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daytime apnea attacks?

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daytime apnea attacks?

Postby Raglet » Mon Feb 19, 2007 3:24 am

Does anyone have daytime apnea attacks as well? The back of my throat closes at random during the day, leaving me gasping until I deliberately open it up so I can breathe again.

If this happens while I am asleep, it wakes me up which is annoying.

This is being attributed to my brainstem problems caused by my lupus (I have damage to my tongue and swallowing).

I just wondered if any of you guys had any clues about what can be done about daytime apnea. My doctors just say that I am coping with it at the moment (true, it is only occaisional, but all my other symptoms start as occaisional and build up) so leave it alone until/unless it becomes more extreme. I agree actually, but just want to find out more info about adults who have apnea attacks while awake as well as asleep.

I presume I have some sort of mixed apnea, as it is related to my brainstem problems, but that causes my airway to collapse. Most annoying.

If anyone has any comments or could point me in the right direction for some more info I would be very grateful

cheers

raglet
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Postby Vicki » Mon Feb 19, 2007 4:12 am

Hi Raglet and Welcome!

Since it a daytime, awake issue, it wouldn't be treated with a CPAP like sleep Obstructive Sleep Apnea. I think annoying is probably a great understatement! Unfortunately we rarely discuss central apnea and it is usually mixed in with Obstructive Sleep Apnea. I am curious as to what your neurologist (who you definitely need to see if you aren't) has said about it.

Vicki
Being defeated is often a temporary condition. Giving up is what makes it permanent.
Marilyn Vos Savant

That which does not kill you makes you stronger-Friedrich Nietzsche
Friedrich must of had apnea.
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Postby Guest » Mon Feb 19, 2007 4:18 am

neurologist, rheumatologist etc are all taking a wait and see approach. Obviously, by definition I don't have sleep apnea (well, only when it happens when I am asleep) - I am really wanting to find out more about what is happening but am pretty clueless about how to do that. Google and i are usually best mates, but at the moment all I turn up is either sleep apnea or apnea in neonates!

I guess I will have to try and find out more about central apnea, which it seems is what i have although there is a secondary obstructive component. I have already figured out that if I get really stuck I can just stick my fingers down my throat to open up my airway, fortunately I lost my gag reflex about 18 months ago so that won't make me heave.

thanks for your speedy reply - i have to whiz up the road and pick up my daughter

cheers

raglet
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to raglet

Postby merywidow » Wed Feb 21, 2007 7:16 pm

I used to have the same problem with my throat closing and I had to struggle to open it with a kind of gasping scary feeling. It happened about once a month. About a year later I was diagnosed with thyroid tumors. I had them removed and the problem went away. Get your thyroid checked.
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daytime apnea

Postby Phoenix » Thu Nov 29, 2007 7:43 pm

Sometimes in the middle of the day I will catch myself not breathing. Does anyone know what could be causing this. My throat doesn't close up or anything, I just stop breathing.
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Re: daytime apnea

Postby mainetchr » Tue Mar 04, 2008 1:16 am

Phoenix wrote:Sometimes in the middle of the day I will catch myself not breathing. Does anyone know what could be causing this. My throat doesn't close up or anything, I just stop breathing.


YES. I have the same thing! I have no idea what it is, maybe "Central Sleep Apnea"?
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Postby sleepIsHell » Tue Mar 04, 2008 3:05 am

This central sleep apnea sounds very scary. I've been wondering why my throat closes during sleep and I'm really hoping that my problems are just OSA, not some serious damage or tumor in my brain. Yikes. I can't explain why I'm having Sleep Apnea. What is it?
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Postby PuhJommies » Tue Mar 04, 2008 3:28 am

^ ^ ^ You poor guy! You really have yourself all wound up and worried. I've lost count of all the worried posts you've made today.

By now, some reassuring responsed have been give to you. Have they sunk in yet?... have they made you feel better?

When is your sleep study scheduled for? That's when you will have your TRUE answers instead of just projected opinions from we lay people.
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Postby sleepIsHell » Tue Mar 04, 2008 4:52 am

I'm devastated by my Sleep Apnea. I'm not a functional person right now. I can't work. All my plans are in jeopardy. I can barely think straight or rmemeber things. THis is hell, torture.

I keep a journal and I've been reading back the past two years, and I'd write in my Sleep journals. 8 hours. 9 hours. I didn't have this kind of problem back then. Once in a while, I might have a horrible entry in my journal about poor sleep. But most of the time, the sleep was fine, and I was functional.

These days, I'm a total wreck. I must solve this problem, and Sleep Test is my only hope. Until I get there though, my mind is racing on ways to alleviate my Sleeping problems, and get a good night's sleep. I can't remmeber that last time I had a good night's sleep.

So please, pray for me that I might have good sleep soon.

[/code]
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Postby PuhJommies » Tue Mar 04, 2008 8:18 am

I think I know the answer before I ask, however, here goes ~ do you know how to meditate?

If you can't find a way to calm yourself down, you won't be getting any kind of good sleep before being tested.

