How long does CPAP take to work??

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How long does CPAP take to work??

Postby sven » Wed Oct 15, 2008 8:23 am

My name is Sven and I have OSA (severe)

Have had x3 sleep studies - one home, one in hospital...both confirm sever OSA - is all bad.

Have had the third, the follow up sleep test with the CPAP mask - was titrated throughout the night, limits determined, loan CPAP machine organised.

Having read a lot the posts in here, i was expecting to awake the next day full of beans - reality was, felt worse than ever - 'REM rebound', be patient, will work, better off in your own bed, body getting used to sleeping well.

The actual report demonstrated the CPAP (objectively at least) could not have been better

One week on, still feel awful - the actual mask does not really bother me (aside from sleeping in the spare room due to being pretty self conscious) - no leaks, no sores or over tightening.

So the Q to the good folks in here is will this work? Does CPAP work for everyone?

Any / all advice muchly appriecated

A sleepless Sven
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Postby Mrs Rip Van Winkle » Wed Oct 15, 2008 9:17 am

Sven..it will work. You may not have complete relief of your tiredness but as long as you are getting good therapy (little to no mask leaks and an AHI of less than 5 per the data on your machine) your body will not be struggling to stop you from suffocating yourself every night. Untreated SA erodes your system over time. You may start to notice little things such as being less cranky, thinking a little clearer, not having to get up in the night to go to the bathroom as often, BP going down etc.

Do not choose another room to sleep in over vanity...keep life as close to normal as possible..your bedmate should understand and be compassionate over it.

As for how long it takes..that is the age old question..but should not be asked until you are into this for at least 3 months or so...most likely you have had this a long time untreated..there are risidual effects that linger, sleep debt that needs to be paid back, and also keep in mind that untreated SA can mask many other conditions..that only are pin pointed once your SA is being treated.

Good luck to you..keep us posted!
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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Postby sven » Thu Oct 16, 2008 6:41 am

thank you

I had the data card checked today - all seems ok, no leaks, just a bit of odd pressures etc as I fall asleep, but in summary the tech said all is well from a science viewpoint.

You are right - evenings are more alert, just the mornings are slow, 'foggy' headache.

I know vanity shouldn't get in the way - my wife is very understanding - but it is sure a wake up call - essentially i need a ventilator to breathe at night because of my BMI - that for me is a tough thing to accept.

But I am losing the internal jumper slowly.

This site is excellent

thanks again

sven
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how long...

Postby ninkasi » Thu Oct 16, 2008 9:57 am

I do not have much experience yet: my first machine is on order and I only had one 'titration' where the incidents of apnea dropped to zero.
I can say, from the one day I spent after using the centers machine (for the study) it was the best day I have spent in longer than I can remember. I was tired (from having been rousted at 4:45 am) but I did not spend the day in the mental fog I usually exist in.
Hang in there, perhaps you have to 'catch up' on some sleep and sleep 'issues'.

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Postby nazamova » Thu Oct 16, 2008 5:39 pm

Mrs Rip Van Winkle wrote:You may not have complete relief of your tiredness but as long as you are getting good therapy (little to no mask leaks and an AHI of less than 5 per the data on your machine) your body will not be struggling to stop you from suffocating yourself every night.


I hope it's okay for me to jump in and ask a question: is the goal AHI 5 or less? Does this improve as you use the CPAP more?

Good news that it all looks good, Sven! Hopefully you can just give it some time and it will get better for you.
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Postby merywidow » Thu Oct 16, 2008 7:08 pm

AHI of 5 or less is average. My doc said to stay below 5. I have not seen that it improves with times. My aAHI pretty much stays the same unless something is going on with me. During allergy season it goes up. If I have had too much salt it goes up. If I have a cold it really goes up. If I go on a diet it goes down. If I gain weight it goes up.
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Postby Mrs Rip Van Winkle » Thu Oct 16, 2008 7:34 pm

Sven..to address the BMI issue. For the large majority (no pun intended) we have a high BMI due to having untreated SA. Untreated SA causes us to put on the weight..it is not always the case that we put on weight which causes us to have the SA. I know I have had issues all my life with sleep...I have a very tiny mouth and small airways..weight did not cause this..it is the way I was born. Extra weight does usualyy make the SA worse..and the symptoms more apparant. Please though..do your self and your wife a favor..get back into your marriage bed..you are not only punishing yourself but her too...and hey, she may think men who wear masks are a turn on ;-) . My husband calls me his own Seven-Of-Nine from Star Trek. I guees the hose going up the side of my head is Borgish to him.

Get your mind set straightened out..you are not on a ventilator..you are using something that keeps your airway open...you still do all the breathing..the machine is not doing it for you.

If I were you..I would see if I could get a machine that shows your AHI and leak rate from an LCD screen..where you can wake up in the morning and see it..not something that you have to rely on someone reading a card for you. Yo will get better therapy..because you will recall possible reasons that caused the prior night AHI to be higher than normal or find what helps keep the AHI down.

Nazamova: according to my Sleep Dr...an AHI less than 5 is considered treated..and no longer having SA in the clinical sense of it. The goal is to have the AHI as close to zero as possible..but this can not always be achieved..and for most it is not. Having Mild SA is when one has an AHI of 5 +.

