Respironics BiPAP auto SV with Encore Smart Card

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Respironics BiPAP auto SV with Encore Smart Card

Postby Maxdri » Mon Sep 07, 2009 12:39 pm

After 6 monthsof unsuccesful treatment with CPAP, a polysomnography study indicated I have Central or Complex Sleep Apnea. After another study, I was given a "Respironics BiPAP auto SV with Encore Smart Card." I have been using the new BiPAP machine for one week. The alarm goes off ten or more times a night - indicating an Apnea. Two nights I took Ambien and I may have slept through the alarms for the first two hours. I will be taking the equipment to the provider to make sure the settings are correct. I also have an appt. with my doctor.
Question. Is anyone on this forum using a Respironics BiPAP auto SV? What has been your experience with it?
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Postby White Beard » Mon Sep 07, 2009 3:46 pm

Maxdri
I also have complex sleep apnea with mostly centrals, it took me a year and a half and 6 sleep studies and a change of Doctor before they got me on the correct treatment! I went from CPAP to CPAP with supplemental O2 to BiPAP with O2 to finally the Res Med VPAP Adapt SV machine with 3lpm of O2. I choose to go with the ResMed ASV machine verses the Respironics ASV. I have been on it since May of 2008! Best thing that ever happened to me! You need to have that alarm turned off, I can't imagine why they would have it enabled????? it does no good to have it set up that way!!!! Anyway I purchased the ResLink and card and card reader and soft ware (ResScan 3.5) for my machine plus since I am on supplemental O2 and my O2 sats go way down I also purchase the Nonin Pulse Ox that connects into the ResLink so I can also monitor my Pulse and O2 sats along with all the other data, Leak Rate, AHI, AI, Average. Press. Resp rate, VT, MV. There are several people on this forum that also have Central apneas, and a couple even have your type of machine! I am sure they will be along and post shortly! Anyway if you have Central Apneas the machine you have and the one I have are about the only ones around that are specifically made to treat Central ( complex) sleep apnea. You do need to give it some time though, I know when I started the ASV treatment last May, my Doc, said to give it at least 3 months to notice a difference in being so tired, and he was just about right, it took at least 3 months before the extreme fatigue and tiredness even started to lessen its grip on me, and another couple of months before it was completely gone! So you really need to be patient with yourself and the treatment, you didn't get sleep apnea over night and the symptoms are not going to go away over night either! However with that said the nights sweats and the nocturia, ( getting up to go to the bathroom ever hour or so) completely disappeared within just a couple of weeks after starting the ASV treatment! Anyway I do wish you Well, Good Luck White Beard
White Beard with a White Beard
Resmed VPAP Adapt SV Enhanced, HumidAire 2i, ResLink with Model 8000 Flex sensor Pulse Oximeter, and ResScan 3.5 software. Respironic EverFlo OPI Oxygen Concentrator 3 lpm
EEP 14.0, min PS 14.0, max PS 24.0, FitLife Mask
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Location: Illinois
Machine: ResMed VPAP Adapt SV enhanced
Mask: Respironics Fit Life
Humidifier: yes ResMed HumidAire 2iC
Year Diagnosed: 2007

