humidifer
ResMed Ultra Mirage II Nasal Mask
Hosehead since 1/17/06 - "Adapter" since 1/28/07
Tonsillectomy/Septoplasty/Turbinatectomy 1/16/08 = AHI 6, "ALMOST" Normal!!

I find myself wishing I would just go to sleep and never wake up now, because I don't see any hope at the end of the tunnel now.  


..this person (quoted from above) is really wantig to "never wake up"?  A suicide case? Scary.  Also, believe it's "light" at end of tunnel?

..this person (quoted from above) is really wantig to "never wake up"? A suicide case? Scary. Also, believe it's "light" at end of tunnel?


You know, you sound really ignorant.  Perhaps that person is at the end of their rope due to their apnea.  Ever consider that?  Instead you choose to make a worthless comment correcting them about how they should write out a hackneyed statement about light being at the end of a tunnel.  Let's hope you never get to that point in your little life. I also seem to remember that person (or someone else) wrote in the forum and you were sarcastic the last time....

Having said all this I'm so glad my weight loss has cured my apnea (while you no doubt are still a hosehead among other things) and I have no need for cpaps, machines, torturous head gear, uncaring dr's !@#!, and forums like these with ignorant posters.
 

Ta

Now now, don't call names, it's not nice. Take a pill and lie down, you will feel better.

p.s. was not suggesting the young person write out a hackneyed statement; only indicating that if he already chooses to do so, we must not mix up our clichés.

And I'm saying it's irrelevant, as well as downright callous, to dismiss someone in distress like that.  Hopefully that person found the relief they were looking for without resorting to killing themselves.   Did you know sleep apnea and the sleep deprivation it produces leads to severe depression?  I do.  I've been there, so I don't see the humor in any of it.  I would think that addressing the depressed individual in a compassionate manner would be more important than worry about a stupid cliche. I think you're the one who should be calmer and think more before responding to people in distress, or better yet don't respond at all since you are not being helpful.

Well first of all, you don't make any point with me by starting off with name calling as you did. But I forgive you because I am a big hearted fellow. Go and sin no more. Yes, you have a point. It's no fun to be downhearted and depressed and in a spin. On the other hand, there are folks today who survived Nazi death camps and the gulags of Stalin's Russia, and THEY are gong about their lives with, if not a smile, at least not a whine.

ps. on the subject of scrambled chichés, here's a game for you and the kids to play next time they are bored on a long car trip. How many can you think of? Here's a few to start you off

Light at the end of the funnel
Tip of the icebox
Skyracheting to success
Costing an arm and a lamb

No...you were the one to make the abusive post to begin with and I called you on it.   I'll bet a lot of the people afflicted with this disease have much more on their minds than petty !@#! about getting common cliches right.  Maybe your should revisit the title of this forum and look at the word support.  If you can't give it, perhaps you should save your typing fingers for something else productive in your life, like masturbating or something.  It stands to reason that since this is a support forum, people will whine and whinge a bit, you know? If you don't like that idea, why don't you go on a forum where wordsmiths like yourself will feel more comfortable rather than make people in a miserable situation even more miserable.  People like you have no other purpose in life than to wear others down apparently. I could care less whether you forgive me or not, ma'am.  I'm just pointing out your callousness and rudeness.