rested gal
Joined: 14 Jun 2005
Posts: 401
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carpetone,
I'd ask the doctor to prescribe one of these machines, if he insists on keeping you on a straight cpap machine:
Respironics REMstar Pro 2 with C-Flex (with C-flex set on "3" for the maximum c-flex reduction of pressure when you exhale.)
or
ResMed S8 Elite with EPR (with EPR set on "3" for an exact 3 cm H2O reduction of pressure when you exhale.)
If the machine you are using has a blue sticker on top that says "C-Flex", ask your DME to check it to be sure C-Flex is turned on and that the C-Flex setting is on "3".
Better yet, what I'd really try to get the doctor to prescribe, if he's willing (some doctors are knee-jerk "no" to autopaps) is a trial on the Respironics REMstar Auto with C-Flex.
It might be that you don't really need a straight 14 blowing steadily at you all night long to keep your throat open. An autopap can be set for a range of pressure (perhaps 9 - 16 for you) and will sense from your airflow when your throat is beginning to collapse. The autopap will deliver only the pressure you need, when you need it, to prevent most apneas and hypopneas.
Possibly your throat can be kept open perfectly fine most of the night with a pressure of, say 10; and the 14 you were prescribed is needed only occasionally, perhaps only when you are on your back and/or are in REM. If that's the case for you, you can see how an autopap using varying pressure as needed could deliver more comfortable treatment. The lower the pressure a person has to use most of the night, the easier it is to breathe out against the pressure, the less apt a mask is to spring leaks, and the less apt the person is to experience aerophagia (inadvertently swallowing air that can cause painful abdominal bloating.)
It would be worth a try to get at least a couple of weeks trial on autopap, imho. If your doctor is willing to let you do that, I'd ask him to specifically prescribe the Respironics REMstar Auto with C-Flex. To date, it's the only autopap that has an exhalation pressure reduction feature that can be used while the machine is being operated in auto mode.
Well, there is one other very new machine that can give exhalation relief while in Auto mode...the new Respironics BiPAP-Auto, but that one is considerably more expensive. You'll be lucky if you can get the doctor to let you try the Auto with C-Flex.
We have to be our own advocates in so many of the comfort issues of this kind of treatment. And comfort can make all the difference in the world as to whether someone is able to stick with this or has to give up. Keep pushing for what you need to make it more comfortable! Good luck!
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