Any still snoring with CPAP?

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Any still snoring with CPAP?

Postby AllanInPA » Sat Feb 27, 2010 8:44 pm

Hi everyone,

Been lurking around for a couple of days searching for some answers to a couple of questions. I have scanned some of the posts, but the answer(s) allude me. I am hoping this forum will help...

Does anyone else still snore when using their CPAP stuff? I do, and have used the machine faithfully for over 30 days now.

I have not gotten use to the mask (full face due to comfort options) yet, unless leaks and movement restrictions (due to leaks) are normal? How long does this take?

I have been referred to an ENT, who has scheduled me for UPPP, tonscillectomy, hyroid advancement, and something to do with tongue base reduction. This was after a couple of visits and me expressing frustration with the CPAP problems I am having. Even my sleep doctor has recommended the ENT...

And information would be appreciated
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Postby jrinker » Sat Feb 27, 2010 10:07 pm

If you are still snoring while using your cpap, your pressure may be too low and you might need to have it adjusted. You should probably see your sleep doc and see if that is an issue.

Thirty days seems like a long time, but it sometimes take a person a few weeks to adjust to cpap sometimes longer. I would give the cpap more of a chance before going through with the surgery. If you search on the boards here, there is a thread about UPPP recovery. You might want to look at that to get a better idea of what your surgery would entail.

I'm sure that others will chime in here. Please don't get discouraged with cpap and rush into surgery too soon. It is a big step and should be carefully considered from all angles.

Best of luck
jrinker

edited to add: Check the "Stickie" under the "Sleep Apnea Help" topic. There is a thread there about UPPP surgery that will give you more information
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Postby base2balls » Sat Feb 27, 2010 11:10 pm

:-D :-D :-D I don't think I snore with my cpap on. Least when I'm sleeping, I can't hear myself snore with it on, but I sure did snore with out it. I have a younger sister who snores like there's no tomorrow. Make me wonder if she has OSA. Good luck on every thing. Huggies, Fay
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Postby AllanInPA » Sun Feb 28, 2010 2:09 am

Thanks for the replies, the thing that drives me nuts (two things actually):

1. My uvula is HUGE... I have actually triggered my gag reflex 3 times in the past 12 months. While waking up to throw up is weird, it is even a stranger sensation to have the thing dragging on your tongue. I do not know if it can be trimmed or if it has to come out. I would prefer to avoid the possible side affects of having it totally removed, this is something I plan on addressing later in the week when I see my ENT for pre-op instructions.

2. I am more tired using the CPAP than when I do not. Since I have gotten the thing, I have never been more tired. I mean I have been exhausted at work, even when going to sleep early. I opted to not use the machine the other night, and I woke up feeling much better. My wife says I still snored like a lumberjack (no offense to any actual lumberjacks).

Allan
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Postby Daniel » Sun Feb 28, 2010 7:51 am

AllanInPA wrote:Thanks for the replies, the thing that drives me nuts (two things actually):

1. My uvula is HUGE... I have actually triggered my gag reflex 3 times in the past 12 months. While waking up to throw up is weird, it is even a stranger sensation to have the thing dragging on your tongue. I do not know if it can be trimmed or if it has to come out. I would prefer to avoid the possible side affects of having it totally removed, this is something I plan on addressing later in the week when I see my ENT for pre-op instructions.

2. I am more tired using the CPAP than when I do not. Since I have gotten the thing, I have never been more tired. I mean I have been exhausted at work, even when going to sleep early. I opted to not use the machine the other night, and I woke up feeling much better. My wife says I still snored like a lumberjack (no offense to any actual lumberjacks).

Allan


If you are still snoring while using CPAP, there is something wrong and a pressure adjustment is probably required.......you should talk to your sleep doctor.

As regards surgery......

I have been referred to an ENT, who has scheduled me for UPPP, tonscillectomy, hyroid advancement, and something to do with tongue base reduction. This was after a couple of visits and me expressing frustration with the CPAP problems I am having. Even my sleep doctor has recommended the ENT...

