Wake up feeling light headed and fatigued!!!!

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Wake up feeling light headed and fatigued!!!!

Postby dpg3 » Thu Jul 16, 2009 12:44 am

Does anyone else have this problem. If I'm on my CPAP machine for any length of time I wakeup light headed and fatigued. Somedays I feel better at work but others days I am a complete zombie and have huge mood swings, get angry easily. Normally it takes quite a bit to get me angry. But I'm seen myself fly off the handle a couple of times, after waking up light headed and fatigued from the CPAP. I've mentioned this to the people who have sold me the machine. They said if might be from residual sleep deprivation. But they really didn't seem to sure about that. I get the feeling their major concern is selling the CPAP machine. Insurance pays for it so it's not hard to convince people to try it. An ear nose and throat specialist thinks it has something to do with my sinuses so has prescribed me a steroid spray to use twice a day. I usually don't have much success with them but I'll try it cause I'm desperate.
I've used the CPAP on and off for the last few months. But I keep getting discouraged with my lack of progress and the light headiness. The light headiness really worries me cause it just doesn't feel right. Wondering if the machine is doing more harm than good. I'm thinking I should've taken the dental option. But after my take home sleep study and the advise of the specialist was to get the CPAP. Should of researched more before I got the CPAP. Seems like a lot of people on here are the same as me with mixed to poor results.
My mask could be more comfortable but I have few leaks and I have an auto pressure CPAP so that's not an issue. I'm very worried because I still have the sleep apnea with all it's associated ills. I am dead tired most days and drink coffee to keep me awake.
So if anyone has had similar problems I'd love to hear about it?
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Postby ApexAZ » Thu Jul 16, 2009 1:06 am

It sounds like the treatment isn't working? That's how I feel when I don't get several nights in a row of 8 hours of sleep with treatment.
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Postby ElleMarie » Thu Jul 16, 2009 4:03 am

Well I don't' have the lightheadedness but I am concerned about you and would like to help (with the help of some REAL knowledgeable people on this forum) you get to the root of this and see if we can help you get to where you feel better with the help of your machine.

Unfortunately the DME (durable medical equipment) specialist (I use the term loosely) that I have used and many more like me, are less than knowledgeable about the products that they dispense (please no offense to any professionals here just my experience and from others I have heard).

By doing some reading here on this site you will find a wealth of information. It has been my experience that people that are doing well with any type of treatment do not search out support groups and the like due to not actually needing support for something that is working for them. SO, that being said please remember that often what you read here is being posted by people that are; new, having trouble, scared and the like, therefore you will not be reading so much about the many, many people that ARE being helped by cpap.

Before we are able to help you to sort this out we do need more information. What is your AHI? How long have you been using the machine? I read that you use it on and off, what difference do you feel when do and don't use it? Do you have a data capable machine and if so what numbers is it showing you? What ws your docs reason for going straight to an auto machine (these are often used after regular cpap fails)? Why were you given a home study instead of an overnight one at a sleep center?

Sorry for all the questions but the many people that can offer you advice will be asking them too. Please keep us posted.
~ElleMarie~ One day at a time......are you kidding me?.....sometimes it's just one minute at a time.

Jun 2007 AHI 100.7 started cpap at 9** Oct 2007-11** April 2009 Bipap-15/10
Respironics auto M w/ Swift LT for her OR Opus 360 nasal pillows
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Postby Mayumi » Thu Jul 16, 2009 7:56 am

dpg3 - I don't wish to 'hijack' your post however I am experiencing some of the same symptoms. I definitely have sleep deprivation . Could anyone more knowledgeable than I am, please explain this sleep deprivation and the associated symptoms? How long does it last, does it depend on how long you've had sleep apnea?
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Postby briank » Thu Jul 23, 2009 2:37 pm

I'm not sure if this is relevant or not, but are you getting enough humdification?

I'm just starting out on my machine, and the first night it was definitely too low. In addition to feeling too dry, I had a slight sensation like light-headedness.
CPAP: Puritan Bennett Sandman Info (@ 11 cm), Mask: ResMed Mirage Swift LT nasal, Software: Sandman Therapy 1.4, Pulse-Ox: CMS60C
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to dpg3

Postby GregM » Tue Oct 27, 2009 2:42 pm

dpg3: i know what you're going through. i all of a sudden started to feel lightheaded/faint about two years ago. although i'm pre-diabetic (which I wouldn't be if I lost more weight and maintained a good diet), most of my blood work over the past two years has been pretty normal. i've been checking my blood sugar lately and i'm finding that it can read normal even when i feel very faint. brain MRI/stress test on heart were normal.

