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CrohnieToo
Joined: 20 Mar 2006
Posts: 3059
Location: Michigan
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Its not just manufacturer names, it is the MODEL that is important in a CPAP! See my original post to you in this thread.
CrohnieToo wrote: ... You want a fully data capable CPAP and will NOT accept anything less than one that is fully data capable. ... That limits the local DME supplier to only being able to supply you w/a Resmed S8 Elite w/EPR, Resmed S8 AutoSet Vantage, Respironics M Series Pro w/C-Flex, Respironics M Series Auto w/C-Flex, Respironics M Series Auto w/A-Flex, Puritan Bennett GoodKnight 420G or Puritan Bennett GoodKnight 420E (the E is an auto). ...
9 cms of pressure shouldn't be too difficult to adjust to. I'm at 8 cms. The mask is going to be the KEY to your success given your positive attitude. An AHI (apnea/hypopnea index) <5.0 is GOOD. But the LENGTH of the apneas, and even hypopneas to a lesser degree, is what is really important. By the way, the AHI is the number of apnea & hypopnea events PER HOUR, not per night.
UPPP surgery would be my absolute LAST resort when I was absolutely dead on my feet out of it and totally unable to function at all!! Before I would consider any more surgery I'd get a second opinion - from someone NOT a sleep ENT specialist, but rather a sleep pulmo or sleep neuro. AND TOTALLY independent of your current sleep doctor.
It is good that your lowest 02 saturation was no less than 91%!! And a heck of a whole lot better that 94% was the lowest w/CPAP. That is promising for you.
REM and Delta sleep are when you get the most restorative sleep and what I call "brain rinsing". It is thought that REM is when your brain processes and files the previous day's activities. It is when we are most likely to experience 0SA events, the other most likely time is while sleeping supine. Delta sleep is also referred to as sleep Stages 3 and 4.
Is this doctor also an ENT (Ear, Nose, Throat specialist)? I ask because of the mention of surgery.
_________________ Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Resmed VPAP Auto. Humidaire 3i, Simplicity & Micro masks, ResScan 3.4, S8 ResLink, Embla oximeter.
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| Tue Feb 12, 2008 2:15 pm |
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Steves396lt1
Joined: 11 Dec 2006
Posts: 32
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BarryKaraoke wrote:Steves396lt1 wrote:The doctor said a person will come to the house and set it up. I will ask that person about the machine. Are there any specific company names that work well?
If you wait until they come to your house to ask, you will get what they bring and have no options. You should call this person now and ask what brands/models they carry. I wish I had as now I am going through some hoops to get a "real" machine.
A friend just went through this out here, and he was able to change masks etc after useing them for a time. They do follow ups every three months, to get you to try masks etc, He changed his mask a few times and went through two machines. When they call I will ask for the Pro models which do everything, right off the bat to see what we can do.
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| Tue Feb 12, 2008 2:17 pm |
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Steves396lt1
Joined: 11 Dec 2006
Posts: 32
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CrohnieToo wrote:Its not just manufacturer names, it is the MODEL that is important in a CPAP! See my original post to you in this thread.
CrohnieToo wrote: ... You want a fully data capable CPAP and will NOT accept anything less than one that is fully data capable. ... That limits the local DME supplier to only being able to supply you w/a Resmed S8 Elite w/EPR, Resmed S8 AutoSet Vantage, Respironics M Series Pro w/C-Flex, Respironics M Series Auto w/C-Flex, Respironics M Series Auto w/A-Flex, Puritan Bennett GoodKnight 420G or Puritan Bennett GoodKnight 420E (the E is an auto). ...
9 cms of pressure shouldn't be too difficult to adjust to. I'm at 8 cms. The mask is going to be the KEY to your success given your positive attitude. An AHI (apnea/hypopnea index) <5.0 is GOOD. But the LENGTH of the apneas, and even hypopneas to a lesser degree, is what is really important. By the way, the AHI is the number of apnea & hypopnea events PER HOUR, not per night.
