Second round of sleep studies done...now what?

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Second round of sleep studies done...now what?

Postby Sleepy Kat » Wed Dec 06, 2006 7:19 pm

I had the MLST test today at the sleep lab. Last night they did the CPAP at my level and then today had me nap every two hours for about 15 minutes each. Last night, I still woke up throughout the night and after each nap today, I was more and more tired.
I think part of the purpose is to try and figure out if there are any other sleep disorders going on since I can't really stay awake at times during the day, and still am not sleeping through the night.

I see my doctor on the 12/14/06 to get the results of this test back. She will decide on a course of action then, but I have three questions:

1) People here seem to know all of their results, numbers and stuff like that, but my doctor has never gone over any of that with me. How do I go about asking her to go over that and about getting a copy of my test resluts?

2) Has anyone been on Provigil? That is a medication she is thinking about putting me on to help with the daytime tiredness.

3) What is the difference or similarities between sleep apnea and narcoelpisy? Anyone have both and how can you tell?


Any answers, input, feedback would be grately appreciated.

Thanks,

Sleepy Kat
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Postby ArthurAnxious » Wed Dec 06, 2006 8:42 pm

Kat, you are right, the daytime nap test is more about other sleep disorders (narcolepsy and idiopathic hypersomnia particularly), than about just OSA. It is also to contrast the type of sleep you have during the day and the night. I wonder in hindsight why the sleep doc didn't explain the need for a MLST to me before my test. He may have just felt, as most sleep specialists do, that it is simply part of a thorough sleep evaluation.
Unfortunately it did give cause for concern in my case, and I was very bothered by being told I have to stay for an extra nap without being given an explanation otehr than "you went right into REM." It wasn't till later that I realized I had triggered alarm bells for narcolepsy. They could have given some informative but non-committal explanation, "You have an unusual pattern of sleep, so we want to do an extra test to see if it happens every time or just once." I guess some people actually like knowing no more than they have to, but nowadays I think most of us want to know what we are being tested for!
Arthur
Sleeping with a curvaceous blonde autoPAP (Resmed autoset). Hope springs eternal.....
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Postby ArthurAnxious » Wed Dec 06, 2006 8:55 pm

And to answer another question of yours about connection and difference between sleep apnea and narcolepsy. Narcolepsy is a tendency to fall asleep during the day for no real reason. Sleep apnea patients may be so tired from their disrupted sleep that they doze off easily, but narcolepsy makes people doze off even if they have had a perfectly good nights sleep. Drugs like provigil are given to narcoleptics to keep alert.
Arthur
Sleeping with a curvaceous blonde autoPAP (Resmed autoset). Hope springs eternal.....
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Postby Bonehead-Ed » Thu Dec 07, 2006 4:44 pm

For number 1, you have to ask the doctor to provide a copy. You are entitled to it since you are paying for it. Sometimes you get a summary. Mine was 5 pages with lots of details.

2.) I had the MSLT and in 3 of the 4 naps, I fell asleep within 1.5 minutes and went into REM all 4 times, which is diagnosed as narcolepsy. I take Provigil, which is basically speed, and it keeps me from falling asleep during the day as in after lunch. However, I still don't feel rested even though I am on CPAP and take other drugs. Provigil does help in keeping me from closing my eyes but I have never fallen asleep in the middle of something.

3. Sleep apnea is when you stop breathing or breathing is obstructed and your body wakes you so you don't die. The accumulated sleep loss can cause you to be tired all the time during the day. There are different types of narcolepsy (with cataplexy-can't move muscles-paralysis), the kind where you are awake one minute and asleep the next, and then my type which showed up in the MSLT. I don't know to what extent the lack of good sleep is causing the "narcolepsy" but I suspect that anyone who doesn't sleep well at night would fall asleep 3 out of 4 times the next day, especially after a sleep test.

I would make a list of all the questions that you have for your doctor on 12/14 and even call ahead to have them make you a copy of the sleep test results (with all the numbers). Good luck.
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