Postby Maxdri » Mon Sep 07, 2009 5:32 pm

Hello White Beard, Thank you for responding. I'm glad to find someone else with Central/Complex Sleep Apnea. I went to a local support group and none of the thirty attendees had even heard of it. I have read about both Resmed and Respironics ASV machines. Evidently each one functions in a slightly different way, but both are supposed to treat Central/Complex apnea. The power button on the Respironics is rediculous - a very small push button, partially covered by the case material. The user needs a small finger to push it on and off. When the alarm sounds, there is a red flashing light, and the word "apnea". The manual states if this should happen, I should push the "reset button", keep using the equipment, and call my "Health care professional." Meantime the alarm keeps going off (ten times in 7 hours last night) The local provider of the machine said to bring it in on Wednesday as it may be a defective machine - the apnea alarm sounded when I was awake!
If they can't fix it, I may ask my doctor for a prescription for the ResMed machine.
I was amused by your remark about nocturia. I mentioned that problem to my neurologist almost a year ago and he quickly said that problem is a symptom of sleep apnea. Since I don't sleep on my back, don't snore and am not overweight, I was really surprised by his fast diagnoses. He was correct - my first home test revealed severe sleep apnea. By using the CPAP and now the BiPap, my nocturia is not a problem. But everything else is worse - daytime sleepiness, tiredness, lack of focus, and depression. I'm hoping that a BiPAP autoSV without audible alarms will help me get back my life.
I suspect that although the Resmed and Respironics ASV machines have been approved by Medicare for about two years, many health providers are not as familiar with them as they are with the CPAP machines. I also suspect that many sleep specialists are not equipped to test for Central/Complex sleep apnea. The more I read about Sleep Apnea, the more I realize we are in the minority and not much research is going on to help solve our problems. Do you agree?
Again, thanks for your comments, Sincerely Maxdri, with white hair, but no white beard.
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Postby White Beard » Mon Sep 07, 2009 10:05 pm

Maxdri

We are definitely in the minority, and central apneas tend to be more difficult to treat. Our machines are about the only thing on the market that are designed to help us. I know my machine has been a real Godsend for me, as the CPAP and regular BiPAP did nothing but make my Centrals worse! You might find that your DME might not want to get the ResMed Machine, I know mine didn't. But I insisted and my Doctor at my request specifically wrote the prescription for the ResMed VPAP Adapt SV enhanced machine, I told my DME if they didn't get me the machine I would go some where else that would. I also have Medicare and TriCare for Life as my secondary, and had no problem getting the machine as far as that goes. I read up on both machines before my last sleep study, and after reading up on the pros and cons and I had the Respironics BiPAP auto M series with B Flex anyway after having Repironics machines I desided I wanted to try the ResMed machine, I am glad I did I love this machine. The reason my DME did not want me to get it, is that the ResMed Machine is much more expensive, and it would cut into my DMEs profit, as Medicare and Tricare pays a fixed amount for that type of machine! At least that is the way I understand it to be. Anyway I have had my machine over a year and I really like it!

The thing that complicates central apnea folk is there can be multiple causes for having Central Apnea, Congestive Heart Failure CHF, Upper spinal cord injuries, some neurologiocal diseases, even some pain medications can cause central apneas, and also just some unknown causes. I know I have at least three or more that could be the cause, and who knows which one it is, or it mightt be all of them! I do feel for you about that alarm that must be a real pain! There must be some way to deactivate it, I know there is on my machine, and it is getting into the menu using the buttons on the top of the machine. Dou you also have the humidifier with your machine? I use the humidifier on high every night, it helps to keep my sinus from drying out, especially with the added oxygen! What mask do you use Maxdri? I was using the Liberty max for over a year, I just changed over to the Respironics FitLife full face mask and I really like it! I think it is the most comfortable mask I have ever used! Anyway if you need any help with this just let me know, Good Luck to You White Beard.
My hair is still fairly dark yet only turning on the edges but like my name implies my beard is full and White! But it is a challenge to get a mask to seal, with it But the FitLife does reallywell, here is a link: http://www.apneasupport.org/viewtopic.p ... 2&start=15
White Beard with a White Beard
Resmed VPAP Adapt SV Enhanced, HumidAire 2i, ResLink with Model 8000 Flex sensor Pulse Oximeter, and ResScan 3.5 software. Respironic EverFlo OPI Oxygen Concentrator 3 lpm
EEP 14.0, min PS 14.0, max PS 24.0, FitLife Mask
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White Beard
 
Posts: 1504
Joined: Thu Sep 20, 2007 3:27 pm
Location: Illinois
Machine: ResMed VPAP Adapt SV enhanced
Mask: Respironics Fit Life
Humidifier: yes ResMed HumidAire 2iC
Year Diagnosed: 2007

Postby rcarter » Sat Sep 12, 2009 9:22 pm

I have the same machine. Same problems. Only used it to nights. First night MinVent alarm all night. 2nd night Apnea alarm all night.
The medical supply where i got the machine had not even seen one. Took them awhile to figure out how to plug the wires in. Even longer to program it. I don't have much confidence in them.
Does any pne know how to turn off the alarms?

