Very Tired after using cpap

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Very Tired after using cpap

Postby dianne66 » Wed Mar 17, 2010 12:52 am

I am a new user and I am extremely tired after using the machine. I put in at least 4 hours a day and I have just hit one week. I have a hard time getting enough air and I have a nasal pillow mask. Would this improve if I switch out masks? My provider of the machine said I had a low setting but that would be fitting because I am small. The more hours I put in, the more tired I am, any advice?
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Re: Very Tired after using cpap

Postby jessy 49 » Wed Mar 17, 2010 10:31 am

dianne66 wrote:My provider of the machine said I had a low setting but that would be fitting because I am small.


Your size and your pressure are not related at all.

We will need tons more information from you if we are to make any suggestions at all!
1. Make and model of your cpap
2. Pressure settings of your cpap
3. Any data your cpap provides
4. Using ramp feature or c-flex/EPR feature (you may not know what these are yet!)
5. More detail on what, exactly, the problem is -- why are you only using your cpap for 4 hours? Is the mask bothering you?

Looking forward to hearing from you!
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Postby dianne66 » Fri Mar 19, 2010 7:25 pm

Hi, thanks for your response, this is what I have:
Phillips Respironics System One - Remstar Plus C-flex
I don't have any data that I am aware of other than hours and days>4
The pressure is set at 6.0
It does have ramp - but I don't use because I really can't breathe with it on ramp
The c-flex is not programmed
I can't breathe at all when I have mask on - mask is on my nose.
I gave up last night and I am suppose to have a mask change next week - the tech is out of town, and if that doesn't work then they want me to do a test with oxygen levels to see if I need more pressure.
I have been trying to get 4 hours in because of insurance compliance but I can't breathe and it is wearing me out and I sweat like crazy.
I have mild apnea and significant arousals - 37 an hour without CPAP but with CPAP at lab I had none so I know it will help me once I get it fixed at home. But since I have had it home, I am still waking up and I am snoring as well, sweating, and exhausted.

Thanks again!!
dianne66
 
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Postby SleepyToo » Fri Mar 19, 2010 7:53 pm

I'd say that you might want to try the c-flex if you are having trouble breathing out. However, if you feel like you are not getting enough air when you breathe in, it sounds like you need to talk with your sleep doc ASAP. Your other symptoms point in the direction of suggesting insufficient pressure as well.

With regard to the machine: if the information is turned on, you can have access to the 7 and 30-day AHI, periodic breathing (mainly apneas, I believe), and major leaks, all from the same menu you use to find out how many hours and days >4 (keep scrolling down). I have the same machine, but your DME may have not programmed yours to give you all the information I insisted on having.

Does your DME have a 24-hour hotline? It might be a good time to test that out so that you can get something done before Monday.

Good luck.
SleepyToo
Philadelphia Area
Diagnosed September 2009, Respironics System One w/ C-flex and humidifier
Aloha nasal pillows
Not a medical professional, just a patient with severe OSA (31) who has done a lot of reading.
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Machine: PR System One
Mask: Resmed Swift FX
Humidifier: Yes, integral with PRS1
Year Diagnosed: 2009

Postby jessy 49 » Fri Mar 19, 2010 10:26 pm

dianne66 wrote:Hi, thanks for your response, this is what I have:
Phillips Respironics System One - Remstar Plus C-flex
I don't have any data that I am aware of other than hours and days>4
The pressure is set at 6.0
It does have ramp - but I don't use because I really can't breathe with it on ramp
The c-flex is not programmed
I can't breathe at all when I have mask on - mask is on my nose.
I gave up last night and I am suppose to have a mask change next week - the tech is out of town, and if that doesn't work then they want me to do a test with oxygen levels to see if I need more pressure.
I have been trying to get 4 hours in because of insurance compliance but I can't breathe and it is wearing me out and I sweat like crazy.
I have mild apnea and significant arousals - 37 an hour without CPAP but with CPAP at lab I had none so I know it will help me once I get it fixed at home. But since I have had it home, I am still waking up and I am snoring as well, sweating, and exhausted.

Thanks again!!


Unfortunately, I don't think that the Remstar Plus collects any data other than compliance data (basically how long you slept -- info you already unfortunately know)

Sorry to hear that you're having so much trouble but I think Sleepy Too is right -- you'll need to get back to your DME and/or sleep doc. It really sounds like you're having a problem breathing and an O2 test might point the way. Did you have trouble breathing during your titration study? Are you using the same mask? Do you have written results from your studies?
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Postby xenosfrog » Mon Mar 29, 2010 10:47 pm

Hi Diane: I have the same CPAP machine as you. My mask is an Optilife with nasal pillows. It comes with a whole set of sizes of the pillows. After a few tries I realized the first set of pillows the tech thought fit me were too small. They were size "Small". I switched to size "Medium" and it felt like I got a lot more air. The holes in the "Medium" are larger than in the "Small". Airflow is not only a function of pressure; it is also a function of area of the orifice or tube. If you are using a petite, you might try using "Small" which I believe has larger holes than the petite; since the Medium has larger holes than the small and the large has larger holes than the medium. I also liked that the medium pillows did not go as far up my nose as those on the small. I have to be very careful about the strap tightness to keep the seal just right; not to loose (or it leaks) and not too tight or it is uncomfortable and overcompresses the pillows. The pillow size change is just a start, but you could try it for a while being awake and reading or something. If you have the Optilife mask you can wear glasses! Let us know how you make out. Scott
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