Dear Kashoub,
I had an MRI which showed lots and lots of small lesions sometimes overlapping, it kind of looks like baby swiss cheese :)
I was originally told I probably had MS and went on this long frustrating journey trying to find out what was going on with me. What I have learned thru all of this is to trust myself, I knew something was wrong, I got treated rather shabbily by a couple of doctors although most were okay.
I kept telling them that along with my other problems, I would wake up at night feeling like I was drowning, I wasn't breathing and for a couple of horrifying seconds I did not know how to breathe. I was told it was anxiety, panic attacks, I knew that wasn't right. Finally I went to a sleep clinic and my blood oxygen at night drops down to 60%, the sleep doc says I have probably been doing this most of my life and that is probably the reason for the brain damage.
I hope your EMG results come back good. If you do not get an answer keep trying afterall you know your body better than anyone else. I was rather shocked how little Neurologists really know about the brain and diseases that affect it. A clear MRI really doesn't mean much one way or the other, not all lesions show up on MRI's. I heard Duke University is supposed to have a new kind of MRI that shows a lot more than the standard one.
Best of luck to you.
Sara
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