BiPap Auto SV by Respironics
Thanks for any help
Ray
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Postby Maxdri » Sat Sep 12, 2009 11:01 pm

After a few nights of many apnea alarms, I took my Respironics BiPAP auto SV into Apria where they checked the settings. I also picked up the humidier they had ordered for me. They said they could turn off the alarm, but hesitated to do so. After conferring with someone by phone, they said a miscalculation on the number of breaths a minute might cause alarms. (I am programmed for twelve a minute). They also suggested that a large leak in the mask might cause alarms. Although I was pretty sure I didn't have a large leak, I tried fastening my mask tighter the next night and I had fewer alarms. Or maybe the humidifier helped. I also had a red mark on the bridge of my nose and deep creases in my cheeks the next day. In the eight months I have been using CPap or BiPap machines, I have tried about nine different masks. None of the nine really work well for me. Last night I only had one alarm, so I am beginning to think that the alarms are caused by excessive leaks. I hope I can find a mask that is comfortable and doesn't permit leaks. I have an appt. this Wednesday to see if they can find a better fitting mask for me. So, Ray, you might want to try tightening your mask and see if you have fewer alarms. I sure wish someone would make custom masks.
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Postby rcarter » Sun Sep 13, 2009 1:18 am

rcarter wrote:I have the same machine. Same problems. Only used it to nights. First night MinVent alarm all night. 2nd night Apnea alarm all night.
The medical supply where i got the machine had not even seen one. Took them awhile to figure out how to plug the wires in. Even longer to program it. I don't have much confidence in them.
Does any pne know how to turn off the alarms?

BiPap Auto SV by Respironics
Thanks for any help
Ray


Found problem. The connection between the Bipap and the water tank was not correct. Fixed and the alarm when away. Now I have a new problem.....
After 2 hours of good sleep am awake and feeling great. How do I get back to sleep or do I just go do some night fishing.....
This could be a problem. I feel good with only 2 hours sleep. Better than 6 to 8 normal.
Ray
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Postby rcarter » Wed Sep 16, 2009 8:56 pm

Is there a way to turn all alarms off on this machine and just check them in the morning?
rcarter
 
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Joined: Sat Sep 12, 2009 9:50 am

Postby Maxdri » Fri Sep 18, 2009 11:56 am

I used a total face mask (large Prespironics Fit Life) for the last two nights. Much more comfortable for the bridge of my nose. And fewer false Apnea alarms. However, when the Respironics ASV changes from the Inspiratory pressure to the Expiratory pressure, I feel pressure around the rim and a hear a little "boom." Hard to describe the sensation. Anyone else experience that?
And does anyone know what the "Smart Card" records?
Maxdri
 
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Respironics BiPAP auto SV with Encore Smart Card

Postby 1wacy » Mon Sep 21, 2009 5:33 pm

Hello.First time posting but interesting in this post.I also have complex apnea and was put on the Respironics ASV.The only alarm my RT left on was the large leak alarm(start the machine with no mask and it goes off)As for what the smart card reads is pressure,percent of night in periodic breathing,apnea index,hyopnea index,breaths per minute,tidal volume,peak flow and your leaks.Hope this info helps you out.

Wes
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Postby drpeffers » Tue Nov 03, 2009 4:36 pm

rcarter - Did you ever figure out what was causing your 2 hrs of sleep and then wide awake? I have recently been diagnosed with CSA and put on the same machine. After about 2 hrs of sleep I am wide awake. This has been causing issues keeping the machine on, etc. Curious what you may have found out. Thanks!
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Re: Respironics BiPAP auto SV with Encore Smart Card

Postby softail99fb » Sun Feb 28, 2010 2:09 pm

Maxdri wrote:After 6 monthsof unsuccesful treatment with CPAP, a polysomnography study indicated I have Central or Complex Sleep Apnea. After another study, I was given a "Respironics BiPAP auto SV with Encore Smart Card." I have been using the new BiPAP machine for one week. The alarm goes off ten or more times a night - indicating an Apnea. Two nights I took Ambien and I may have slept through the alarms for the first two hours. I will be taking the equipment to the provider to make sure the settings are correct. I also have an appt. with my doctor.
Question. Is anyone on this forum using a Respironics BiPAP auto SV? What has been your experience with it?


