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CPAP just stopped working

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CPAP just stopped working

Postby ivg » Mon Nov 30, 2009 2:26 am

I have a CPAP machine that I haven't touched in months. For the first several weeks, I felt about 60-70% better, but then I started to slide. I had problems with my lips opening (not my jaw). The sleep clinic told me to tape my mouth shut to stop the leak, and that worked for a while, but then it stopped. For the last month or two, I had reasonable compliance (5-6 hours), and no leaks that I would consider major, but also felt no benefit at all. They raised my pressure from 9 to 13, also with no effect.

Any suggestions?
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Postby CrohnieToo » Mon Nov 30, 2009 8:54 am

Well, lets start w/the basics. That CPAP isn't doing you one whit of good sitting in the closet and it certainly is one excpensive dust collecter!

What brand and model CPAP do you have? That information may help us help you or at least answer some of your questions. W/o knowing the brand and model we are pretty much in the dark as far as offering any advice.
ResScan 3.10 - Resmed S8 ResLink & oximeter
ConTec CMS-50D+ oximeter - Philips EverFlo 5L Oxygen Concentrator
PR SystemOne BPAP Auto w/Bi-Flex & Humidifier - EncorePro 2.2.14.0
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Postby ivg » Fri Dec 04, 2009 7:25 pm

Sorry about that. I should have known better than to post late at night.

I have a Respironics RemStar Pro, M Series. My mask is an Opus nasal pillow.

As I said before, the basic story is that for a while I felt significantly better (60-70%) on 9 cm of pressure, but later I felt zero effect from 13 cm.

For a while, I had issues with my lips opening and losing all of the air pressure. The sleep clinic told me to tape my mouth shut with paper tape. This worked okay. I still had some leakage, but I would say it was pretty minor - definitely no more than the vent in the mask. The extra four cm should have taken care of those leaks.

Odd bit of possibly irrelevant information: I haven't been using the humidifier. Had some issues with rainout, turned it down, eventually realized I felt fine with no water.
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Postby glennaa11 » Fri Dec 04, 2009 7:43 pm

I am surprised they didn't suggest a full face mask rather than taping your mouth shut! I would probably start there, with a new mask to see if that works better for you. And if you have a choice I think I would look for a new sleep lab/doctor.
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Postby Linda » Sat Dec 05, 2009 11:49 pm

Are you seeing a doctor who specializes in sleep medicine as followup appointments?
Or are you just calling the sleep lab? I do hope you schedule followup appointments. And I agree with glennaa11, if your sleep doctor isn't helping, find another, if possible.

As was said, why weren't you told to get a full face mask? Or if you prefer the nasal pillows, then maybe the Resmed Liberty (covers mouth but uses nasal pillows). Or why wasn't a chinstrap suggested? And do they really know why you're mouth breathing? Some people are mouth breathers out of life-long habit. Others are mouth breathers because they have some issues with breathing through their nose, like a deviated septum or chronic allergies -- and for them, restricting the mouth just doesn't work. You might not be asking the doc enough questions, but you should have a doc who knows what to ask, to better help you. As has been suggested, consider getting another sleep doc, if you're not getting answers and help. But you got to be pushy about asking questions and getting help.

It's not your cpap having stopped working for you. It's your medical care professionals preventing you from getting the help you need to get that cpap working for you.


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Postby ivg » Mon Dec 07, 2009 2:09 am

Thanks, guys. Good questions. I'll answer them separately.

I've had several in-person follow-up appointments. I've been working with Stanford Sleep Clinic, which is supposed to be the best. I suppose I can try calling my DME vendor again. They're a very friendly operation headed by a longtime CPAP user.

A chinstrap was the first suggestion. It held my jaw shut, but not my lips. They also suggested that I consider a full-face mask (doesn't take a genius to suggest that). The catch was that the tape successfully closed off my mouth but didn't help me sleep better. (I know that it kept my mouth closed because I completely disabled my humidifier but my mouth didn't dry out.) I deduced that the full mask wouldn't help where the tape hadn't.

I don't ordinarily breathe through my mouth. On the contrary, I tend to clench my teeth. I sleep on my side, so I would drool on my pillow if I opened my mouth, but my pillow is always dry in the morning. (I have drooled on a few cushy armchairs where I couldn't lie down properly, but not in my bed.) According to what Linda said, I guess I'm at risk for mouth breathing, because I do have a deviated septum and chronic mild nasal congestion, but somehow I don't breathe through my mouth.
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Postby rockysleep » Tue Dec 08, 2009 12:34 am

Funny, have had my Resmed Elite II machine for a month and it just stopped working this evening. The error code is 1019. Anyone have any idea what this error code is referencing? Thanks
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