As for AHI improving the more you xPAP...often in the beginning..the first few weeks of using the xPAP, we tend to have a little higher AHI..we are getting use to the machine & mask and all the quirks that go with it. After a couple of weeks the AHI usually levels off. So No, the AHI does not really get lower and lower over time..making it go away... Just in the beginning during the breaking in process many see that the AHI lowers a little more..or say if they get a new machine or new mask that is better therapy for them..EX: I switched to a BiLevel and my AHI dropped a little more due to me needing a BiLevel verse straght CPAP.
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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Postby nazamova » Thu Oct 16, 2008 8:24 pm

Thanks Mrs. R. My 2-day average AHI was 9.5 and that concerned me, but I did have trouble with my mask so I'll give it a few more days. Mery, I wonder if my allergies are part of the problem, they are horrible right now. Also I tend to have really bad sleep days during "that time of the month".

Sven, there is definitely an adjustment when one person in the bed gets a CPAP, but it's not that bad. My husband's already used to it after 2 nights. Talk to your wife, get her involved, show her how the mask looks & the machine sounds. Once you get past the strange & new aspect of it, it won't be so weird.

I completely understand the vanity aspect. It takes time for some of us, but there's also the fact that we'll be healthier and feel better. I told my husband that once I start to feel better he's gonna have to watch out! LOL
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Postby Mrs Rip Van Winkle » Thu Oct 16, 2008 9:06 pm

"
Thanks Mrs. R. My 2-day average AHI was 9.5 and that concerned me, but I did have trouble with my mask so I'll give it a few more days. Mery, I wonder if my allergies are part of the problem, they are horrible right now. Also I tend to have really bad sleep days during "that time of the month". "

That can play a big part in it..especially the allergies.

When I first got my mask/machine...my husband would let me know if it was leaking. He would wake me and say.."I think you have to fix your mask" A couple of times I felt him wiggle my nasal pillows to get them to seal better..so he fixed it for me.

.........."I told my husband that once I start to feel better he's gonna have to watch out! LOL"...................................

Just remember that you are tethered to only 6 feet of hose..you do not want any neck injuries by the tether tightening..causing your head/neck to snap back while chasing him!
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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Postby sven » Fri Oct 17, 2008 8:07 am

thanks again, esp Mrs RVW

I am lucky compared to you in the US

Sleep studies x3 to loan cpap machine and mask was < 2 months and about $US 200. The purchase of the machine is is about $US400 out of pocket with health insurance contribution.

Of course you are right...i do need to get over myself to an extent and appreciate what i have - the chance to restore quality of life / relationships / time with the kids (= INVALUABLE) / work performance / life expectancy

thanks again for putting it perspective

There are people worse off than me...or indeed us

Again...this is a great site

Sven
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Postby Mrs Rip Van Winkle » Fri Oct 17, 2008 2:38 pm

So Sven..where are you typing from? What country are you in?
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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Postby teleusa » Fri Oct 17, 2008 2:47 pm

Hi,
I have been on CPAP for the last three weeks. I have moderate sleep apnea. Prior to diagnosis, for the past two years, I have daytime sleepiness and balance problems when I walk. I am sure there is an improvement, but the symptoms still exist. My doctor said it would take 5 to 6 weeks to see some improvement.
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Postby Mrs Rip Van Winkle » Fri Oct 17, 2008 3:28 pm

5 to 6 weeks is about right teleusa... I was told that if improvement is not seen after that then ask..I beleive that may be why many follow up appointments are made about 2 months after receiving the equipment.
I'm only a sufferer, not a medical pro. What I post are my thoughts as a sufferer, not that of the ASAA. As a moderator on these forums I oversee the posting rules. This is the internet, always discuss what you read with your medical team.
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Postby Todzo » Fri Oct 17, 2008 11:23 pm

sven wrote:
- evenings are more alert, just the mornings are slow, 'foggy' headache.

thanks again

sven


Hi sven

Just a couple of silly thoughts:

You may be catching up on dream time - somewhat knocking you out of your normal sleep cycle and making your body reluctant to the call to "wake up".

Is your mouth or airway passage dry when you wake up? Sore? It is possible that the humidifier ran out of water, that you became a bit dehydrated, or that some kind of allergic reaction rendered the xpap somewhat ineffective in the hour before wakeup. Fill the humidifier to the line, take a bit more liquid (no sugars - no milk) before bed time, do not eat starting several (say at least three) hours before bedtime, and keep an eye out for potential sources of allergy (or swelling) in your system.

Most xpap devices use a "lossy mask" system. Rather than have a bunch of noisy, distracting flaps and valves they put a little "bleed hole" near or on the mask and blow many times the air we are likely to use out of the mask thus preventing us from re-breathing the air we blew into the tubing using up the O2 and increasing the CO2 content. You can usually feel the air from the "bleed hole" if you place your hand near the front of your mask. If you should roll your face into your pillow, partner, or blanket and cover the hole you can end up with a nasty CO2 headache and a lot of fogginess. I found this out recovering from a nasty assault and robbery and so sleeping a lot during the day. At first I thought that I could be under the covers (out of the light) and the mask would provide the good air. It is not a nice feeling.

May we both awake with very clear heads!

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Postby sven » Sat Oct 18, 2008 9:18 am

Mrs Rip Van Winkle wrote:So Sven..where are you typing from? What country are you in?


In Australia - a small city called adelaide

and thanks to all for your comments - each night sees a little improvement which has to be a good sign

Sven
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