From your point of view, this isn't good enough.
Your ENT is proposing some fairly barbaric surgery........and I get the distinct impression that you are not fully aware of the definite pain levels you will experience post op.....nor are you aware of the realistic possibility that you will still have to use XPAP post op.

I am anti surgery...........BUT I do appreciate that surgery (in certain cases) might be successful. 'Success' of course must be defined. A surgical success is declared if your AHI is reduced by 50%, and in some cases if the AHI is reduced below 20. If your AHI is above 10 then an AHI reduction of 50% still leaves mild apnoea. An AHI of below 20 could still leave you with moderate apnoea.

In short........YOU have to sit down with your ENT and discuss this in detail:
Typical quesations that need to be answered include.....what does he class as success ? how do his 'success rates' stack upo against international rates ? what exactly does he propose doing ? for what reason ? when does he propose to carry out a follow up sleep study ? is there a possibility that the apnoea will deteriorate over the next 1/5 years ?

If you don't go into this with your eyes WIDE OPEN........you could be left with the rest of your life to regret it.

I am not saying 'don't do it'.........I am saying 'be fully aware of what you are going to have done'.

Daniel.
The untreated Sleep Apnoea sufferer died quietly in his sleep..
Unlike his three passengers who died screaming !


The first 40 years of childhood are by far the hardest
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Postby AllanInPA » Wed Mar 03, 2010 12:27 am

Thanks Daniel, I am cosidering what you have said and will addrfess the points I have questions about at my pre-op tomorrow morning. I am scheduled for surgery on the 16th, but AM getting a second opinion on Friday (the 6th) and will have the benefit of what I learn tomorrow when I go on Friday.

I am not looking forward to the surgical option, but something has to give. I am exhausted all the time (I actually felt better rested over the weekend when I did not use the CPAP). I started again Sunday night, and feel a litle better rested, yet the snoring, mask leaks, and other annoying CPAP issues remain. I cannot live like this. I am hoping that the information I learn this week will guide me in the direction best suited for my situation and circumstances.

I really appreciate all of the input and will post the information as I get it.

Thanks
Allan
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Postby Mrs Rip Van Winkle » Wed Mar 03, 2010 12:39 am

Allan, keep in mind..and please ask, will this 'cure' your SA? Will you have to use xPAP? What is the long term prognosis. For many the removal makes things worse a few years down the road and are worse off then when they started..and then xPAP is not as effective for them. Again, as Daniel had said...in certain cases it IS successful.

Best of luck.

Tami
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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Postby projman65 » Wed Mar 03, 2010 10:30 am

AllanInPA wrote:Thanks for the replies, the thing that drives me nuts (two things actually):

1. My uvula is HUGE... I have actually triggered my gag reflex 3 times in the past 12 months. While waking up to throw up is weird, it is even a stranger sensation to have the thing dragging on your tongue. I do not know if it can be trimmed or if it has to come out. I would prefer to avoid the possible side affects of having it totally removed, this is something I plan on addressing later in the week when I see my ENT for pre-op instructions.

2. I am more tired using the CPAP than when I do not. Since I have gotten the thing, I have never been more tired. I mean I have been exhausted at work, even when going to sleep early. I opted to not use the machine the other night, and I woke up feeling much better. My wife says I still snored like a lumberjack (no offense to any actual lumberjacks).

Allan



Allan,
I just wanted to chime in regarding the uvula. Before CPAP, I used to wake up with inflamed and enlarged uvula. It would actually touch my tongue and make me gag. My throat would also be sore. That tells me I was putting a lot of strain on the back of my mouth. Since starting CPAP, all these symptoms (plus other OSA symptoms) went away.
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Postby AllanInPA » Wed Mar 03, 2010 1:08 pm

Just back from my pre op visit where I had an opportunity to discuss this with the doctor and his nurse.

He has stated that 70% of those going through the treatment he has recommended (based on his examination of me and my experiences with CPAP) have experienced at least a 50% decrease in the number of sleep apnea events per hour. I asked about how well this would work for me now and down the line (5 years or longer) and he felt as thought I would benefit from this surgery over the long haul. He as recommended the 4 parts of the surgery based on the statistics involved (i.e. greater benefit of realizing sucessful numbers). The surgery will remove the uvula and tonscils, advancing the hyoid bone in front of the adams apple, and reducing the size of the base of the tongue.