I can certainly understand your being upset with discovering you have apnea. But guess what ~ there are those who are actually happy and relieved to have found out what is wrong with them and knowing there is something that can help them. Many/most of us have had symptoms of an *unknown* nature that have given us years of problems, worry and unexplained fatigue. Most of us are diagnosed AFTER we already have many of the apnea related diseases... diabetes, high blood pressure, GERD, heart problems AND MORE.

Lucky lucky you though. You are able to look into a journal to KNOW that within the past 2 years, not decades, you slept well. The good news is you caught yours right away, BEFORE bodily damage could take place... damages that may not be able to be reversed and that you will have for the next 40 years.

What you need to do is ask your Dr. for something to settle your mind if you can't do it on your own, to realize that if you in fact have OSA, it's not going to go away. If you have it you have it and you have to treat it.

In all honestly, I lost my balance when I first saw what these masks looked like. It takes a lot, A LOT, to make me cry. I saw the masks and I cried and within an hour, I found myself here making my 1st post. The help I received ( and still do) made the difference for me. It wasn't long until I returned to my strong self and realized I would sure as hell rather have OSA than plenty of other things I could have had/caught..... easier to plug in a machine at night than be wheelchair bound, to be blind, to have cancer... and the list goes on and on.

Think about it ~ YOU and I are very lucky indeed.
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Postby sleepIsHell » Tue Mar 04, 2008 9:04 am

Thank you for your strong spirit. I can see you are a strong person than I. I'm kind of unravelling right now. My fingers are shaking. and when I lay down, my body shakes. This is probably because I am fatigued from not sleeping well the past 3 days, and also because I am getting very scared of having serious health problems.

2 Years ago, I was overweight, and wrote in my journal how important it was for me to drop 30 lbs. As I read each entry, I am sickened by myself because I failed to make good on that plan. And here I am, 2 years later, still 30 lbs overweight. Maybe 2 years ago, I didn't have this severe Apnea, but I think I also had problems breathing back then too. But my body was able to "take it". Now, I have chest pains. I seriously think I have real heart problems. I know I should set up an appointment to get this all checked out. But I don't want to hear the news out of fear that the doctor is going to tell me something like heart failure or something like that.

Honestly, I remeber in Dec 2007, one night, I woke up and I thought I was going to die. My nose was blocked, and my throat was so parched I couldn't swallow. And I felt like I was dying because I did not breathe. And I've had several incidents like that this winter. Where I wake up, and I feel sooo sick.

So I think I have many problems. And that is why I am so nervous. THe worst thing is to find out I have cancer, or some heart disease. Even having to use a CPAP machine is extremely depressing. I wasn't like this at age 22. I hate to say it but some nights, I am so miserable, I don't want to live. But I'm not suicidal. Its just that right now, the quality of my life is so extremely bad healthwise, and it's too much for me to take.

Probably if I do have all these things, it's my fault. I should've listened to myself 2 years ago, and lost weight, and ate right, and exercised. Instead I did the opposite.

No wonder I've had high blood pressure this past year! because I think it is related to Sleep Apnea!
It is all making sense to me now. I just wonder why the Doctor did not have me take a sleep test earlier instead of waiting for an entire year.
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Postby PuhJommies » Tue Mar 04, 2008 9:26 am

There are so many things in your post above that I could comment on but I've learned my lesson having posted on the other many threads you have in operation.

I will respond to this though ~
I just wonder why the Doctor did not have me take a sleep test earlier instead of waiting for an entire year.


You keep saying this all came on suddenly within the past few weeks and now you're indicating a year ago you had problems... but this isn't the point I wanted to make.... but here is the one I want to make ~

Read all of your posts made in the past day and the responses you've received. If you have had conversations with your Dr as you have with us, more than likely, he didn't *do anything* because he didn't take you seriously... though he could have helped you out with your anxiety .... that's really where he dropped the ball IMO.
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Postby sleepIsHell » Tue Mar 04, 2008 9:29 am

You know, shame on you for being so judgemental.

Shame on you. Is this how you'd treat other peopole in your life? Someone has a problem, a serious problem, and all you can do is go around and give orders and not listneing? and just judge and label people?

That's really sad. Shame on you, and others who take this attitude.
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Postby sleepIsHell » Tue Mar 04, 2008 9:31 am

It's amazing how some people act so coldly on a forum. Do you really act like this in real life? I think if you did, you wouldn't have any friends.

PujJommies, please, ignore my posts. Really, I don't need inconsiderate rude people in my life OR in forum life. Why do you even browse the Help Section if all you want to do is Judge, Dictate, and if they don't listen, Judge some more. SHame on you.
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Postby sleepIsHell » Tue Mar 04, 2008 9:33 am

I mean, PuhJommies doesn't listen very well. She keeps insisting I make an appointment NOW.

She ignores the fact that I'm not able to sleep at the appointed time. Even the Sleep Specialist agreed to reset the date when I'm able to come in. I already ahd to cancel once in February. I certainly don't want to cancel it again as it would upset the Sleep Speicalists.

Geez..some people..
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