Hi everyone.  I am so relieved to find an active and informed group to connect with.  The short version for me is that since my daughter was 8 weeks old I have felt horrible; brain fog, fatigue, reduced cognitive issues, weird neurology symptoms, depression, etc.  After seeing a rheumy for a while and then a big scare with my mom in the ICU I started getting more aggressive about trying to help the doctors get to the bottom of my symptoms.

I finally found a great neurologist who says I have had a chronic illness for the last 18 months.  At the time he suspected three things; metabolic issue(s), migraines (which I had no idea what I was doing thru was migraines 5-6 times a week), and sleep disturbance.  I went for my first sleep study a few weeks ago and I was told I had "mild to moderate obstructive sleep apnea".  When I finally asked the neuro for details of my report he said I had 32.7 AHI events per hour and my oxygen saturation levels fell to 86% every time.  So, he told me it was no wonder I was feeling horrible all this time being strangled every 2 minutes all night long.

I was scheduled for a titration study last week on Monday and my husband sabotaged it so I couldn't stay.  (Repeated phone calls of him screaming about the dogs barking at cars going by, daughter waking up and crying (b/c daddy was screaming), and then that she puked and had blood in it.  We have been having issues since he was involved in a car accident almost 3 years ago.  He had no injuries but they never did a head study and I suspect that something happened and he suffered a brain injury.  The entire time I have been not feeling well for 18 months he has never once accompanied me to a doctor's appointment or even realized I was sick.  I suspect he just thinks I'm lazy.  We have our issues to work on (or not), but I am very excited to take try #2 at my titration study tonight.  I have called the babysitter to babysit the husband, dogs, and baby.  

I have been and still am SO tired and sick and I NEED to do this for myself and my health.  I am hoping to have good results like a good friend of mine did.  I also hope I don't have a long wait for my equipment because I need to start feeling better.  I'm hoping sleeping (and breathing) at night will help with the migraine symptoms, metabolic issues, and increase my energy level to something closer to what they used to be.

I'm happy to be here where folks seem very informed and supportive.  Thanks for reading.

Chris


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www.PalominoMorgan.etsy.com
Come see the bunnies!

PalominoMorgan wrote:

I have called the babysitter to babysit the husband, dogs, and baby.  
Chris

That made me laugh.  But seriously I hope everything works out for you.

CatJ

PalominoMorgan wrote:

We have been having issues since he was involved in a car accident almost 3 years ago.  He had no injuries but they never did a head study and I suspect that something happened and he suffered a brain injury.  The entire time I have been not feeling well for 18 months he has never once accompanied me to a doctor's appointment or even realized I was sick.  I suspect he just thinks I'm lazy.  We have our issues to work on (or not)

That's a classic traumatic brain injury (TBI) story.  We live it here in our house, in fact my significant other's TBI assistant just left a few minutes ago.  If you have the means, get him evaluated by a neuropsychiatrist.  If I can be of further assistance on this topic, please send me a private message.


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Marie
Newbie with Severe OSA
ResMed S8 Elite II CPAP with EPR and H4i humidifier
ResMed Mirage Quattro full face mask
Contec CMS 50-E Pulse Oximeter

MOST DEFINITELY your husband's problem needs to be addressed ASAP. You have ENOUGH to contend with w/o his personality issues as well. By all means he should be evaluatated by a good neuropsychiatrist as Mreewh has suggested! Good luck and God bless!


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Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Resmed VPAP Auto. Humidaire 3i, Simplicity mask, ResScan 3.7, S8 ResLink, Embla oximeter.

Thanks for the replies and the understanding about the TBI possibility with my hubby.  I am going to his therapy session tomorrow so that should shed some light on how receptive he is and has been to getting help for himself.

As for me, I left my sleep study feeling just as tired and crashed for 4 hours when I got home.  *sigh*  So hard to tell the body to get up and move to get AIR when the brain is saying "just lay still.  go to sleep."  *sigh*

Hopefully, my script for the CPAP comes thru quickly.  It didn't bother me at all really for sleeping.  Just a little leaking when trying to sleep on my side so I"ll make sure I look for a mask that accomodates my sleep preferences.


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www.PalominoMorgan.etsy.com
Come see the bunnies!

Be sure to INSIST on a fully data cpable CPAP even if it delays your starting CPAP therapy a few days. That data can be really IMPORTANT if you run into mask or other therapy problems. Most local supplier prefer to provide a compliance data only CPAP and the compliance data benefits NO ONE BUT the provider for proof to receive payment from your insurance. I wish you and your hubby much success w/your therapies. This has to be a difficult time for both of you and really cut into your enjoymnent of your young daughter for both of you.

Just because a CPAP has a data card does NOT mean it is fully data capable.


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Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Resmed VPAP Auto. Humidaire 3i, Simplicity mask, ResScan 3.7, S8 ResLink, Embla oximeter.