When I asked specifically if it will cure my SA, he could not answer. He did indicate that if the CPAP was still required, then the pressure would probably not ba as high and might make it more tolerable (remember, right not I hate the thing).

I know this is going to hurt. All the posts and research I have done indicate this. I am not looking forward to the pain, but know something has to be done. When I asked about lingering side affects they indicated that they have never had a patient experience permanent 'snarfing' or other complication (found this to be a positive).

I do have an appointment with another ENT (from another city) for a second opinion on Friday. At least I have additional information I can use when discussing this with him.
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SNORING

Postby pinger29 » Mon Mar 08, 2010 1:00 am

During my sleep study I snored 168 times an hour. I've been using the CPAP machine for two weeks now and I haven't snored once since using it. My wife is thrilled.
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SNORING

Postby pinger29 » Mon Mar 08, 2010 1:09 am

During my sleep study I snored 168 times an hour. I've been using the CPAP machine for two weeks now and I haven't snored once since using it. My wife is thrilled.
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Postby AllanInPA » Mon Mar 08, 2010 11:26 pm

Here is an update:

I received a 2nd opinion from another ENT concerning surgery. He is more conservative than the one I am using near home (he would only perform the UPPP and see how things go, while my other ENT wants to do all 4 procedures). Pros and cons to each; I really shudder to think of going through this twice (once will be plenty).

The place I got the CPAP from made a house call today and has provided me with a new mask that may make a load of difference, It is quieter and fits over my chin (instead of from the bridge of my nose to below the lower lip). Seems more comfortable, we will see how well it works. I still have a week before surgery, so I can still see if any of this will work.

BTW: My wife said I was snoring LOUDLY again last night through the mask. According to the machine, my AHI is averaging 2.2 over the past 7 days and 2.8 over the past 30. I do not know how it can know this, but it IS a far cry from my 45.9 score during the sleep study. Even the tech has indicated that the 2.8 score is very good --- yet the snoring continues... :-(
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Postby ApexAZ » Tue Mar 09, 2010 1:33 pm

Honestly based on what I have read, it sounds like UPPP surgery alone to help OSA is becoming less common. There are several areas within the throat that can be contributing to OSA blockages and it isn't necessarily always one area. Tongue, tonsils, adenoids, soft palate, nasal pasage, septum, and any combination of them can be causes of OSA.

You may want to check out www.doctorstevenpark.com for more info.

And yes, sometimes my girlfriend says that I still snore.
Brian
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Postby AllanInPA » Wed Mar 17, 2010 11:53 pm

Well I took the plunge this week. After careful weighing of the pros and cons I elected to go forward with the 4 part surgery recommended by my doctors. As it turns out my tonscils were ginormous (to a point it made the ulula look larger than it was. Combined with the Hyoid bone advancement and tongue bas reduction my doctor feels as though there is an excellent chance to significantly reduce my sleep amnea numbers and eliminate the snoring.

Right now I am hurting some (only when swallowing). I have found that keeping everything wet helps, and taking the meds on time does too. While in the hospital (24 hours) I received morphine (an amazingl quick acting drug) and liquid Ozycodone (which to me tasks MUCH better than I had thought it was going to). I am able to talk with little resrtiction and have managed to get a popsicle and fudgesicle down (the jello at the hospital was a little to thick for me right now.

Overall the procedur went well witht he exception of an apparent allergic reaction to something I got in the recovery room. Caused a little concern whan I started itching my face and stomach and my arms started turning blue. Ovbiousl, things got straightened out. Right now the pain is less than expected, and prognosis is far beter than I had expected so right now I am pleased I went forward with this procedure.

I appreciate all of your input and for the information I got from reading various articles on this site. Right now, I think this was the right procedure for me, although everyone's experience will be different.

Will continue to post updates...

Allan
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Postby jrinker » Thu Mar 18, 2010 8:12 am

I'm glad that things are going well for you so far. Please keep posting and let us know how your recovery is going. Your experience will be valuable for others who might be considering surgery.

Best of luck
jrinker
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