unable to tolerate CPAP/BIPAP

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unable to tolerate CPAP/BIPAP

Postby richmed » Thu Nov 19, 2009 6:18 pm

Any suggestions for a 50 year old male with sleep apnea (mostly central) who cannot tolerate CPAP or BIPAP? I have tried several machines and they all made enough noise to prevent me from going back to sleep if I woke up during the night and The masks were very uncomfortable and confining which I think contributed to the waking up in the middle of the night. I tried several masks, I tried to become accustomed to the device's sounds etc but ultimately I got less sleep at night than without the machines. I am concerned however about the health risks of untreated sleep apnea.
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Postby ApexAZ » Thu Nov 19, 2009 6:45 pm

I think BiPAP might be the only solution for centrals. Someone correct me if I'm wrong.

Things you can do to help though are place the machine farther away? Maybe you could try putting it under the bed? Wear ear plugs? Try several masks until you find one that's tolerable, etc.

I'm not a doctor and I could be wrong, but I don't believe there's alternative solutions for treating central apneas because it's a condition in the brain.

I know it's hard but if you keep at it you may find that you can tolerate it in time. It took me 10 months but now I sleep with mine 8 hours per night.
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Postby CrohnieToo » Thu Nov 19, 2009 7:36 pm

Yep, yep. It takes an attitude adjustment on your part. You want it to work so you make it work. IF Centrals were a problem during your sleep evaluation then quite likely you will need the Resmed Adapt SV which was developed specifically for treating Centrals.

IF you encountered Centrals during your titration, and only a few or none during your sleep evaluation, then the Centrals were most likely caused by the higher pressures during titration are are not your real problem.

No one can tell you which mask will work best for you, that is something you can only find by trial and error and just plain experience wearing a CPAP mask at yoru set pressure. You can look for excuses NOT to use your xPAP or you can look for ways to succeed at using your xPAP.

You can use a 10' hose for greater distance from your head, place your xPAP on a large mouse pad (or an old typewriter pad), something firm but sound absorbing, in a drawer of a nightstand (as long as there is sufficient air circulation. A little thought and ingenuity can solve the noise problem as these xPAPs are all rated 26 dcbs or less. You must be super noise sensitive.

You can try hanging yoru hose above your head. They even make and sell profession hose hangars at the various online DME suppliers' websites. Hanging your hose above your head greatly reduces the tugging on your mask by the hose as you move during sleep.

IF you WANT xPAP therapy to work for you, you can.
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ditto what Chronie said

Postby truckerdad57 » Sun Nov 22, 2009 5:21 am

Ditto what Chronie posted.

You need to keep experimenting with the little things that can make your CPAP/BIPAP work for you.

Surf the other threads to see if there might be some other ideas you haven't tried yet.

Also look at other machines... I just switched to a Respironics from an older ResMed machine. The new machine is a lot quieter, has an exhalation pressure relief, auto on.. and a bunch of other features. Compared to the first CPAP I was on in 2002 this new one is a dream.

Good Luck.. and keep experimenting.
(just a truck driver with sleep apnea)
Co-coordinator Truckers for a Cause Chapter of A. W. A. K. E.
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Do not substitute information from here for professional medical advise.
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Postby marlow54 » Mon Nov 23, 2009 9:18 pm

CPAP or BPAP often do nothing for central apneas. Some people have obstructive & central apneas. Using CPAP or BPAP gets rid of the obstructives, but not the centrals. Often, it makes the centrals worse. That can make it very hard to sleep using the machine. Trying different masks or CPAP/BPAP machines might not make a difference at all if you're having repetitive central apneas and can't really get into uninterrupted sleep.
As ChronieToo mentioned, you may need to have another titration study using an ASV machine, which stands for auto servo ventilation. It's a fairly new technology geared specifically for central apneas. It doesn't work for everybody, but when it does work, it's amazing. I've been a sleep tech for 20 years (and a CPAP user for 11), and there was really nothing we could do for central apnea until this ASV technology came out in the past couple of years. I hope this is an option for you to check out.
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Postby White Beard » Tue Nov 24, 2009 11:29 pm

I started on CPAP and then went to BiPAP but in May of 2008 I was finally put on the ASV machine what diference! This machine has been a Godsend! It really does make a difference! if you are having Central Apneas or have Complex sleep apnea, this machine can change your life! I have the ResMed VPAP Adapt SV enhanced and I now use the Respironics FitLife full face mask, and it really does work!
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