Bipap machine causing severe headaches ?

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Bipap machine causing severe headaches ?

Postby toomotorbikemike » Thu Oct 19, 2006 7:09 pm

Has anyone out there had problems with constant headaches after going on a Bipap Machine?

I have been suffering with severe sleep apnea for many years. I decided to have a sleep study done. This was back in July. My results showed that I had 87 apneas in one hour and my oxygen level dropped to 54%. The apnea sleep center called me 3 hours after leaving the Hospital asking me to come back. The conversation was a bit funny. The woman at the sleep center asked me how can remember my own name with such a low oxygen level. The sleep center had a new BiPap machine for me that day! Well, I took the Bipap home and slept like a baby for the first time in 25 years. Life was good. I felt better and everybody I work with noticed a change in my face the very next morning. They said I have more color. This was after one night sleeping with the BiPap Machine. As I said life was good but not for long.

After 3 weeks of Bliss, I started getting massive headaches. The headaches last 24-7. After 12 weeks of these headaches with nausea and sometimes, blurred vision, I went to the Doctor. First thing he recommended was to have a cat scan, nothing showed up! They put me on a combination of Extra Strength Tylenol and Advil. This was no help at all. Still having massive headaches I went back to the Doctor after another 2 weeks with no relief. I was referred to a Neurologist, he said I may have too much Spinal Fluid pressure and should get a Spinal Tap. I was then referred to a Radiologist so, they could use a Fluoroscope to make sure they went into the right place in my Spine.

A nightmare comes true.

They performed 8 Spinal taps in two different areas in my spine and could draw no fluid. I was pretty beat up after forty five minutes on the table. The Doctor apologized and said no charge. The Neurologist put me on high altitude medicine to lower my spinal fluid pressure. After 4 weeks and two different dosages, still no relief! Back to the Doctor again, for an MRI. The good news they found nothing, the bad news is they found nothing. Now I'm on Beta Blockers, they are for high blood pressure patients but have given Migraine Headache patients relief. My Doctors feel the headaches have been brought on by the Apnea Machine. They can’t explain why but since they can’t find anything else that is their conclusion. I have been having these Headaches since July.

Do my symptoms sound familiar to anyone out there? Any advice would be greatly appreciated.
:cry:
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Postby CrohnieToo » Thu Oct 19, 2006 11:02 pm

Has anyone suggested a referral to an Ear, Nose, Throat specialist? Has anyone suggested a daytime oximetry? Or an ABG blood draw? Do you experience any shortness of breath during the day? I think your doctor has to script the daytime oximetry and then just pick up the oximeter from your DME supplier for the day. The sinuses and ears can be affected by PAP and an ENT would be the doctor to see to rule that out or in. Good luck!
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Postby artie » Sat Oct 21, 2006 10:14 pm

I have also developed severe headaches after about 3-4 days of cpap use and also associated episodes of dizziness on and off. Then after about 2 weeks of CPAP use I also developed nasal congestion, swelling of my face and eyes, circles around my eyes. After another 2-3 weeks I also developed neck and back pain, followed by soreness of my thorax/rib cage as well.
I am not sleepy at all, even before being diagnosed with severe OSA, but I feel tired towards the evening after 7-8 hours of work.
I am becoming a little anxious about this situation, but I am still compliant with the CPAP 14; 8 weeks now.
Are things going to get better in time?
Artie
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Postby CrohnieToo » Sun Oct 22, 2006 8:13 am

Artie, have you discussed this w/your sleep doctor and your family doctor? The headaches, nasal congestion, etc.?

I'm new to all this, just 2 weeks now on PAP and still adjusting (I hope) but I've found I'm also waking up more and more frequently w/that nagging lower backache that dissipates as I get up and move around in the morning. My theory is that the mask tends to influence us to sleep on our back more.

The neck and chest pain could be due to tension brought on by the discomfort of so much back sleeping OR due to sinus irritation, possibly a bit of a sinus infection. It certainly is something you should report to your doctors and follow up on. Good luck. Have you looked at your mucus when you "blow" your nose, etc. Do you bring up any phlegm with a cough? It should be clear or at worst opaque white. If it is yellowed or green or greyish you should for sure be checked by your doctor.
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Postby JeffroDoe » Sun Oct 22, 2006 12:40 pm

Back several months ago...all the sudden I began experiencing daily headaches. Nothing worked...tylenol, ibuprophen. Then they evolved into visual disturbances, dizzy spells, and utter misery. These were daily, paralyzing, mind exploding headaches that left me unable to do anything but writhe in pain. I was on the verge of going to my doctor to see if I had a brain tumor. Then I realized that I hadn't used humidity in over a year. I wondered if that could be the problem. Lack of humidity can cause all kinds of nasty side effects, but it never dawned on me that *I* might be in that category.

I borrowed a heated humidifier from work and used it. Bingo. Almost instantly, all my symptoms vanished and have not returned in 3 months.

Therefore, before going out of your mind with worry about having something dreadfully wrong with you, bump up your heated humidity a notch or two and try it for a couple nights. It might just solve the problem.
JeffroDoe
DME Specialist in a full service sleep center
Cpap user
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Postby derecho » Sun Oct 22, 2006 4:34 pm

#-o [b]I also have been experiencing a dull headache, but only during the day. I do have have it at night. Also have pain in my neck. Also developing small sist like bumps aroung my nose, I wear a full face mask. I have been on the bipap just over a month now. I do not have a humidifier. Good Luck #-o
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