My first time to post,

I had 57.5 issues per hour with both central and obstructive apnea showing. With a Resmed auto Vpap I still had a average of 20 apnea per hour, this was after a 4 month down load study. So my insurance was ready to pay for the Auto SV unit I just got.

I got my Respironics Bi-pap auto SV Friday the 26th. I read this post Thursday and was very upset my provider got me this machine. I told her of your issue and with a signed comment on the bottom of my purchase agreement it states I asked my alarms to be shut off. She told me this machine was better than the Resmed from what they have experiences so I trusted her.

Last night I did turn two of my alarms on just to see if I had one go off, I turned my patent on 60 seconds and my apnea on 40 seconds. If my elbow comes off my mask I may as well know it, I have been known to roll over and knock it out before and it waking me up, so is this alarm necessary, not that I can see. Then I turned the apnea on 40 seconds. If I have a issue with my breathing pattern before my machine can get me straightened up it may as well go off. I woke up the first night using it blubbering my lips LOL so I thought I'd turn it on.

I'd say your seconds for apnea needs turned up give the machine a longer chance to fix your issue before getting to upset at the machine. It probably thought you had a apnea when you were awake just from a couple three quick sniffs of the nose?

I love the way this Auto SV unit works, or should I say units I'm sure the Resmed does the same. I no longer have 6 cfm steady then 12 cfm for my intake making my mask feel like its bolting back and forth on my face. The machine will not give me anymore than needed. Sometimes I don't feel like its on the air pressure is so little!

I have just about fallen asleep and felt the pressure come up so I know I must have just about had a issue while just nodding off! And I sleep on my stomach, when I first roll over my chest has pressure back on it and my machine will give me more cfm from that, I assume. So I'd say I'll get along just fine with my Respironics Auto Bi-pap SV advanced machine.

I use a Medium sized Resmed Mirage Quattro full face mask. Its been up to 20cfm steady while testing the fit before I chose it, it never leaked, It fits me great.
Respironics Bipap Auto SV Advanced
Respironics REMstar Heated Humidifier
Resmed Mirage Quattro Full face mask

Encore Viewer 2

Epap Min 6.0
Epap Max 15
PS min 3.0 cm
PS max 15.0 cm
BPM Auto
C-Flex 2

C.J
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Postby softail99fb » Sun Feb 28, 2010 10:43 pm

rcarter wrote:Is there a way to turn all alarms off on this machine and just check them in the morning?


I can turn the alarms off on mine but it does not show how many apnea issues I have. I asked about it when I got it and was told this machine does not go by the times you have an apnea issue but something else. She told me but my mind went blank after I realized I could not see my apnea numbers the next morning. She even called her factory rep about why it didn't show the apnea readings. I honestly don't remember what she said as to how they know I'm not having apnea issues, I'm guessing pressure readings, lack of or lost which would indicate my lack of breathing for that moment?

I get a reading of my card in two weeks, she said she would tell me then how I'm doing with this over the Resmed VPap I had before. I don't think its going to be from reading the machine, it will be on the card.
Respironics Bipap Auto SV Advanced
Respironics REMstar Heated Humidifier
Resmed Mirage Quattro Full face mask

Encore Viewer 2

Epap Min 6.0
Epap Max 15
PS min 3.0 cm
PS max 15.0 cm
BPM Auto
C-Flex 2

C.J
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softail99fb
 
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Joined: Thu Feb 25, 2010 10:31 pm

Re: Respironics BiPAP auto SV with Encore Smart Card

Postby softail99fb » Mon Mar 08, 2010 1:11 pm

Apnea alarm off, I just got woken up. I never had them before this machine I don't need them now.
Respironics Bipap Auto SV Advanced
Respironics REMstar Heated Humidifier
Resmed Mirage Quattro Full face mask

Encore Viewer 2

Epap Min 6.0
Epap Max 15
PS min 3.0 cm
PS max 15.0 cm
BPM Auto
C-Flex 2

C.J
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softail99fb
 
Posts: 23
Joined: Thu Feb 25, 2010 10:31 pm



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