about 18 months ago, i discovered that i have severe obstructive sleep apnea. i have been on the CPAP for one year, but i still get very lightheaded and faint. i still have never passed out, but there are days where i feel very faint for hours. although i use the CPAP, i still deprive myself of sleep. i will stay up way too late most nights playing on the computer, watching tv, etc. i have to wonder if my long-term sleep deprivation (probably about a decade) is still causing the lightheadedness/faintness. my anxiety level is also extremely high, especially when i feel faint. i wonder if this also makes me feel worse. i'm hoping to discipline myself and start to get a "normal" amount of sleep (more than 6 hours) almost every night. i hope that will make the difference.

i was feeling SO faint a bit ago, but i already feel a bit better knowing that i'm apparently not the only one suffering like this.
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Postby knitter66 » Mon Nov 02, 2009 9:18 am

I had severe weakness and lethargy from using my Cpap --I have been searching for someone with similar experience
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Postby dan717 » Thu Nov 05, 2009 10:13 am

Wow thought I was the only one. I just had an appointment with the sleep doc and he is going to check my therapy and ensure everything is working. I do not relate it to the cpap, but I assume I am not being treated properly. I have a deviated speptum and tend to mouth-breathe, so a mask adjustment might be necessary. I also have muscle twitches which get worse depending on how weak or fatigued I feel. Gogint to a neuro to check that out next week. Good luck, I will let you know what I find....

Dan
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Postby knitter66 » Thu Nov 05, 2009 11:16 am

I have come up with an idea-about my problems with Cpap--
I breath very slow and to make it short -----the machine was pushing air back in before I was getting it out--the symtoms for this carbon dioxide overload are same as I had--lethargy and weakness and further shortness of breath--does anyone relate to this problem???
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Postby knitter66 » Thu Nov 05, 2009 11:18 am

I should have also said fatigue was one of my symtoms also-don't remember lightheadedness-with all the other symtoms????
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Re: Wake up feeling light headed and fatigued!!!!

Postby Something new » Thu Nov 05, 2009 12:21 pm

dpg3 wrote:Does anyone else have this problem. If I'm on my CPAP machine for any length of time I wakeup light headed and fatigued. Somedays I feel better at work but others days I am a complete zombie and have huge mood swings, get angry easily. Normally it takes quite a bit to get me angry. But I'm seen myself fly off the handle a couple of times, after waking up light headed and fatigued from the CPAP. I've mentioned this to the people who have sold me the machine. They said if might be from residual sleep deprivation. But they really didn't seem to sure about that. I get the feeling their major concern is selling the CPAP machine. Insurance pays for it so it's not hard to convince people to try it. An ear nose and throat specialist thinks it has something to do with my sinuses so has prescribed me a steroid spray to use twice a day. I usually don't have much success with them but I'll try it cause I'm desperate.
I've used the CPAP on and off for the last few months. But I keep getting discouraged with my lack of progress and the light headiness. The light headiness really worries me cause it just doesn't feel right. Wondering if the machine is doing more harm than good. I'm thinking I should've taken the dental option. But after my take home sleep study and the advise of the specialist was to get the CPAP. Should of researched more before I got the CPAP. Seems like a lot of people on here are the same as me with mixed to poor results.
My mask could be more comfortable but I have few leaks and I have an auto pressure CPAP so that's not an issue. I'm very worried because I still have the sleep apnea with all it's associated ills. I am dead tired most days and drink coffee to keep me awake.
So if anyone has had similar problems I'd love to hear about it?



DPG3, you said you purchased a c-pap, but was your home study done through a DME vender or have you seen a board certified sleep doctor ? A home study can give a lot of information, but that information should be reviewed by a specialist and you need to talk to this doctor about these ongoing problems you are having. Could there be other problems going on right now? I have read some of the other posts and it seems that a lot of folks who have allergies right now are having a very difficult time with c-pap therapy. I guess the first thing is to make sure your c-pap pressure, etc is correct and second to make sure it isn't another health problem that is interfearing with c-pap therapy. How long have you been on c-pap and have you always had this problem. If you have been on it for awhile now with no problems and now have some I would suspect it might be due to other halth problems. Good luck.
REMstarplus, M Series with C-flex and heated humidification
C- Pap setting of 10
ResMed Mirage Quatro full face Mask
Sleep study showed 36 events per hour
Location, Nebraska
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Postby Scooterpilot » Mon Nov 09, 2009 1:20 am

I have severe sleep apnea and was prescribed a CPAP. I've been using it since March of this year and I'm having the same issues you are. My anxiety level is also extremely high before I go to sleep. Why? Because I never sleep through the whole night. With the volume on are being forced into me via the CPAP, I wake up 15 or 20 times a night. If I move at all while sleeping, the mask will break the seal and rush of air into my eyes or face immediately wakes me up. Last week I noticed that I could hardly keep my eyes open while attending an all day training session. I talked to my GP Doctor and he just says, you have to get use to it. There must be a better way.