UPPP surgery would be my absolute LAST resort when I was absolutely dead on my feet out of it and totally unable to function at all!! Before I would consider any more surgery I'd get a second opinion - from someone NOT a sleep ENT specialist, but rather a sleep pulmo or sleep neuro. AND TOTALLY independent of your current sleep doctor.
It is good that your lowest 02 saturation was no less than 91%!! And a heck of a whole lot better that 94% was the lowest w/CPAP. That is promising for you.
REM and Delta sleep are when you get the most restorative sleep and what I call "brain rinsing". It is thought that REM is when your brain processes and files the previous day's activities. It is when we are most likely to experience 0SA events, the other most likely time is while sleeping supine. Delta sleep is also referred to as sleep Stages 3 and 4.
Is this doctor also an ENT (Ear, Nose, Throat specialist)? I ask because of the mention of surgery.
Yes, the Doctor is an ENT.
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| Wed Feb 13, 2008 12:33 am |
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CrohnieToo
Joined: 20 Mar 2006
Posts: 3059
Location: Michigan
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Do as BarryKaraoke suggested and call now and tell them you will only accept a fully data capable PAP.
I deliberately said PAP just in case your doctor has ordered an autoPAP (not likely) or a bi-level (special needs).
The Resmed S8 Elite w/EPR or the Respironics M Series Pro w/C-Flex are the two leading fully data capable CPAPs. Ooops! Almost forgot! As is the Puritan Bennet GoodKnight 420G.
_________________ Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Resmed VPAP Auto. Humidaire 3i, Simplicity & Micro masks, ResScan 3.4, S8 ResLink, Embla oximeter.
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| Tue Feb 19, 2008 4:13 pm |
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tiredinOC
Joined: 24 Feb 2008
Posts: 27
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Anyone have any advice.. I have to get a CPAP.. my index was 107 when I was just tested. I do not have insurance. Anyone know of any programs , or places to get them cheaper??I am in Maryland
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| Sun Feb 24, 2008 12:29 am |
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PuhJommies
Joined: 25 Sep 2007
Posts: 1055
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With no insurance, purchasing online is the least expensive way for you to go.
You will have to research the machine you want and there is plenty of info here on the board to do that...for the masks as well.
You will need an Rx from the Dr. for settings/pressure etc no matter where you make your purchase.
I just read another post of yours and I was trying to figure out where in the heck OC was... now I know LOL... but I won't give it away
I also read, but didn't remark on your post, that your Dr wants you to see a neurologist due to your high numbers - I've not read here on the boards that anyone else has been asked to do this, but I take it as a great sign that you have a forward thinking Dr that is covering all the bases... not that he's overly concerned, but very careful...lucky you!
Some one will be along to give you the A.W.A.K.E. contact info for possibly acquiring a machine as well as some auction information.
welcome to the forum OC
_________________
CLICK HERE FOR MORE INFO~ http://tinyurl.com/69q52a
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| Sun Feb 24, 2008 1:26 am |
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tiredinOC
Joined: 24 Feb 2008
Posts: 27
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Thank you. I think the neurologist was just to rule out anything because of my dizzy spells, forgetfullness etc.. I am quite sure they are all linked to me just being a walking zombie though. LOL.. Ocean City is the OC. :)
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| Sun Feb 24, 2008 1:37 am |
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PuhJommies
Joined: 25 Sep 2007
Posts: 1055
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LOL heh... I figured out the Ocean City but didn't want to be the one to shout to the world where you lived !
Is the Dr you are using now a pulmonary Dr and or sleep specialist or other?
_________________
CLICK HERE FOR MORE INFO~ http://tinyurl.com/69q52a
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| Sun Feb 24, 2008 1:46 am |
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Steves396lt1
Joined: 11 Dec 2006
Posts: 32
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I just received my TRIWEST , and it states a E0601-E0601 Cont Airway pressure device
E0561-E0562 Humidifier nonheated w/PAP
A7032-A7032 Replacement nasal cushion
A7030-A7039 CPAP full face mask.
