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Is it worth it? Having trouble getting used to it all

This area is for CPAP Mask and CPAP Machine Related Questions used in the treatment of Sleep Apnea.


Is it worth it? Having trouble getting used to it all

Postby ctucker » Wed Nov 29, 2006 8:06 pm

So I was placed on CPAP therapy and I received my machine on 11/7. I didn't start using it till 11/10 because of being out of town and not wanting to freak out my family that only sees me once or twice a year.

But here's the deal...

I am not sleeping better. In fact sometimes I feel like I am sleeping worse.

I take the mask off in the middle of the night.

It hurts my face.

It's either too tight or too loose.

I open my mouth in the middle of the night and then it hurts like heck to swallow when I do realize it's open.

They are ordering me a different mask to try.

I'm just very frustrated...is it worth it.
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Postby BARBCCRN » Wed Nov 29, 2006 8:08 pm

In a single word-YES!!!!!!!!!!!!!!!!!!!!
EVERY SILVER LINING HAS A TOUCH OF GREY
-Grateful Dead
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Postby Louise » Wed Nov 29, 2006 8:26 pm

When I got the CPAP, I almost cried. That was a year ago. Today, you'd have to pry it from my hands. I sleep well....feel rested....no snoring...etc.

It is an adjustment. But, keep at it. You'll find the proper fitting and soon it will be part of your routine.

The people on this site are very helpful. Ask questions, get tips, etc.

Best of Luck!
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Postby bdp522 » Wed Nov 29, 2006 9:42 pm

YES!!! It is most definintly worth it! It can take months for some to get used to this new way of sleeping. The more you use it, the easier it gets. Took me almost an hour to get set up and get to bed the first night. Now it takes about 2 minutes. If my husband was to say I had to choose between him and the machine, the machine would win, hands down! I have always hated going to bed...now I can't wait to get there because I know I'll feel great in the morning.
The most important thing is DON"T GIVE UP!!!!! If your having specific problems, post them and someone will try to help.
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Postby New Man » Thu Nov 30, 2006 12:14 am

Yes, it is!! I'm using a ResMed Ultra Mirage II and a Fisher and Paykel humidified CPAP with a heated hose. Do I sleep better? YES! I used to awaken every 90 minutes throughout night. Up four or five times . Now I get up once and go back to sleep. Yes, sometimes the mask needs to be adjusted, loosened or tightened. Sometimes it irritates the bridge of my nose. But the positives so outweigh the negatives. I'm 65 and wish that I had been treated 30 years ago. Best wishes to you. I do believe you'll find the right mask and machine for you.

Matt
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Postby Vicki » Thu Nov 30, 2006 2:03 am

Ctucker,

You may learn to keep your mouth closed, but if you continue to have problems with your mouth opening, then try a full face mask. There are many different types of interfaces and you will find one that works best for you.

Once you get comfortable with it, you will find that you feel better when you use it all the time, including when visiting relatives. That can be an educational experience and you might have other family members who have undiagnosed apnea that you can help. One moderator's family is up to around 9 CPAP users.

You have only been using it for 18 days. You have much more sleep debt to make up than that and it can take your body awhile to heal and recover. It is worth it? You are heading towards good health and a longer life, your alternative is an increased risk of heart attack and stroke, increased blood pressure, general cardiovascular damage, cognitive function deficients, etc. Untreated apnea is very serious.

Vicki
Being defeated is often a temporary condition. Giving up is what makes it permanent.
Marilyn Vos Savant

That which does not kill you makes you stronger-Friedrich Nietzsche
Friedrich must of had apnea.
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Postby clary » Thu Nov 30, 2006 2:24 am

Guess, I'll jump in and agree with everyone. Keep at it and don't give up. Like everything you need to give it time.
I've on CPAP for 16yrs and in that time I've tried many masks and 3 differnt machines. I've always liked the nasal pillows over the masks. I guess I've been lucky as I have never had any problem with CPAP. Took to it like a fish in water and never looked back.
I encourge you to keep in touch with your DME and try diffent masks. Heated humidifier is a must.
Ask questioins, I can't believe the wealth of knowledge here, for you to tap into.
It will get better.
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Postby TedG954 » Thu Nov 30, 2006 11:14 am

YES... IT IS!
As a Christian, you may be the only bible someone ever reads.
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Postby Ross » Thu Nov 30, 2006 2:17 pm

