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Upcoming UPPP surgery just need info

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Upcoming UPPP surgery just need info

Postby aschear » Sat Mar 27, 2010 9:29 am

I am a 24 year old male in great health and shape but suffer from severe apnea. I am getting ready for a UPPP surgery. I just wanted to get an idea about the surgery, how much it costs overall ( one night hospital stay ) and advice. I look forward to hearing from the community!
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Postby Bearded One » Sat Mar 27, 2010 9:40 am

My advice is to not do it.
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Postby Daniel » Sat Mar 27, 2010 10:27 am

Bearded One wrote:My advice is to not do it.


Likewise.

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Postby AllanInPA » Sat Mar 27, 2010 10:38 am

Aschear,

I had the surgery on March 16th. You already know it is going to hurt. You already know to look for alternatives. You and you doctor must have already discussed this at length and have decided it is right for you, right? If not, then I encourage you to really dig into this forum and learn as much as you can. I also encourage you to look at as many other resources you can (online, 2nd opinion, etc) before making your decision.

I am 46 years old, in moderately good health (a little overweight, but not obese), severe obstructive sleep apnea (AHI=47), and found to be CPAP intolerant. I elected to have the surgery based on the size of my tonscils and uvula. I have yet to get the final costs, however this is what my un-negotiated explanation of benefits say:
    Hostpialization: Includes 24 hours in the ICU, and use of facilities - $8900.00
    Anastesia: Includes them knocking me out, and waking me up! - $1100.00
    Dr Fees: Have not seen this one yet, but so far 2 office visits - $ 300.00

Now, remember, these costs get negotiated down, then my I pay my deductable, then 10% of the balance. I am figuring this will cost me around $1200 or so (which will be taken from my flexable spending account)

I started a thread a day or so ago about revocering from surgery. Some of the things I found worked and did not during my recovery. Again, I would encourage you to look over all this stuff so you know what you are in for. Since you are younger than I am, I would suspect you to tolerate the surgery better than if you were older. It does hurt, but has not killed me...

Best of luck to you!
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Postby CrohnieToo » Sat Mar 27, 2010 12:57 pm

I would STRONGLY suggest that you go to Dr Steven Y Park's website and educate yourself a whole lot more before you commit to UPPP surgery.

A forum search here should bring up a few posts by Dr Park. Regardless of the BS they may try to feed you about UPPP surgery the ONLY TRUE CURE for OSA is a tracheotomy.

Ask the surgeon who wants to do this surgery for you how many UPPP surgeries he has done, what his success rate is, what he considers success, how long the "success" lasts and whether that "success rate" has been proven by in-lab sleep evaluation PSGs and how long after the surgery the in-lab PSGs have been done.
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Postby Vicki » Sat Mar 27, 2010 5:25 pm

The gold standard for Obstructive Sleep Apnea surgery, especially if it is severe, is a multiphasic/surgical approach based on the Stanford protocol. Steven Parks uses this approach. You start with a UPPP and keep going until you get satisfactory results.

Your doctor probably did not tell you, but a "success" with a UPPP alone is a reduction in AHI by 50%. That is why an UPPP can work well for cases of mild OSA. However, if you have severe OSA, then your AHI is at least 30 events/hour. That means that a reduction of 50% would leave you with an AHI of 15 events/hour which still requires use of a CPAP. This is why OSA is usually multiphasic/surgical to have satisfactory results in people with moderate to severe OSA.

A follow-up sleep study needs to be done several months after surgery to objectively assess your OSA status and then every several years or so afterwards because with an UPPP alone, it can revert back to OSA. UPPP patients tend to think they are permanently cured and you may be. But it is better to not get lulled into a false sense of security to where your health suffers.

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Postby Auntie » Mon Mar 29, 2010 8:18 pm

Oh my goodness... please check into a second opinion, maybe a third. My pulmonologist said he will NOT recommend these because "they don't work" - his words, not mine.
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Postby crispian » Tue Mar 30, 2010 8:48 am

My sleep doc said similar things, about the success rate of surgery being low - also he warned that there was a good chance that CPAP would be ineffective post-op due to the changes. Food for thought.
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Postby Vicki » Tue Mar 30, 2010 2:40 pm

Here is the lastest publication (which I also made a sticky) from the gold standard in OSA surgery, Stanford. I found it for the post above "Can OSA come back after it has been fixed?"

Contemporary Surgery for OSA. Stanford, 2009

Vicki
Last edited by Vicki on Fri Apr 16, 2010 12:57 pm, edited 1 time in total.
Being defeated is often a temporary condition. Giving up is what makes it permanent.
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That which does not kill you makes you stronger-Friedrich Nietzsche
Friedrich must of had apnea.
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Postby pumpky1107 » Thu Apr 15, 2010 7:39 pm

My husband had this done a few years back. It did nothing to treat his mod-severe OSA. His tonsils/adenoids were taken out when young so they trimmed the soft palate and removed uvula etc. His issue is a poor tone in throat in which they recommeded repositioning his jaw which would require 6 weeks of jaw being wired. He said no way as the UPPP was too much pain for him. Really think this over. Success rate is not good.............
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Postby AllanInPA » Fri Apr 16, 2010 8:44 pm

My doc suggested hyoid bone advancement and tongue base reduction (in addition to the UPPP). It is pretty well documented that the success rate is pretty low with just a UPPP. In my case things are going pretty well. I am one month post op and just returned from the doctors office. He said the throat looks like it is healing perfect. I do not have any pain when swallowing, can eat just about anything again, and feel way better rested than prior to surgery. Will this last long term, time will tell; but so far I am pretty pleased with the results. I have another sleep study scheduled in 2 months, so we will see what the numbers say then too.

Everyone's experience will be as unique as the individual themselves. I went in expecting hellish pain that would be worse than anything I have ever experienced. There were times when it hurt (especially if I let the pain medicine lapse or failed to keep my throat hydrated), but most of the time the medicine kept that in check and it was tollerable.

Best of luck to you.
Allan
- - - - - - - - - - - - - - - - - - -
UPPP Survivor!!! 03/16/2010

Pre-surgery: AHI=47 ResPro C-Flex (12/6) + w/Humidifier (3) FlexFit 431 Full Face
Post-surgery: Stay Tuned...
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Postby AllanInPA » Fri Apr 16, 2010 8:45 pm

My doc suggested hyoid bone advancement and tongue base reduction (in addition to the UPPP). It is pretty well documented that the success rate is pretty low with just a UPPP. In my case things are going pretty well. I am one month post op and just returned from the doctors office. He said the throat looks like it is healing perfect. I do not have any pain when swallowing, can eat just about anything again, and feel way better rested than prior to surgery. Will this last long term, time will tell; but so far I am pretty pleased with the results. I have another sleep study scheduled in 2 months, so we will see what the numbers say then too.

Everyone's experience will be as unique as the individual themselves. I went in expecting hellish pain that would be worse than anything I have ever experienced. There were times when it hurt (especially if I let the pain medicine lapse or failed to keep my throat hydrated), but most of the time the medicine kept that in check and it was tollerable.

Best of luck to you.
Allan
- - - - - - - - - - - - - - - - - - -
UPPP Survivor!!! 03/16/2010

Pre-surgery: AHI=47 ResPro C-Flex (12/6) + w/Humidifier (3) FlexFit 431 Full Face
Post-surgery: Stay Tuned...
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