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new to CPAP but it's not helping!

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new to CPAP but it's not helping!

Postby kadams » Tue Jul 25, 2006 5:29 pm

I have slept with my CPAP for 4 nights now and feel worse than before. Has anyone else had this happen to them? I called the doctor and they said it is not normal, but to give it 3 weeks. I don't think I'll make it 3 weeks! I'm not having trouble sleeping with my mask, thank God. I seem to have adjusted quite well to it and have worn it all night every night. Any thoughts? help!
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Postby Oggie » Tue Jul 25, 2006 6:38 pm

Hi kadams.

Everyone responds differently, some people feel better right away, some take weeks, and some take months. It depends on so many factors, including what kind of sleep dept you've accrued, the severity of your apnea, how low your oxygen levels were each night and for how long they stayed low... lots and lots of things! I've also heard that some people sleep so much more at first until they start catching up on their sleep, and it may feel like you need more sleep and feel more tired than you did before. I think of it like someone who is starving and hasn't eaten in days and days. At first they are famished, and want to eat tons of food for as long as they can. After a while their body adjusts and begins to hunger less and everything normalizes. Try to be patient with yourself and keep up the cpap and things will get better in time.
I always tell my kids....
Just because you CAN, doesn't mean you SHOULD.
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Postby lissak » Tue Jul 25, 2006 7:26 pm

Hang on, kadams. I felt just like you at first. I went to bed each night with the hope that I would be "cured" the next morning and was so disappointed when I would wake up feeling just like I did the day before. Then, one day, I noticed my hand tremors were gone. WOW. Last Monday was the first day I didn't fall asleep while working at my computer. It is a slow process for many of us. But, what's the alternative?
When I woke up this morning, my girlfriend asked, "Did you sleep good?" I said, "No, I made a few mistakes."
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Postby DMBLover371 » Tue Jul 25, 2006 9:16 pm

Kadams,

I hear you. I haven't even been on the C-PAP for a week and I haven't seen any positive results yet...except in the sleep lab. In the sleep lab I slept fine. But for the past four nights at home, I have only slept minimally. My problem has to do with anxiety about using the machine. Since I'm so young, I feel like I shouldn't be using a machine to sleep at night.

Everyone keeps telling me that it just takes me and to give it a few weeks. So I guess thats the best advice I can give you too. Hopefully, you will be able to see some more positive results soon. And remember- you are not alone.

Take care.
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Postby sleepyjean » Tue Jul 25, 2006 9:31 pm

Hi Kadams. Is it possible that you are sleeping with your mouth open? If so, and you're not wearing a full face mask, you will not get the benefit of cpap. Just a thought, but if that's not it, just give it the 3 weeks and go from there. After all, OSA is a progressive condition, so it would make sense that it would take time before we feel better. You might also need a pressure adjustment which can be determined after the 3 week period.

Congratulations by the way for adjusting to the mask so quickly!

Hang in there and please post again to let us know how you are doing.

sleepyjean
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Postby jytired » Wed Jul 26, 2006 9:15 am

Hi, Kadams, You are not alone. I just started CPAP three weeks ago. So far, I feel definitely worse! before I start CPAP I slept at sleep lab with 9.6 per hour apnea diagosed with mild OSA that night I had 38 awakenings and no stage 4 sleep. 8th days after I using CPAP, I slept at sleep lab again because I wonder why I feel so worse. the second time result I had 62 awakenings though I almost no apnea due to CPAP. still no stage 4 sleep!. I don't know how long this break-in stage will take? any people have longer CPAP experience can help us to answer our problem. I just don't have any energy. a year ago I can swimming five time a week and still see my customers all day. Now totally different people so tired and tired but I don't feel so sleeping and I don't know why? by the way, I am Canadian and my English not great and please forgive me.
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Yep

Postby domc » Wed Jul 26, 2006 9:52 am

Same here with me. I'm on my 10th day and I don't feel any different. I actually had to take a nap yesterday for 2hrs. Still was sleepy by 9pm (bedtime here). I've got my CPAP at level 10. Doc says 11-13 is normal but when I put it at 11, I can't sleep.