Well, I am not sure I can add anything that someone else did not say except that one of your issues may be the interface. It sounds like you are having trouble getting used to it. It may be time to look into alternatives -- and there are a lot of them out there. Take a look at some of the less intrustive ones. Breeze, for example, has less contact points on the face and the straps are up higher, it doesnt work for me, but it might for you. Get your DME to put together a few samples and give them a try.
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Postby djohncox » Fri Dec 01, 2006 1:45 pm

I've had my CPAP for a year. It was set at 11 after my first sleep study. Then, in Nov. 2005, I had septoplasy and turbinate reduction surgery. My ENT Dr. didn't set me up with a follow-up sleep study after the surgery which allowed me to breath a whole lot better so I was still using the CPAP set at 11. The force of this setting was overwhelming, and talk about dry mouth (and throat)!! So, I became non-compliant (stopped using it) UNTIL. . . I had an appmt. with a pulmonologist for some asthma issues. Well, she turned out to be a sleep specialist too. She had me go to another sleep study, and guess what? My CPAP setting was too high at 11 and the new study had me down to 7. Since then, I've reset my CPAP to 7 and I am waking up feeling rested, refreshed, focused, and no longer am I so groggy in the a.m.!!! The critical thing here is that you have the right setting on your CPAP for you to be able to feel a difference. It DOES make a BIG difference!!
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new also

Postby laurie2025 » Fri Dec 01, 2006 5:27 pm

I am new to this message board and to CPAP treatmet. I have only been using it for 1 week. Believe me I know how you feel. My only comment is, when you say they are ordering you a new mask to try. I hope that you have researched this mask and feel that it will meet your needs, and they aren't ordering you just any old mask.
I got my first mask; a Swift, when I got my machine. The Swift is a great mask and I like it but I don't like to sleep on my back, and I can't make it work when sleeping on my sides. So, I ordered a different mask after reading about 3,000 reviews (ok, maybe only 1,000) of different masks, and tried to pick the best one for me (side/face sleeper). It pays to do some investigating on your own, and TELL them which mask YOU want to try.
Good luck to you I hope we are both happier soon!
;-)
~~Laurie
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Postby o2much4me » Thu Dec 07, 2006 2:29 pm

It is worth it. I am almost a month on my CPAP & I dream now. No need for naps. Happier, more patient, less depressed, and so on. Tweak your equipment to find what you can live with. I took to mine pretty good, but I would have done anything for real sleep, not to mention it could have saved my life, prevented future heart surgery etc... Just learn here on the forum. ask about your problems or questions. You will find help & it is worth it. Hang tough
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CPAP Mask/Machine

Postby satownsend » Sat Dec 09, 2006 10:14 pm

I have just gone on a VPAP machine with my pressures set at 25/23. Has anyone else had pressures this high and do you have problems sleeping with this high of a pressure? I have yet to sleep with this machine. I have tried each night, but I wind up taking it off so I can at least get some sleep prior to having to get up for work. The Dr. just prescribed me a sleeping pill to help called Lunesta, but the first night I took it, I couldn't tell I had taken anything. Wound up taking the mask off again so I could sleep. I really want to try to use this thing since I apparently stop breathing 56 times an hour. This sounds bad and I don't want things to get worse. Any comments?
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In the same boat

Postby CyberNC » Mon Dec 11, 2006 4:47 pm

Hi all,

I'm in the same situation as I can't for the life of me get used to the CPAP. I've had it for a month and I just can't stand it. It feels like I'm drowning and I'm consciously having to exhale. I asked my doc if the pressure was too high but he said no and I just needed to relax and get used to it. I've tried, but I'm up all night just thinking about breathing and it feels like I have to put a lot of effort to exhale past all the pressure. I wind up exhausted the next day and I can't function. I've screwed up at work and gotten in trouble so I'm having a hard time forcing myself to use it. I'm going to set up an appt with a different doc and see if something can be worked out. It is encouraging, however, to see how some people were able to overcome it. I'm hoping I can soon.
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worth it

Postby laurie2025 » Mon Dec 11, 2006 6:47 pm

That is a high pressure. There are certain machines that can lower the pressure on your exhale, making it easier to breathe. I hope you have one of those or can get one.
Laurie
~~Laurie
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