I contacted the company giving it to me and they said they will work with me to get the correct mask, and machine until I am happy.
My friend went through them before and went through several masks till he was done. But he only changed from a non humidifier to a humidifier type.
So, Monday I go and get it.
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| Sun Feb 24, 2008 2:45 am |
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CrohnieToo
Joined: 20 Mar 2006
Posts: 3059
Location: Michigan
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I am rather surprised that your equipment order calls for a passover humidifer (humidifier non-heated) w/PAP. Few people do well w/o a heated humidifier which can be used as a passover humidifier or is capable of providing more humidity than a passover when needed. You might want to ask your doctor about that before getting your equipment. On the other hand, passover humidifiers are less expensive than a heated humidifier if you have no insurance and cost is a factor.
_________________ Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Resmed VPAP Auto. Humidaire 3i, Simplicity & Micro masks, ResScan 3.4, S8 ResLink, Embla oximeter.
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| Sun Feb 24, 2008 7:59 am |
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tiredinOC
Joined: 24 Feb 2008
Posts: 27
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So any advice as to the most comfortable masks to use before I get mine?? Or the best machines?? I am a stomach sleeper, will this be difficult on the Cpap.?
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| Sun Feb 24, 2008 10:42 am |
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CrohnieToo
Joined: 20 Mar 2006
Posts: 3059
Location: Michigan
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Unfortunately, masks are just too indivdiual an item for our suggestions to have much relevance for you. Since you need a doctor's script for the new machine even buying online maybe you can get some help from your doctor in finding a local hospital sleep lab or some such that will let you try some different masks to find one that will work for you.
A fully data capable CPAP machine is the ideal but they are more expensive than a bare-bone, or compliance data only CPAP. The bare-bone CPAP will provide every bit as good therapy as the "fancier" fully data capable CPAPs so you won't be short changing yourself as far as therapy goes. I would suggest that if possible you get one which can provide expiration pressure relief as they usually make therapy much easier for new patients to adjust to. I think all of the CPAPs provide the Ramp option now. (Ramp starts out at a lower pressure and builds up to your set pressure w/in a set time period, usually the length of time it generally takes you to get to sleep.
_________________ Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Resmed VPAP Auto. Humidaire 3i, Simplicity & Micro masks, ResScan 3.4, S8 ResLink, Embla oximeter.
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| Sun Feb 24, 2008 2:35 pm |
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Steves396lt1
Joined: 11 Dec 2006
Posts: 32
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CrohnieToo wrote:I am rather surprised that your equipment order calls for a passover humidifer (humidifier non-heated) w/PAP. Few people do well w/o a heated humidifier which can be used as a passover humidifier or is capable of providing more humidity than a passover when needed. You might want to ask your doctor about that before getting your equipment. On the other hand, passover humidifiers are less expensive than a heated humidifier if you have no insurance and cost is a factor.
You think it has something to do with being in Hawaii. We dont even use AC here, but it is always warm.
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| Sun Feb 24, 2008 4:21 pm |
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CrohnieToo
Joined: 20 Mar 2006
Posts: 3059
Location: Michigan
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Ah, quite possibly your Hawaii location explains it then.
_________________ Some people are like Slinkies... Not really good for anything, but they still bring a smile to your face when you push them down a flight of stairs.
Resmed VPAP Auto. Humidaire 3i, Simplicity & Micro masks, ResScan 3.4, S8 ResLink, Embla oximeter.
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| Sun Feb 24, 2008 6:30 pm |
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Steves396lt1
Joined: 11 Dec 2006
Posts: 32
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Well i got a GoodNight 429G with Humidifier. Its not a fully Data Capable one. The doctor explained that one to me. I am a mild case of apnea and i responded very well to a certain pressure consistently the night I was in. Regardless, I am going to try for a couple weeks and see what happens. My medical is paying for everything, and will work till I am happy.
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| Mon Feb 25, 2008 11:02 pm |
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