Any suggestions will be greatly appreciated.

Regards
Chuck
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Postby Something new » Mon Nov 09, 2009 5:36 pm

Scooterpilot wrote:I have severe sleep apnea and was prescribed a CPAP. I've been using it since March of this year and I'm having the same issues you are. My anxiety level is also extremely high before I go to sleep. Why? Because I never sleep through the whole night. With the volume on are being forced into me via the CPAP, I wake up 15 or 20 times a night. If I move at all while sleeping, the mask will break the seal and rush of air into my eyes or face immediately wakes me up. Last week I noticed that I could hardly keep my eyes open while attending an all day training session. I talked to my GP Doctor and he just says, you have to get use to it. There must be a better way.

Any suggestions will be greatly appreciated.

Regards
Chuck


Your GP isn't a sleep doctor. You really need to see someone who specializes in this area. Your pressure may be not quite right. I know it took me awhile to sleep though the night. And I even had to use an over the counter sleep aid to help until I adjusted to the mask. I have an exhale release on mine so it is almost like it just breaths with me. Your mask may not be the right fit for you. Sometimes at night I get a leak and have to lift it off my face and reset it. There are various reasons it could be, but you need to talk to the sleep doctor. You should wake up most days feeling like you had a good night's rest. If your not and still waking that much with c-pap therapy then there is still a problem that isn't being resolved. Don't give up trying to get it worked out.

Good luck.
REMstarplus, M Series with C-flex and heated humidification
C- Pap setting of 10
ResMed Mirage Quatro full face Mask
Sleep study showed 36 events per hour
Location, Nebraska
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Postby dpg3 » Mon Dec 21, 2009 7:43 pm

Thanks everyone for replying and I'm very interested in the effect the pressure setting has on light headiness. Mine is set at 6 to start but as I've said I'm fairly sure that it is an auto pressure machine. At times through the night I seem to have trouble getting enough air so I briefly have to take a few breaths with my mouth. I usually only take a few breaths and then resume breathing through my nose. I can briefly set my machine to 10 to test the fit of my mask, it goes back to 6 after 5 minutes. The airflow always feels better to me at 10 and I was thinking of getting the pressure increased, next time I see my DME vendor. But now I'm a bit worried about increasing it, if it adds to my light headiness which seems logical to me. My pressure was originally at 4 which felt too low to me to get enough air flow to breath.
I was off the machine for about 3 months due to the negative effect it had on me. But I just felt my sleep apena getting worse. So recently I've been back on it probably for about a month now and I'm having the same problems with light headiness and irritability when I use it. I sometimes feel my fatigue is worse when I use it. It's very discouraging especially when the DME vendor is next to useless with help, when I ask them about it. I'm amazed by the number of people at work who have stopped using their CPAP machines due to their frustration with using the machines and seeing little effect from them. I think a big part of it is the lack of good instruction from the DME vendor. Who in my opinion, as I've said earlier, are more interested in selling the machines than giving effective help to their customers.
I am also a bit mad at my GP for suggesting a take home test rather than visiting an actual sleep doctor. The sleep doc was only 25 dollars more expensive and obviously would've had more knowledge about my condition. At the moment funds are a bit tight so going to see a sleep doc are on hold for now.
ElleMarie my AHI pre CPAP was 17.6 and as low as 1.6 after CPAP. Those figures are almost a year old. I don't have any recent data. I'm going to see my DME vendor soon and will get some updates. The 1.6 seems good but doesn't really matter if I feel horrible every time I use it.
Just started using it again after being off it for about 3 months. Been using it for a month again off and on due to the adverse conditions I experience when using it. I feel very tired, fatigued when I don't use it. Occasionally when I use it I feel a bit rested but that's the exception not the rule. Most of the time it's light headed, fatigue and irritable.
I think I do have a " data capable machine ". But usually I just insert the data card and give it to DME vendor, who accesses the information. Not sure why i went right to a auto machine or did the take home test. It was what my GP, Ear, Nose and Throat doctor the DME vendor advised. Their the experts so one tends to listen to them, should've researched it more before I got it.
I'm on this form to learn more as I feel these "experts" aren't giving me the info I need.
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Postby dpg3 » Mon Dec 21, 2009 7:52 pm

Forgot to mention I have a ResMed S8 Series II with heated humidifier. It has auto pressure , as well as fixed pressure settings!!
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