i posted this on the sleep study bit to but wasnt sure if i would get better help here or there
so if anyone can help thne i wil post the info
thanks
Natalie

well while i had 5 mins thought i would post them b4 matthew wakes up

Quote:

sleep study 1st septmeber 2005

sleep architecture was normal and sleep stages consolidated. Saturations were on average normal at 94%. The nadir in saturations of 82% occured during a 40 minute period of peridoc bretahing, otherwise saturations rarely dipped below 90%.

Sleep architecture=The pattern and structure of sleep.  It was normal
Nadir=The lowest point, in this case the lowest value.  The O2 Saturation dipped to 82% once, but usually remained above 90%.  Normal is 95-99%.

Quote:

The periodic breathing occured when matthew slept supine, but did not appear to be postional. Shorter sections (1-2 mins) of similar periodic breathing occured in other postions, typically post arousal or at the boundary between sleep stages.

He had breathing issues in any position.  The lenght of these issues were for a longer period of time when he was on his back (supine).  But they occurred in any position.

Quote:

285 central apnoeas were recordered, the longest 11 seconds. End-tidal CO2 was not recordered reliable levels but pre and post sleep cap gas CO2 readings were similar at 56mmHG (7.5KPa).

He had a high number of central apneic events.  His carbon dioxide levels (CO2) levels were the same before and after sleep (normal=35–45 mm Hg).   If you are not blowing off the CO2 as you breath, those values would increase from before to after sleep.   Therefore, the pre and post values show that he is exchanging oxygen and carbon dioxide well.  The value was high because of his central apneas.

Quote:

Respiratory rate was normal at 22br/min as was heart rate at 110bpm. Matthew slept at least briefly in all postyions
CONCLUSION: A 40 minute section of periodic breathing was main feature of this study. pre and post cap gas CO2 reading was similar and elevated at 56mmHg(7.5kPa)


sleep study 2 12th october 2005
Matthew is a active boy and sensors were not applied uuntil he was asleep.He did not tolerate the nasal cannula for nasal airflow and etCO2 monitoring. Sleep architecture was normal with mildly fragmented QS and moderately fragmented AS. Saturations were on average normal at 96%, dipping below 90% on one occasion to the nadir of 89%. The desaturation index grossly elevated at 48 dips/hour. Periodic breathing consisting of reduced respiratory effort typically resulting in central apnoeas, covered 32% of the study. A previous study (01/09/05) contained 16%. Respiratory rate was typically near the upper limit of normal at 30br/min (normal 21-29br/min) but dropped to 14br/min during episodes of periodic breathing. Mean heart rate was was normal at 110bpm. Matthew frequently moved in his sleep and least riefly slept in all postions.

CONCLUSION: Periodic breathing has not improved since sept 2005, and may have deterorated (32% this study vs 16% sept 05 study). Saturations on average normal at 96%, nadir of 89%, elevated desaturation index of 48 dips/hour. EtCO2 not recorded

Same definitions, only change is that his sleep disturbance was seen 32% of the time during the second study and 16% during the second, so his sleep issue may be "deteriorating".

Quote:

Please can i have this explaind ot me in english lol
thanks
Natalie and Matthew 17 months old

I'd go kicking and screaming to get him seen immediately.

Vicki

Natalie,

I posted an answer above.  Somehow I screwed up the quoting thing, so it didn't post as a new post.

Vicki


_________________
That which does not kill you makes you stronger-Friedrich Nietzsche
Friedrich must of had apnea.

hello vicki
thank you so much
just a few questions if ok
when he had the 40 minute period was hes sats at 82% for the whole 40 mins or did it just go there once then corrected itself?
im hoping the neuro nurse is gonna ring me nxt week once shes spoke to the consulant and go through it with me
i thought the 285 apnoeas where in the whole study not just the 40 minute period? so if they were all in the 40 minute period which is shocking as i thought 285 in 8 hours was bad let alone 40 minutes, does this mean he had no others in the night apart from that 40 minutes?
i know it had got worse between sept and oct as i saw it here, he had the 2nd study due to  ALTE on 5th oct where i found him bascially dead was horrible to see my baby like that

matthew is now waiting to go bk into hospital for MRI and sleep EEG, plus a sleep study with simulations? do u know what this is
hes due other tests on his muscles, swallowing and genetics reviiew
its been 8 weeks now since we was discharged and still no where near a app for these tests

reading that would u be concerned and would  expect them to hink omg he needs to seen now?

there was no covering letter with the reports just 2 reports and left for me to understand
thanks for ur reply hoope u can help me some more

Natalie

hello again
sorry just another question
when matthew had 32 dips per hour was that apnoeas or saturation dips? coz the nxt month he had 48 an hour so has got worse and if that is apnoeas isnt that alot of apnoeas and even if its saturation drops isnt that alot to?
sorry for all the questions
Natalie

Natalie,

You are right, 285 in 8 hours (285/8=36/hour).  Here is how the severity of apnea is graded
mild=5-15/hour, moderate=15-30/hour, severe=>30.

Just to make this clear Natalie, I am not an expert, so therefore my job is just to define the words and reword the medical/techno speak, but not interpet the results.  

He was not at 82% during the entire study.  That was a desaturation dip that was the lowest (nadir) in value as compared to the other desaturation dips.

Quoting from the second study,

The desaturation index grossly elevated at 48 dips/hour. Periodic breathing consisting of reduced respiratory effort typically resulting in central apnoeas, covered 32% of the study. A previous study (01/09/05) contained 16%.

Therefore they are talking about saturations dipping, specifically 48 dips/hour.  I can't say what caused the desats. but the study says that "Periodic breathing consisting of reduced respiratory effort typically resulting in central apnoeas, covered 32% of the study."  So when they talk about 32%, they are talking about the % occurrance of central apnoeas during the time period of the sleep study.

I do not know what a sleep study with stimulations is.   Call the doc. or sleep lab and ask them what it is and what is involved.

As a parent, I would be calling them everyday to ask questions and get him seen.  Tell them you want him seen as soon as possible.  Put him on a cancelation list and call them everyday to see if there has been a cancelation.  I am appalled that they are dragging their feet.  You can even say--this is life threatening, "i found him bascially dead was horrible to see my baby like that".

Keep us posted Natalie!!

Vicki


_________________
That which does not kill you makes you stronger-Friedrich Nietzsche
Friedrich must of had apnea.