There is one thing I noticed at the lower levels is that I only wake up 1 time a night instead of 5. So something is working. Just wish it was faster in helping. I've only got moderate apnea at 19 per hr. I think I've had it for a long time and has only gotten worse in the last 4 years and diagnosed last month.
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new to CPAP

Postby saintpat » Sat Aug 05, 2006 4:49 pm

I'm with the "new to CPAP, so where's the miracle?" group! I find it hard to get used to a hose dragging around me, to something blowing up my nose, and something tied around my head! Of course we can't sleep until we get used to it! I remembeer when I paid 4k for dental braces, and they just felt awful and hurt and stretched my patience and I just wanted to cry! But when I got used to them, there was no problem with them anymore. This is like that. If you feel better in the evening, that is a good test. Last night, for the first time in YEARS, I was able to be awake at 10 pm. That machine is doing some good for sure! Hang in there.
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Postby sleepy one » Sat Aug 05, 2006 8:09 pm

Wow - I hope it doesn't take months for me to feel some improvement! Whenever the improvement comes, is it subtle or really noticeable? ps jytired - no apologies for your english. thanks for your post.
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Postby Guest » Sat Aug 05, 2006 10:11 pm

I just spent my first day on the CPAP machine last night. I slept for 10 hours! And I still fell asleep in the afternoon today. Oddly enough I don't find the machine too uncomfortable. I think that when you've been sleeping abnormally for years and years, you can't expect your body to adjust in a few nights or even weeks.
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Re: new to CPAP but it's not helping!

Postby Ideliv6577 » Sun Aug 06, 2006 1:58 am

You might have other problems causing apnea. I have been sleeping with the C-Pap machine for about 3 years now and it still is not working for me. I have been told by my sleep apnea doctor that I have a narrow jaw line and she wants me to have my jaw broken and reset. That is to allow more room.
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Postby SallyO » Sun Aug 06, 2006 12:27 pm

I was diagnosed with severe sleep apena, and was told it might take 3 months before I felt better. After a month, I finally have started to feel the benefits. I went through a lot of frustration during that month, but was told to be patient. I know it's different for everyone, but please give it a chance. I feel SO much better now, and am thankful I decided to keep at it.

Oggie's explanation is one of the best I've read.

Keep reading the posts here - I've learned so much, and have been so encouraged.
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Postby Roxie » Sun Aug 06, 2006 6:05 pm

Oh yeah............... I can identify. I have been on it for almost 2 months now and I am still having issues. However they seem to be slowly getting better. Very slowly.lol I think if I can get a humidfier I might actually be able to stick with it.lol Give it more time. My doc said 3 months before re-evlauating.
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Another opinion

Postby SleepyG1 » Sun Aug 06, 2006 7:10 pm

Just my opinion, but my belief is that when a sleep apnea subject goes on CPAP treatment, a kind of "shift" occurs. The shift being that whereas before, the person can't sleep due to apneas and then, later, the reason the person can't get sleep is because their subconscious, or unconscious, mind senses the CPAP mask and air pressure during the night. The subconsious mind, always protective, needs to adjust to the fact that the air pressure and the mask isn't a threat to the self. To reach Stage 3 and 4, especially, requires a lot of "letting go" on the part of the subconscious mind. To feel that level of safety takes gradual steps and, thus, time.
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Postby mrsstats » Sun Aug 06, 2006 7:59 pm

I am about 2 weeks on Cpap. If it werent for my husband complaining about my snoring I never would have gone for the sleep study. I have severe sleep apnea. My machine is set at 12. I never felt really bad before other than some days being more tired than some. Never slept thru the nite. I dont feel much different with it, still dont sleep thru the night. I dont know what to expect as far as feeling better.
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